Untitled

Trauer, Tom; Mackinnon, Andrew

doi:10.1023/a:1013159414364

Cited by 119 publications

(21 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In a few of the reviewed studies, participants were allowed to choose less than five areas of importance, and it was shown that the number of nominated cues did not have an impact on the overall Index score [40,45]. The difficulties in interpreting a combined satisfaction and importance ratings have previously been pointed out [58,59], and the impact of the weighting procedure on the overall score needs further exploration. Another aspect to consider is that the weighting procedure does not only add to the Index score.…”

Section: Discussionmentioning

confidence: 99%

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

et al. 2009

View full text Add to dashboard Cite

The SEIQoL-DW appears to be a feasible and valid instrument. The lack of association between the Index score and health, functional status, demographic and clinical parameters may be explained by the instrument's focus on global QoL and by that of the idiographic measurement approach reflecting the capacity of a patient to value domains other than health in life, despite having health problems. Nevertheless, continued psychometric evaluation in large populations with a longitudinal design is recommended.

show abstract

Section: Discussionmentioning

confidence: 99%

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

et al. 2009

View full text Add to dashboard Cite

show abstract

“…In an additional separate section of the questionnaire booklet, the 12 QoL domains are listed, and respondents are able to rate the importance of each (on a five-point scale), as well as up to two additional self-nominated domains. The importance ratings are not used to weight the total domain scores derived from the core 40 items, as per current recommendations [37], but they provide an opportunity for the patient and clinician to consider and address unique QoL issues and goals as an adjunct to the standard scores.…”

Section: Methodsmentioning

confidence: 99%

Responsiveness of the Eating Disorders Quality of Life Scale (EDQLS) in a longitudinal multi-site sample

Adair

Marcoux

Bischoff

et al. 2010

Health and Quality of Life Outcomes

View full text Add to dashboard Cite

BackgroundIn eating disorders (EDs), treatment outcome measurement has traditionally focused on symptom reduction rather than functioning or quality of life (QoL). The Eating Disorders Quality of Life Scale (EDQLS) was recently developed to allow for measurement of broader outcomes. We examined responsiveness of the EDQLS in a longitudinal multi-site study.MethodsThe EDQLS and comparator generic QoL scales were collected in person at baseline, and 3 and 6 months from 130 participants (mean age 25.6 years; range 14-60) in 12 treatment programs in four Canadian provinces. Total score differences across the time points and responsiveness were examined using both anchor- and distribution-based methods.Results98 (75%) and 85 (65%) responses were received at 3 and 6 months respectively. No statistically significant differences were found between the baseline sample and those lost to follow-up on any measured characteristic. Mean EDQLS total scores increased from 110 (SD = 24) to 124.5 (SD = 29) at 3 months and 129 (SD = 28) at 6 months, and the difference by time was tested using a general linear model (GLM) to account for repeated measurement (p < .001). Responsiveness was good overall (Cohen's d = .61 and .80), and confirmed using anchor methods across 5 levels of self-reported improvement in health status (p < .001). Effect sizes across time were moderate or large for for all age groups. Internal consistency (Chronbach's alpha=.96) held across measurement points and patterns of responsiveness held across subscales. EDQLS responsiveness exceeded that of the Quality of Life Inventory, the Short Form-12 (mental and physical subscales) and was similar to the 16-dimension quality of life scale.ConclusionsThe EDQLS is responsive to change in geographically diverse and clinically heterogeneous programs over a relatively short time period in adolescents and adults. It shows promise as an outcome measure for both research and clinical practice.

show abstract

“…Some concerns have been expressed about the value of weighting years of life measurements [17]. While critics do acknowledge that the face validity and intuitive appeal to weighting a rating by an importance, they raise concerns about the high correlation between weighted and unweighted ratings, and the additional complications introduced by multiplying a rating by an importance.…”

Section: Introductionmentioning

confidence: 99%

Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection

Lewis

Kita²,

Ludlow

et al. 2018

J Transl Med

View full text Add to dashboard Cite

BackgroundMyalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is clinically defined and characterised by persistent disabling tiredness and exertional malaise, leading to functional impairment.MethodsThis study introduces the weighted standing time (WST) as a proxy for ME/CFS severity, and investigates its behaviour in an Australian cohort. WST was calculated from standing time and subjective standing difficulty data, collected via orthostatic intolerance assessments. The distribution of WST for healthy controls and ME/CFS patients was correlated with the clinical criteria, as well as pathology and cytokine markers. Included in the WST cytokine analyses were activins A and B, cytokines causally linked to inflammation, and previously demonstrated to separate ME/CFS from healthy controls. Forty-five ME/CFS patients were recruited from the CFS Discovery Clinic (Victoria) between 2011 and 2013. Seventeen healthy controls were recruited concurrently and identically assessed.ResultsWST distribution was significantly different between ME/CFS participants and controls, with six diagnostic criteria, five analytes and one cytokine also significantly different when comparing severity via WST. On direct comparison of ME/CFS to study controls, only serum activin B was significantly elevated, with no significant variation observed for a broad range of serum and urine markers, or other serum cytokines.ConclusionsThe enhanced understanding of standing test behaviour to reflect orthostatic intolerance as a ME/CFS symptom, and the subsequent calculation of WST, will encourage the greater implementation of this simple test as a measure of ME/CFS diagnosis, and symptom severity, to the benefit of improved diagnosis and guidance for potential treatments.Electronic supplementary materialThe online version of this article (10.1186/s12967-018-1473-z) contains supplementary material, which is available to authorized users.

show abstract

Untitled

Cited by 119 publications

References 11 publications

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW

Responsiveness of the Eating Disorders Quality of Life Scale (EDQLS) in a longitudinal multi-site sample

Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection

Contact Info

Product

Resources

About