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Emotional health and coping in spina bifida after goal management training: A randomized controlled trial.

“…Emotional health and coping problems are more common in chronic illness populations than in the normal population (Perry, Presley-Cantrell, & Dhingra, 2010), and this disparity holds true for SBM as well. SBM has been associated with an increased risk for depression, low self-worth, suicidal ideation, anxiety, and lower levels of health-related quality of life (HRQoL; Abresch, McDonald, Widman, McGinnis, & Hickey, 2007; Ammerman et al, 1998; Appleton et al, 1997; Barf, Post, Verhoef, Gooskens, & Prevo, 2010; Bellin et al, 2010; Kalfoss & Merkens, 2006; Verhoef et al, 2007).…”

“…Furthermore, attention and EF deficits have been found to be predictive of social adjustment difficulties (Rose & Holmbeck, 2007). In summary, because skills incorporated by the construct of EF, and in particular attentional control, are implicated in a variety of day-to-day tasks, EF problems may constitute a significant hindrance to the acquisition of independent living skills, and gaps in achieving the functional expectations of early adulthood may predispose adults with SBM to poor emotional health and impaired coping capacity (Ammerman et al, 1998; Compas, Connor-Smith, Saltzman, Thomsen, & Wadsworth, 2001). Therefore, rehabilitation efforts targeted at improving EF can make a substantial difference in patients’ overall emotional health and coping skills.…”

Development and validation of the Peer Interaction Macro-Coding System Scales (PIMS): A new tool for observational measurement of social competence in youth with spina bifida.

“…Its use has focused on two general constructs, negative conflict tactics and positive social skills, both of which have demonstrated adequate discriminant validity (Webster-Stratton & Lindsay-Woolley, 1999). The exclusive use of this measure with children who have conduct problems indicates that it may have limited utility in youth with SB, a population that tends to demonstrate lower levels of conduct disorder than typically developing youth (Ammerman, Kane, Slomka, Reigel, Franzen, & Gadow, 1998). Thus, a coding system that comprehensively assesses multiple facets of social competence and that takes into account both verbal and non-verbal behaviors is needed to better understand social competence in pediatric populations.…”

Family, school, and community: Their role in the rehabilitation of children.

“…Several prospective studies have demonstrated a relationship between the family environment and cognitive and behavioral outcomes among schoolaged children with TBI and spina bifida (Ammerman, et al, 1998;Friedman, Holmbeck, Jandasek, Zukerman, & Abad, 2004;Kinsella, Ong, Murtagh, Prior, & Sawyer, 1999;Max et al, 1998;Taylor et al, 1999;Yeates et al, 1997). These studies suggest that child adjustment and family adaptation exert reciprocal influences on one another over time, with family conflict and dysfunction contributing to adverse child outcomes and child behavior problems, resulting in mounting family conflict.…”