Protocol for the Stather Canadian Outcomes Registry for Chest ProcedurEs (SCOPE)

Abstract

IntroductionThe Stather Canadian Outcomes registry for chest ProcedurEs (SCOPE registry) is a Canadian multicentre registry of chest procedures.Methods and analysisThe SCOPE registry is designed as a multicentre prospective database of specific bronchoscopic or other pulmonary procedures. Each procedure of interest will be associated with a registry module, and data capture designed to evaluate effectiveness of procedures on relevant patient outcomes. Participating physicians will be asked to enter data for all procedures performed in a given module. The anonymised dataset will be housed in a web-based electronic secure database. Specific modules included will be based on participating physician suggestions, capacity and consensus of the steering committee and relevance of hypotheses/research potential.Ethics and disseminationThe central registry is under approval from the Conjoint Health Research Ethics Board at the University of Calgary. We aim for registry data to lead to publication of manuscripts in international medical journals as the primary mode of dissemination. Data may also be used by local investigators for personal and/or institutional quality control purposes as well as to inform health policies. Data requests from non-participating investigators for use under ethics approved research protocols can be considered.

Molecular analysis of endobronchial ultrasound needle aspirates in patients with non‐small cell lung cancer: Results from the SCOPE database

“…At its onset, this multi‐centre registry of bronchoscopic procedures had a specific module designed to record results of molecular testing of NSCLC specimens. Additional details on the registry have been published 3 . The registry and study are approved by the Calgary Health Research Ethics Board under protocol #REB15‐2843.…”

“…Additional details on the registry have been published. 3 The registry and study are approved by the Calgary Health Research Ethics Board under protocol #REB15-2843.…”

Prevalence and incidence of idiopathic subglottic stenosis in southern and central Alberta: a retrospective cohort study

“…Subglottic stenosis patients from the CVC were identified from a prospectively collected clinic patient database, plus review of all operative dates and procedures from the otolaryngology surgeons’ (JDB, DRR) electronic medical record (EMR), to capture additional patients not seen at the CVC from January 1, 2010 to December 31, 2019. Patients from the IPMC were identified through the Stather Canadian Outcomes registry for chest ProcedurEs (SCOPE) Synoptec operative summaries database detailing patients who underwent a diagnostic or therapeutic bronchoscopy between 2017–2019 [ 20 ]. Identified patients were cross-referenced to remove duplicates.…”