Responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) Measurement System

Poritz, Julia M. P.; Sherer, Mark; Kisala, Pamela A.; Tulsky, David S.; Leon‐Novelo, Luis; Ngan, Esther

doi:10.1016/j.apmr.2017.11.018

Cited by 9 publications

(2 citation statements)

References 23 publications

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“…Thus, use of multiple methods of evaluation is recommended to lend support to responsiveness of a measure (Revicki et al, 2008). Preliminary evidence of responsiveness of the TBI-QOL measures have been shown in a community-dwelling sample comprised of individuals who were an average of 5 years postinjury (Poritz et al, 2020). This study showed general stability of TBI-QOL scores over a 6-month study period, with a small but significant improvement in TBI-QOL Executive Functioning item bank scores (i.e., average of 2.7 T-score points) observed in individuals who reported improved participation across the 6-month study period on the Participation Assessment with Recombined Tools-Objective (PART-O) (Poritz et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Tyner

Kisala

Boulton

et al. 2022

Front. Hum. Neurosci.

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Patient report of functioning is one component of the neurocognitive exam following traumatic brain injury, and standardized patient-reported outcomes measures are useful to track outcomes during rehabilitation. The Traumatic Brain Injury Quality of Life measurement system (TBI-QOL) is a TBI-specific extension of the PROMIS and Neuro-QoL measurement systems that includes 20 item banks across physical, emotional, social, and cognitive domains. Previous research has evaluated the responsiveness of the TBI-QOL measures in community-dwelling individuals and found clinically important change over a 6-month assessment interval in a sample of individuals who were on average 5 years post-injury. In the present study, we report on the responsiveness of the TBI-QOL Cognition–General Concerns and Executive Function item bank scores and the Cognitive Health Composite scores in a recently injured sample over a 1-year study period. Data from 128 participants with complicated mild, moderate, or severe TBI within the previous 6 months were evaluated. The majority of the sample was male, white, and non-Hispanic. The participants were 18–92 years of age and were first evaluated from 0 to 5 months post-injury. Eighty participants completed the 1-year follow-up assessment. Results show acceptable standard response mean values (0.47–0.51) for all measures and minimal detectable change values ranging from 8.2 to 8.8 T-score points for Cognition–General Concerns and Executive Functioning measures. Anchor rating analysis revealed that changes in scores on the Executive Function item bank and the Cognitive Health Composite were meaningfully associated with participant-reported changes in the areas of attention, multitasking, and memory. Evaluation of change score differences by a variety of clinical indicators demonstrated a small but significant difference in the three TBI-QOL change scores by TBI injury severity grouping. These results support the responsiveness of the TBI-QOL cognition measures in newly injured individuals and provides information on the minimal important differences for the TBI-QOL cognition measures, which can be used for score interpretation by clinicians and researchers seeking patient-reported outcome measures of self-reported cognitive QOL after TBI.

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Section: Introductionmentioning

confidence: 99%

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Tyner

Kisala

Boulton

et al. 2022

Front. Hum. Neurosci.

Self Cite

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“…Beyond the exposition of modern measurement development techniques, articles by Sherer, 9 and Tyner, 10 and colleagues describe methods for computing higher-order factor scores and composite indices. Poritz et al 11 presents evidence of the responsivity of these measures to changes in productivity status. Assessing responsivity is a tricky business because not all measures in the TBI-QOL suite would be expected to be responsive to a specific anchor, such as productivity.…”

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confidence: 99%

Editorial: An End to Ordinal Misrule?

Malec

2020

Archives of Physical Medicine and Rehabilitation

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Die Erhebung von kommunikativ-pragmatischen Fähigkeiten und Lebensqualität nach Schädel-Hirn-Trauma

Falkowska¹,

Heider²,

Resch³

et al. 2021

Zeitschrift für Neuropsychologie

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Zusammenfassung. Hintergrund: Kommunikationsstörungen nach Schädel-Hirn-Trauma (SHT) können die Betroffenen langfristig in der sozialen Teilhabe und damit in der Lebensqualität (LQ) beeinträchtigen. Der Erfassung dieser Störungen liegt aktuell kein einheitliches Vorgehen zugrunde. Ziele: Ziel des vorliegenden Scoping Reviews war die Erfassung von Diagnostikverfahren, welche die kommunikativ-pragmatischen Kompetenzen und die Auswirkung möglicher kommunikativer Defizite auf soziale Teilhabe und LQ bei Menschen mit SHT überprüfen. Ergebnisse: Eine systematische Datenbankrecherche für den Veröffentlichungszeitraum 2010 bis 2020 identifizierte 14 relevante Testverfahren (6 auf Deutsch verfügbar). Eine inhaltliche und methodische Analyse stellte Verfahren zur Überprüfung der Kommunikationsfähigkeit (z. B. La Trobe Communication Questionnaire [LCQ]) und Verfahren zur Erfassung von Partizipation und LQ (z. B. Quality of Life after Brain Injury [QOLIBRI]) heraus. Zusammenfassung: Trotz der hohen Auftretenshäufigkeit und Persistenz kommunikativer Störungen nach SHT stehen im deutschsprachigen Raum bislang wenige geeignete Diagnostikverfahren zur Ermittlung von Kommunikationsfähigkeiten und LQ zur Verfügung. Eine weiterführende Entwicklung erscheint unerlässlich.

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Responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) Measurement System

Cited by 9 publications

References 23 publications

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury

Editorial: An End to Ordinal Misrule?

Die Erhebung von kommunikativ-pragmatischen Fähigkeiten und Lebensqualität nach Schädel-Hirn-Trauma

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