Knowledge translation in pediatric rehabilitation: expanding access to scientific knowledge

Longo, Elson; Galvão, Élida Rayanne Viana Pinheiro; Ferreira, Haryelle Náryma Confessor; Lindquist, Ana Raquel Rodrigues; Shikako‐Thomas, Keiko

doi:10.1016/j.bjpt.2017.10.003

Cited by 11 publications

(9 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…To date, the research team has published two papers on their dissemination work (Cross et al, ; Cross et al, ). The additional four sources in this category described the F‐words research team's work as an example of stakeholder‐driven and knowledge translation research (Longo, Galvão, Ferreira, Lindquist, & Shikako‐Thomas, ; Phoenix et al, ; Rosenbaum, ; Miller & Rosenbaum, ; Table ).…”

Section: Resultsmentioning

confidence: 99%

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Soper

Cross

Rosenbaum

et al. 2019

Child

View full text Add to dashboard Cite

Background:The "F-words in childhood disability" (function, family, fitness, fun, friends, and future) were introduced in a concept paper in 2012 entitled, "The Fwords in childhood disability: I swear this is how we should think!". The "F-words" are grounded in, and aim to operationalize, the World Health Organization's (World Health Organization, 2001) International Classification of Functioning, Disability and Health (ICF) framework. A citation analysis was conducted to explore the extent of research uptake of the "F-words" concepts.Methods: Three databases-Google Scholar, Wiley Online, and Web of Sciencewere searched from July 2012 to December 2018 for sources that cited the original F-words paper. Dates of publication and countries of first authors were extracted from all cited articles, and a taxonomy was developed to categorize the type of usage.Results: The search yielded 157 sources from 26 countries, and the number of citations has continued to increase since the paper's publication. Sources were placed into three categories: cited/referenced (n = 109; i.e., the paper was simply cited), integrated/informed (n = 36; i.e., the F-words were stated within the text), and non-English (n = 12). Of the 36 integrated/informed sources, 34 (94.4%) applied the F-words to the ICF framework and five themes emerged with respect to the use of the F-words: (a) support of a holistic approach to childhood disability, (b) association of the F-words to physical activity and rehabilitation, (c) application and measurement of quality of life, (d) F-words research team-related papers, and (e) "other" category.Conclusion: This citation analysis shows that the F-words are mainly being used to operationalize the ICF, support a holistic approach to childhood disability, and inform physical activity and rehabilitation-based interventions. These perspectives will play an important role in informing the next steps with respect to moving the F-words into research and practice.

show abstract

Section: Resultsmentioning

confidence: 99%

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Soper

Cross

Rosenbaum

et al. 2019

Child

View full text Add to dashboard Cite

show abstract

“…Given its relevance, assessments based on the ICF are important to plan comprehensive assessment, also in educating professionals about the needs of patients and their families, as well as intervention priorities [ 14 , 42 , 43 ]. Implementing ICF-based changes in clinical practice requires organizational planning by all the professionals of a multidisciplinary team [ 44 ].…”

Section: Discussionmentioning

confidence: 99%

Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection

Ferreira

Schiariti

Regalado

et al. 2018

IJERPH

Self Cite

View full text Add to dashboard Cite

Introduction: The increase in the number of cases of microcephaly in Brazil and its association with the Zika virus (ZIKV) is a global public health problem. The International Classification of Functioning Disability and Health (ICF) model is a powerful tool and extremely relevant in managing disability. Objective: Describe the functioning profile of children with microcephaly associated with ZIKV in two states of northeastern Brazil. Methods: This is a descriptive cross-sectional study. The sociodemographic characteristics, head circumference, and other clinical data were collected from medical charts, physical examinations, measuring instruments, and interviews with the children and their parents. The Brazilian Portuguese version of the Brief Common ICF Core Set for cerebral palsy (CP) was used. Each ICF category was assigned a qualifier, which ranged from 0 to 4 (no problem, mild problem, moderate problem, severe problem, complete problem). For environmental factors, 0 represents no barrier and 4 represents complete barrier; +0, no facilitator and +4, complete facilitator. Results: A total of 34 children with microcephaly caused by ZIKV were recruited (18 girls and 16 boys) at four rehabilitation facilities in Rio Grande do Norte and Paraíba states, Brazil. The average age of the participants was 21 months, monthly income was ≈USD 300.00, and head circumference z-scores ranged between 0.92 and −5.51. The functioning profile revealed complete disability in most of the body function categories (b). The activity and participation areas (d) were highly impacted, particularly in mobility-related categories. With respect to environmental factors (e), most of the sample reported a complete facilitator for the immediate family, friends, and health services, systems, and policies, as well as a complete barrier to societal attitudes. Conclusion: This is the first study that describes the functioning profile of children with microcephaly associated with ZIKV, using a tool based on the ICF in Brazil. Our findings reinforce the need to maximize health care and access to information, based on the ICF, for multiprofessional teams, administrators, family members, and children.

show abstract

“…KT aims to diminish the gap between the research literature and its application into practice (2)(3)(4). In this process, there should be an articulation between researchers and the end-use stakeholders (i.e., health care professionals, policymakers, and patients) (4)(5)(6)(7)(8).…”

Section: Introductionmentioning

confidence: 99%

Information and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institute

Airoldi¹,

Vieira²,

Teplicky³

et al. 2021

Front. Rehabilit. Sci.

View full text Add to dashboard Cite

Knowledge translation (KT) is gaining attention in the pediatric rehabilitation field. Nossa Casa Institute is the first organization in Brazil aiming to foster cerebral palsy (CP) awareness and empower families by discussing reliable information. This study aims to build a network where individuals with CP and their families, researchers, health care professionals, and services can communicate and share experiences. In this article, we describe the experience of planning and conducting an educational and interactive online workshop to foster principles of family-centered service (FCS). We used the action cycle from the Knowledge to Action (KTA) framework to describe and ground the proposed activities. In Module 1, “Challenges and barriers to incorporate family-centered principles,” we discussed the historical perspective, main principles, and challenges related to FCS implementation. Module 2, “What is my contribution to the family-centered service?” was aimed to foster strategies to improve the implementation of principles of FCS in the care of children with disabilities. In Module 3, “What can we do together?” the groups presented their ideas and suggestions. This interactive and educational workshop was an opportunity for Nossa Casa Institute to disseminate accessible and reliable information regarding FCS and to empower families to participate actively in the rehabilitation process and advocate for the best provision of care for their children. Future actions of Nossa Casa Institute include the coordination of a national conference to connect families, individuals with CP, healthcare and rehabilitation professionals, and researchers. There is also a need, and opportunity, for formal evaluation of these KT activities.

show abstract

Knowledge translation in pediatric rehabilitation: expanding access to scientific knowledge

Cited by 11 publications

References 7 publications

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection

Information and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institute

Contact Info

Product

Resources

About