A study of burden of care and its correlates among family members supporting relatives and loved ones with traumatic spinal cord injuries

Castellano-Tejedor, Carmina; Lusilla-Palacios, Pilar

doi:10.1177/0269215517709330

Cited by 22 publications

(23 citation statements)

References 40 publications

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“…Hassanzadeh and Hojjati reported that teaching resilience and increasing parents' adaptation can mitigate suffering and the burden of care (39). It has been found that training adaptive behaviors and supporting families of patients suffering from chronic diseases could promote adaptability and the quality of life of in patients and their caregivers (30,41). Hatami et al reported that administering Roy's model of adaptation for mothers of cancer children enhances their resilience and psychosocial well-being (42).…”

Section: Discussionmentioning

confidence: 99%

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Effect of Roy’s Adaptation Model on the Care Burden of Mothers of Children Under Chemotherapy in Gorgan in 2018: A Quasi-Experimental Study

Hatami

Hojjati

2019

Med Surg Nurs J

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Background: Cancer is one of the common diseases in childhood, the diagnosis of which shocks parents, especially mothers. Meanwhile, parents' adaptation to the disease reduces complications and problems. Objectives: Therefore, this study was aimed at exploring the impact of Roy adaptation model on care burden in mothers of children under chemotherapy. Methods: This quasi-experimental study was performed on 36 mothers of children under chemotherapy who had referred to the oncology ward of Taleghani Hospital, Gorgan, in 2018. Random sampling was carried out for both control and experimental groups. The experimental group received a training program based on Roy adaptation model during seven sessions over a four-week period. Data were collected using the Caregiver's Burden Scale (CBS) devised by Elmstahl. The results were analyzed in SPSS-18 using independent and paired t tests as well as covariance test at the significance level of P < 0.05. Results: The means of care burden before the intervention in the experimental and control groups were respectively 70.44 ± 7.04 and 67.11 ± 6.54. The independent t test did not reveal any significant difference in this regard (P = 0.15). However, after the intervention, the mean of care burden significantly differed between the experimental (50.94 ± 4.58) and control (70.88 ± 5.13) groups, as confirmed by independent t test (P < 0.001). Conclusions: Based on the results, deploying the care program based on Roy adaptation model is an effective, low-cost, and noninvasive nursing intervention for mothers of children with cancer.

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Section: Discussionmentioning

confidence: 99%

“…Thus, educating and supporting family members of patients can be translated into upgrading the adaptation and quality of care and life in patients (30,41). Given the effectiveness of Roy adaptation model, utilizing appropriate nursing patterns and theories becomes ever more important (22).…”

Section: Discussionmentioning

confidence: 99%

Effect of Roy’s Adaptation Model on the Care Burden of Mothers of Children Under Chemotherapy in Gorgan in 2018: A Quasi-Experimental Study

Hatami

Hojjati

2019

Med Surg Nurs J

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“…As for interventions with the family, longer hospital stay was significantly associated with many types of interventions: family needs assessment, psychoeducation on the effects of trauma, developing a support system, mediation, and coordination. These associations might be explained by the fact that more severe injuries are associated with longer stay (Godleski et al., 2018; Stevenson, Carr, Penn-Barwell, Ringrose, & Stapley, 2018) and greater need for family support and involvement (Castellano-Tejedor & Lusilla-Palacios, 2017; Kitter & Sharman, 2015). Such associations may also reflect greater family psycho-social needs that are more typical of longer hospital duration (Keefler et al., 2001; Moore et al., 2015).…”

Section: Discussionmentioning

confidence: 99%

Social work interventions with survivors of acts of political violence

Schiff¹,

Lesser²,

Levine³

et al. 2019

Journal of Social Work

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Summary Social workers and students in a large teaching hospital explored the characteristics of psychosocial interventions during acts of political violence. The associations between hospital length of stay, Acute Stress Reaction, and the characteristics of the implemented psychosocial interventions were also examined. One hundred and forty patients (61.4% males) treated during the so-called stabbing intifada/uprising in the years 2014–2015 in Israel in one large hospital were included. Data collection was based on clinical data mining. Findings The most frequent patient interventions were trauma-focused, while the most frequent family interventions were needs assessment and support-system building. Most of the interventions with the family (but not with the patient) were associated with longer hospital stays. Greater severity of Acute Stress Reaction was associated with greater use of trauma-focused interventions with the patient (but not with the family). Applications The findings suggest that social workers hold implicit trauma-focused intervention theories that should be written up in order to develop practice-based intervention models in the context of political violence.

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“…Penelitian lain membuktikan bahwa 31% caregiver yang merawat anak yang menderita mucopolysaccharidosis mengurangi jam kerja mereka dalam 6 bulan terakhir, dan 81% caregiver mengatakan kesulitan dalam melakukan pekerjaan karena merawat anak mereka (Conner, Cook, Fernandez, & Rangel-Miller, 2019). Penelitian lain juga menunjukkan bahwa keluarga yang merawat klien yang mengalami cedera tulang belakang mengalami intensitas beban yang berbeda-beda, 52% keluarga mengalami beban dengan kategori ringan sampai sedang, 43% keluarga mengalami beban dengan kategori sedang sampai berat, dan 5% keluarga mengalami beban yang berat (Castellano-Tejedor & Lusilla-Palacios, 2017). Penelitian lain membuktikan bahwa merawat klien dengan kanker paru-paru dapat meningkatkan beban keluarga (Hu, Peng, Su, & Huang, 2018).…”

Section: Pendahuluanunclassified

Manajemen Beban dengan Pendekatan Terapi Keluarga Triangles dalam Mengatasi Beban Subjektif Keluarga Merawat Klien Diabetes Melitus

Efendi

Susanti

Wardani

et al. 2020

JKJ

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Diabetes Melitus atau DM merupakan penyakit metabolik dengan angka kejadian yang mengalami peningkatan setiap tahunnya baik di dunia maupun di Indonesia. DM dapat memberikan dampak kepada penderita dan keluarga yang merawat. Dampak yang dialami keluarga dalam merawat penderita DM adalah meningkatnya beban keluarga yang akan berpengaruh terhadap kualitas perawatan kepada klien. Tujuan laporan kasus ini adalah untuk melakukan analisis lebih lanjut mengenai penerapan manajemen beban dengan pendekatan terapi keluarga triangles dalam mengatasi beban subjektif keluarga merawat klien DM. Metode yang digunakan dalam karya ilmiah ini adalah laporan kasus. Intervensi dilakukan terhadap satu keluarga penderita DM. Beban subjektif keluarga dinilai melalui pengamatan dan wawancara setelah intervensi dilaksanakan. Hasil yang didapatkan adalah beban subjektif keluarga, yaitu sedih dan kesal akibat kesalahpahaman antara klien dan keluarga dapat teratasi setelah dilakukan manajemen beban dengan pendekatan terapi keluarga triangles. Kata kunci: diabetes mellitus, manajemen beban, psikoedukasi keluarga, terapi keluarga triangles BURDEN MANAGEMENT WITH TRIANGLES FAMILY THERAPY APPROACH IN OVERCOMING SUBJECTIVE FAMILY BURDEN THREATING THE CLIENTS OF DIABETES MELITUS ABSTRACTDiabetes Mellitus or DM is a metabolic disease with an increasing incidence every year. DM affects patients and families who care of them. The impact experienced by the family in treating patients with DM is increased family burden which will affect the quality of client care. The purpose of this study is to conduct further analysis of family burden management with triangles therapy approach in overcoming subjective burden of caring clients with DM. The method used in this study is a case report. This study was conducted on a family of DM patients. The subjective burden of the family was assessed through observation and interviews after the intervention is carried out. The results were the subjective family burden, that was sad and upset due to misunderstanding between client and family can be resolved after burden management with family triangles therapy approach was done. Keywords: burden management, diabetes mellitus, family psychoeducation, family triangles therapy

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A study of burden of care and its correlates among family members supporting relatives and loved ones with traumatic spinal cord injuries

Abstract: More resilient and satisfied caregivers experienced lower burden. Burden is moderate-to-high and mainly related to uncertainty about the future, caregivers' insecurity with caregiving and dependence of the injured.

Cited by 22 publications

References 40 publications

Effect of Roy’s Adaptation Model on the Care Burden of Mothers of Children Under Chemotherapy in Gorgan in 2018: A Quasi-Experimental Study

Effect of Roy’s Adaptation Model on the Care Burden of Mothers of Children Under Chemotherapy in Gorgan in 2018: A Quasi-Experimental Study

Social work interventions with survivors of acts of political violence

Manajemen Beban dengan Pendekatan Terapi Keluarga Triangles dalam Mengatasi Beban Subjektif Keluarga Merawat Klien Diabetes Melitus

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