Coping with multiple sclerosis-the role of social support

Sühnel, Annett; König, N.; Zettl, Uwe K.

doi:10.1111/ane.12673

Cited by 37 publications

(42 citation statements)

References 25 publications

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“…Another study found that degree of impairment among MS patients was related to the amount of social support they needed for coping and that special training was necessary to enhance this coping strategy (Rommer, Suhnel, Konig, & Zettl, 2016). We could find no other theory-/modelbased program for intervening in MS patients.…”

Section: Lazarus and Folkman's Transactional Model Of Stress And Copingmentioning

confidence: 89%

“…Schwartz in a randomized controlled trial found that quality of life was improved more by education in coping skills than was found for a peer support group (Schwartz, 1999). Another study found that degree of impairment among MS patients was related to the amount of social support they needed for coping and that special training was necessary to enhance this coping strategy (Rommer, Suhnel, Konig, & Zettl, 2016). We could find no other theory‐/model‐based program for intervening in MS patients.…”

Section: Introductionmentioning

confidence: 99%

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Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

et al. 2017

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ObjectivesMultiple sclerosis (MS) is a chronic and progressive disease that causes stress due to its unpredictability and lack of definitive treatments. This study examined the effects of an educational program using a transactional model to help women with MS cope with their disease.Materials and MethodsIn a randomized clinical trial, 80 female patients from the MS Society of Iran were randomized to the intervention (n = 40) or a control group (n = 40). Outcomes were assessed using Cohen's Perceived Stress Scale (PSS) and the Jalowiec Coping Scale (JCS), which were completed by both groups at baseline, 1 month, and 3 months after the intervention. The intervention consisted of six educational sessions administered over 2 months based on a transactional model. The data were analyzed using repeated measures ANOVA.ResultsAverage PSS scores decreased significantly over time in the intervention group, while increasing in the control group. Between‐group differences were significant at both 1‐month and 3‐month follow‐up (p < .001). Both problem‐focused and emotion‐focused coping styles improved over time in use and effectiveness in the intervention group, whereas little or no change occurred in these coping behaviors in the control group.ConclusionThe transactional model‐based education program tested here was successful in reducing stress levels and increasing healthy coping styles in women with MS. If these findings are replicated in future studies, widespread adoption of this program may help women with MS cope more successfully with their disease.

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Section: Lazarus and Folkman's Transactional Model Of Stress And Copingmentioning

confidence: 89%

Section: Introductionmentioning

confidence: 99%

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

et al. 2017

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“…They seem to be influenced by the level of impairment. Especially, moderate affected patients are tackling more intensively with their disease in comparison with less or more severe impaired patients . One way of coping is to look for other and/or additional forms of treatment: the so‐called complementary and alternative medicine (CAM) .…”

Section: Introductionmentioning

confidence: 99%

Coping behavior in multiple sclerosis—complementary and alternative medicine: A cross‐sectional study

König¹,

Sühnel

Zettl

2018

CNS Neurosci Ther

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SummaryMain ProblemTreatment options for multiple sclerosis (MS) have enlarged tremendously over the last years. Nonetheless, lots of patients look for alternative treatment options. The use of complementary and alternative medicine (CAM) is widespread in MS, however, its scientific investigation is limited so far. The aim of the study is to analyse clinical and demographical differences of MS patients in dependency of their CAM utilization as coping strategy.MethodsA total of 254 patients with a clinically definite MS were examined in a semistructured interview. Additional standardized questionnaires were used to measure different aspects of coping with illness. All patients underwent neurological examination.ResultsAbout 206 of all enrolled patients are CAM users (81.1%). They have a longer disease duration (8.3 years vs 7.3 years, P = 0.028) and show higher disability (median EDSS 4.0 vs 2.0, P < 0.001) than nonusers. CAM users differed significantly from nonusers in their coping behavior (P = 0.035). Users are brooding more heavily over the disease, looking for more information about MS, and are looking for a sense of their disease in religion more often than nonusers. CAM users are at a higher risk of depression. Almost two‐thirds of CAM users (57.6%) reported positive effects on the well‐being of their state of health.ConclusionCoping behavior differs significantly between CAM users and nonusers. CAM utilization is associated with higher disability and depression. More than 80% of our cohort has used alternative or complementary methods. CAM utilization may mirror unmet needs in the treatment of MS.

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“…Numerous studies have shown that there is a direct relationship between an increase in the quality of life of patients with MS and social support. The latter produces a protective effect in the lives of patients (1,2,3,4,5,6,7).…”

Section: Introductionmentioning

confidence: 99%

Quality of Life, Coping, and Social Support in Patients with Multiple Sclerosis: A Pilot Study

Zengin¹,

Erbay²,

Yıldırım³

et al. 2017

tnd

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Results:Sociodemographic variables have an impact on the coping styles of patients with MS. When the relationship between coping and quality of life is examined, there is a positive correlation between the use of problem-focused coping strategies and quality of life, whereas there is a negative correlation between the use of emotion-focused coping strategies and quality of life. The scores of active coping, planning, use of emotional support, and use of instrumental support of patients who received social support were higher, whereas their denial scores were lower. Conclusions:According to the findings of our study, the sociodemographic attributes and social support mechanisms of patients have an impact on their quality of life, as well as the way they cope with MS. Keywords:Multiple sclerosis, quality of life, coping, social support Amaç: Bu araştırmanın amacı multipl skleroz (MS) hastalarının sosyo-demografik özellikleri, sosyal destek sistemleri, kullandıkları baş etme stratejileri ve yaşam kaliteleri arasındaki ilişki hakkında bilgi edinmektir. Gereç ve Yöntem:Bu çalışma bir kesit alma araştırması şeklinde tasarlanmıştır. Çalışma, Türkiye MS Derneği'ne kayıtlı 214 MS hastasıyla gerçekleştirilmiştir. Bulgular: Cinsiyet, medeni durum ve eğitim düzeyi gibi sosyo-demografik değişkenler MS hastalarının baş etme stilleri üzerinde etkilidir. Baş etme ve yaşam kalitesi ilişkisi incelendiğinde sorun odaklı baş etme stratejilerinin kullanımı yaşam kalitesiyle pozitif yönlü bir ilişkiye sahipken duygu odaklı baş etme stratejilerinin kullanımı ise yaşam kalitesiyle negatif yönlü bir ilişkiye sahiptir. Sosyal destek alan hastaların aktif baş etme, planlama, duygusal destek kullanımı, maddi destek kullanımı puanları daha yüksekken inkar puanı daha düşüktür. Original Article / Özgün Araştırma

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Coping with multiple sclerosis-the role of social support

Cited by 37 publications

References 25 publications

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

Effect of a transactional model education program on coping effectiveness in women with multiple sclerosis

Coping behavior in multiple sclerosis—complementary and alternative medicine: A cross‐sectional study

Quality of Life, Coping, and Social Support in Patients with Multiple Sclerosis: A Pilot Study

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