Preserving Dignity in Later Life

José, José de São

doi:10.1017/s0714980816000398

Cited by 7 publications

(10 citation statements)

References 58 publications

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“…Last, maintaining agency and self-worth are related to the process of accepting the diagnosis, adapting to changes using coping strategies, and accepting support from others. In this respect, maintaining dignity across the spectrum of both minor and major cognitive disorders, and supporting the narrative self-emerge as essential ingredients of successful aging in the course of cognitive decline [27,33].…”

Section: Implications Of Cognitive Impairment On the Elderly Personmentioning

confidence: 99%

Improving Dignity of Care in Community-Dwelling Elderly Patients with Cognitive Decline and Their Caregivers. The Role of Dignity Therapy

Ounalli

Mamo

Testoni

et al. 2020

Behavioral Sciences

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Demographic changes have placed age-related mental health disorders at the forefront of public health challenges over the next three decades worldwide. Within the context of cognitive impairment and neurocognitive disorders among elderly people, the fragmentation of the self is associated with existential suffering, loss of meaning and dignity for the patient, as well as with a significant burden for the caregiver. Psychosocial interventions are part of a person-centered approach to cognitive impairment (including early stage dementia and dementia). Dignity therapy (DT) is a therapeutic intervention that has been shown to be effective in reducing existential distress, mood, and anxiety symptoms and improving dignity in persons with cancer and other terminal conditions in palliative care settings. The aims of this paper were: (i) To briefly summarize key issues and challenges related to care in gerontology considering specifically frail elderly/elderly with cognitive decline and their caregivers; and (ii) to provide a narrative review of the recent knowledge and evidence on DT in the elderly population with cognitive impairment. We searched the electronic data base (CINAHL, SCOPUS, PSycInfo, and PubMed studies) for studies regarding the application of DT in the elderly. Additionally, given the caregiver’s role as a custodian of diachronic unity of the cared-for and the need to help caregivers to cope with their own existential distress and anticipatory grief, we also propose a DT-dyadic approach addressing the needs of the family as a whole.

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Section: Implications Of Cognitive Impairment On the Elderly Personmentioning

confidence: 99%

Improving Dignity of Care in Community-Dwelling Elderly Patients with Cognitive Decline and Their Caregivers. The Role of Dignity Therapy

Ounalli

Mamo

Testoni

et al. 2020

Behavioral Sciences

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“…Some of these studies examine the day-to-day experiences of participants whose lives are affected by receiving care. They focus on the topics of dignity [José 2016;Lloyd et al 2016] and autonomy in later life [Pirhonen et al . 2015].…”

Section: The Meanings Of the Body During The Transition Into Old Agementioning

confidence: 99%

“…2015]. An ethnographic study by José [2016] detected five modes of maintaining dignity that older adults use in the context of social care -such as sheltering in personal space, disconnecting from life, or keeping going. The behavioural pattern of 'keeping going' refers to continuous activities relating to the care of one's body and continuing to engage in previous activities with assistance from others or from assistive devices.…”

Section: The Meanings Of the Body During The Transition Into Old Agementioning

confidence: 99%

“…The literature on the body within the context of receiving care has largely pointed to ways in which participants preserve their autonomy and dignity [José 2016;Lloyd et al 2016;Pirhonen et al . 2015] or the ways in which participants experience their bodies in relation to the context of care that is provided mostly by health and social workers [Nicholson et al .…”

Section: The Meanings Of the Body During The Transition Into Old Agementioning

confidence: 99%

“…(Jaroslava) Unlike these cases, participants identify with some of the representations of older role models' bodies, such as Queen Elizabeth II or the Pope. They seem to class them as their age peers and idols because they have managed to keep going regardless of their perceived physical limitations [José 2016;Townsend, Godfrey and Denby 2006]. By emphasising the similarities, they are partially normalising the meanings of the body as the organiser of everyday activities, as part of Beata's narrative reveals: 'I always think about the difference between what the British Queen does during the day and what I do.…”

Section: The Body As the Organiser Of Activitiesmentioning

confidence: 99%

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Transitions in Old Age: The Meanings of Body from the Perspective of Older Adults with Acquired Impairment

Sedláková¹,

Kafková²

2021

Czech Sociological Review

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This paper summarises the knowledge about transition from the third age to what is called the fourth age. The study understands ageing as an embodied process and explores the meanings that are attached to the body in the narratives of older persons who have acquired impairment in later life and are receiving care. Because the onset of impairment and infirmity marks a point of transition, the study considers the bodily aspects of the ageing process as key elements, despite this being highly problematic in current social gerontology. The authors call for a complex approach to understanding the meanings of the body in the transitions into old age and drawing on their own study based on three repeated interviews with ten older adults conducted over the course of one year (8 women, mean age = 83.8 years), they explore the meanings that are attached to the body in the context of receiving care. Their analysis of the personal accounts and narratives of everyday activities from the participants in their study revealed that embodiment in action is the main topic through which participants experienced their everydayness. The meanings of embodiment in action are shaped and reconstructed on three dimensions that capture important processes of embodiment in action: the sensing of the body (the Body as an Organiser of Activities), anticipation of the body (the Body as an Uncertain Companion), and the managing of the body (the Body as Work to Be Done). The findings offer insights into the processes of transitions in old age, in which the emotional, social, and behavioural aspects of embodiment in action, rather than age, play the key role. The study further highlights that the meanings of the body are complex, highly relevant, and should not be overlooked within the organisational practice of social and health care.

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Social dignity for marginalized people in public healthcare: an interpretive review and building blocks for a non-ideal theory

Schmidt

Trappenburg

Tonkens

2020

Med Health Care and Philos

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Jacobson (Social Science & Medicine 64:292–302, 2007) finds two distinct meanings of “dignity” in the literature on dignity and health: (1) intrinsic human dignity and (2) social dignity constituted through interactions with caregivers. Especially the latter has been central in empirical health research and warrants further exploration. This article focuses on the social dignity of people marginalized by mental illness, substance abuse and comparable conditions in extramural settings. 35 studies published between 2007 and 2017 have addressed this issue, most of them identifying norms for social dignity: civilized interactions, non-stigmatizing treatment, treatment as unique individuals, being taken seriously, maintaining a positive identity, experiencing independence, relating to others, and participating in daily life. We argue that these norms belong to ideal theory, whereas we agree with Robeyns (Social Theory and Practice 34:341–362, 2008) and others that improving practice is better served by non-ideal theory. Towards this end, we derive from the literature four building blocks for a non-ideal theory of dignity: (1) avoid violations of dignity rather than seeking to promote it; (2) dignity is not a goal to be reached; it requires ongoing effort; (3) promoting dignity is a balancing act; contradictory norms can make it impossible to realize; and (4) dignity can be undermined by organizational and discursive constraints.

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Preserving Dignity in Later Life

Cited by 7 publications

References 58 publications

Improving Dignity of Care in Community-Dwelling Elderly Patients with Cognitive Decline and Their Caregivers. The Role of Dignity Therapy

Improving Dignity of Care in Community-Dwelling Elderly Patients with Cognitive Decline and Their Caregivers. The Role of Dignity Therapy

Transitions in Old Age: The Meanings of Body from the Perspective of Older Adults with Acquired Impairment

Social dignity for marginalized people in public healthcare: an interpretive review and building blocks for a non-ideal theory

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