The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

Hogan, Nancy S.; Schmidt, Lee A.; Coolican, Maggie

doi:10.7182/pit2014595

Cited by 5 publications

(5 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The donation process had a positive influence on personal grief and on the experienced powerlessness of the family members, providing a supportive or comforting feeling. This is in line with common organ donation research, showing grief reactions to improve after donation 17. It also points to the necessity of psychosocial support and follow-up for donors’ family members, even after consent for donation is given 9.…”

Section: Discussionsupporting

confidence: 82%

“…This is in line with common organ donation research, showing grief reactions to improve after donation. 17 It also points to the necessity of psychosocial support and followup for donors' family members, even after consent for donation is given. 9 Being able to say goodbye to a deceased loved one may facilitate the grieving process of the family members.…”

Section: Discussionmentioning

confidence: 99%

“…A semi-structured interview schedule was developed, with the topics for inclusion generated from a review of available literature concerning the bereavement process of donors' family members, alongside discussion between the authors. 17 A search for recent literature was performed through MEDLINE database using PubMed and Medical Subject Headings (MeSH). The following terms were combined and restricted to Major Topic: "tissue and organ procurement" or "tissue donors"; "grief" or "bereavement"; and "family".…”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Facial Allograft Donation: An Interpretative Phenomenological Analysis of the Experiences of Family Members

Verfaillie

Corte

Parys

et al. 2023

Journal of Craniofacial Surgery

View full text Add to dashboard Cite

Facial allograft transplantation can be regarded as a particular and complex type of donation because of its perceptibility and the importance of the face as an identity characteristic. As research on this topic is currently lacking, the objective of this study is to explore the experiences of the family members of the donor in facial allograft donation. In-depth, semi-structured interviews were conducted separately with the donor's family members and analyzed using interpretative phenomenological analysis. Six themes were identified: (1) Contrasting facial donation to that of more commonly donated organs; (2) Consenting to facial donation; (3) Expectations towards the recipient of the facial graft; (4) Expectations and consequences of restoration of the donor's face; (5) Relationship with the medical team during the process; and (6) Media attention. The findings of our study help to better support donor families through the facial donation process and to improve facial transplantation procedures.

show abstract

Section: Discussionsupporting

confidence: 82%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Facial Allograft Donation: An Interpretative Phenomenological Analysis of the Experiences of Family Members

Verfaillie

Corte

Parys

et al. 2023

Journal of Craniofacial Surgery

View full text Add to dashboard Cite

show abstract

“…In contrast, sibling reports of the circumstances surrounding the death revealed that siblings who were present/nearby at the time of death, as well as those who expressed regret nearing their sibling’s EoL, had both greater grief and grief-related growth than those who were not present or did not report regrets. Greater grief and growth are not mutually exclusive and can co-occur or have temporal associations with one another ( Hogan & De Santis, 1996 ; Hogan et al, 2014 ; Hogan & Greenfied, 1991 ). Indeed, grief itself is not necessarily “bad” and can be adaptive/normative if not traumatic in nature ( Revet et al, 2018 ).…”

Section: Discussionmentioning

confidence: 99%

“…However, not all bereaved siblings experience prolonged difficulties, as some report personal (e.g., maturity, new life perspective, academic goals) and family (e.g., improved communication, strengthened bonds) growth following their brother’s or sister’s death ( Akard et al, 2019 ; Foster et al, 2012 ; Rosenberg et al, 2015 ). Indeed, grief and grief-related growth can co-occur ( Hogan & De Santis, 1996 ; Hogan, Schmidt, & Coolican, 2014 ; Hogan & Greenfied, 1991 ). Grief-related growth comprises positive change or personal growth resulting from the grief experience ( Hogan & Schmidt, 2002 ).…”

mentioning

confidence: 99%

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

Kenney

Tutelman

Fisher

et al. 2021

J Clin Psychol Med Settings

View full text Add to dashboard Cite

Objective: To examine the impact of end-of-life (EoL) circumstances on grief and internalizing symptoms among bereaved siblings. Methods: Bereaved families ( N = 88) were recruited from three sites 3–12 months ( M =11.57, SD =3.48) after their child’s death from cancer. One sibling per family aged 8–17 years ( M =12.41, SD =2.64) was randomly selected to participate. Families completed measures of siblings’ grief and internalizing symptoms, as well as a structured interview about circumstances surrounding the death. Results: Mother and sibling reports of EoL circumstances were generally concordant, except there was a discrepancy between mothers and children about whether or not children expected their sibling’s death ( t (75) = 1.52, p =0.018). Mother-reports of sibling internalizing symptoms were above the normative mean ( t (83) = 4.44, p ≤0.001 ( M = 56.01 ± 12.48), with 39% ( n =33) in the borderline/clinical range. Sibling opportunity to say goodbye was associated with greater grief-related growth ( t (79) = −1.95, p = 0.05). Presence at the death and wishing they had done something differently were both associated with greater grief ( t (80) = −2.08, p =0.04 and t (80) = −2.24, p =0.028, respectively) and grief-related growth ( t (80) = −2.01, p =0.048 and t (80) = −2.31, p =0.024, respectively). However, findings were primarily unique to sibling-report, with few mother-reported effects. Conclusions: The adjustment of bereaved siblings may be affected by certain modifiable circumstances surrounding the death of their brother or sister. A proportion of bereaved siblings had elevated internalizing symptoms irrespective of circumstances at EoL. Further work is needed to understand predictors of adjustment among bereaved siblings to provide better support and optimize their outcomes.

show abstract

Development and testing of the Hogan Inventory of Bereavement short form for children and adolescents

et al. 2019

View full text Add to dashboard Cite

The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

Cited by 5 publications

References 17 publications

Facial Allograft Donation: An Interpretative Phenomenological Analysis of the Experiences of Family Members

Facial Allograft Donation: An Interpretative Phenomenological Analysis of the Experiences of Family Members

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

Development and testing of the Hogan Inventory of Bereavement short form for children and adolescents

Contact Info

Product

Resources

About