Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

Abstract

Objective: To examine the impact of end-of-life (EoL) circumstances on grief and internalizing symptoms among bereaved siblings. Methods: Bereaved families ( N = 88) were recruited from three sites 3–12 months ( M =11.57, SD =3.48) after their child’s death from cancer. One sibling per family aged 8–17 years ( M =12.41, SD =2.64) was randomly selected to participate. Families completed measures of siblings’ grief and internalizing symptoms, as well as a structured interview about circumstances surrounding the death. Results: Mother and sibling reports of EoL circumstances were generally concordant, except there was a discrepancy between mothers and children about whether or not children expected their sibling’s death ( t (75) = 1.52, p =0.018). Mother-reports of sibling internalizing symptoms were above the normative mean ( t (83) = 4.44, p ≤0.001 ( M = 56.01 ± 12.48), with 39% ( n =33) in the borderline/clinical range. Sibling opportunity to say goodbye was associated with greater grief-related growth ( t (79) = −1.95, p = 0.05). Presence at the death and wishing they had done something differently were both associated with greater grief ( t (80) = −2.08, p =0.04 and t (80) = −2.24, p =0.028, respectively) and grief-related growth ( t (80) = −2.01, p =0.048 and t (80) = −2.31, p =0.024, respectively). However, findings were primarily unique to sibling-report, with few mother-reported effects. Conclusions: The adjustment of bereaved siblings may be affected by certain modifiable circumstances surrounding the death of their brother or sister. A proportion of bereaved siblings had elevated internalizing symptoms irrespective of circumstances at EoL. Further work is needed to understand predictors of adjustment among bereaved siblings to provide better support and optimize their outcomes.

Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer

“…Despite the perceived trauma of a home death on siblings, research elucidating the true effect of home death on young siblings is sparse and suggests that a home death may be associated with less anxiety and more postgrief growth compared with hospital deaths. 27,28 Further research examining the effects of location of death on young bereaved siblings and provision of expert psychosocial support for siblings of AYAs are essential.…”