Sick leave and disability pension in inflammatory bowel disease: A systematic review

Büsch, Katharina; Silva, Simone A. da; Holton, Michelle; Rabacow, Fabiana Maluf; Khalili, Hamed; Ludvigsson, Jonas F.

doi:10.1016/j.crohns.2014.06.006

Cited by 54 publications

(52 citation statements)

References 62 publications

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“…Persons with IBD are more likely to be unemployed compared to the general population [4]. This could in part be explained by a lack of workplace coping strategies available to those with IBD and a lack of understanding of employers.…”

Section: Discussionmentioning

confidence: 99%

“…Much research has been undertaken on the impact of IBD on work-related outcomes, and most studies report that persons with IBD experience a high burden in work-related outcomes because of an increased frequency of sick leave, disability pension, and unemployment [4-6]. To measure health-related work productivity loss among patients, many studies use the Work Productivity Activity Impairment Questionnaire.…”

Section: Introductionmentioning

confidence: 99%

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Accommodations and Adaptations to Overcome Workplace Disability in Inflammatory Bowel Disease Patients: A Systematic Review

et al. 2018

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Background: Inflammatory bowel diseases (IBD) are chronic, incurable diseases which are often characterized by unpredictable flares and troubling symptoms which can interfere with a patient’s ability to work. Accommodations in the workplace can help persons with IBD to cope with their illness and work effectively. We systematically reviewed all studies regarding workplace disability in IBD patients. Summary: Systematic searches were undertaken on February 5 and March 5, 2018, for the following databases: PubMed, MEDLINE (Ovid), Cochrane Central Register of Controlled Trials, and CINAHL, for studies that addressed workplace needs, accommodations and adaptations using survey tools. Of 430 studies screened, 54 met initial eligibility criteria and then 6 studies were ultimately included, with a total of 7,700 participants. Five studies were quantitative, and 1 study was qualitative. Common themes were the importance of reasonable adjustments and accommodations in the workplace, mixed with the finding that a significant proportion reported that they had some difficulty arranging accommodations. Adaptations most required were access to a toilet or toilet breaks and time to go to medical appointments. Key Messages: People with IBD often need accommodations, but many do not ask or have difficulty arranging it. Better resources are needed to inform people with IBD about the possibilities for workplace accommodations and practical strategies to request them.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Accommodations and Adaptations to Overcome Workplace Disability in Inflammatory Bowel Disease Patients: A Systematic Review

et al. 2018

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“…Treatment regimens requiring multiple daily dosing can interfere with patients' daily life, negatively affecting adherence to therapy and leading to poorer long-term outcomes in UC [24]. Biologics have the potential to improve HRQoL [25].With regard to the workplace, UC is associated with increases of up to 88% in absenteeism, 69% for sick leave, 66% for reduced capacity, 50% for unemployment and 19% for disability pension -with the risk for receiving a disability pension highest in the 18-39-year age group [26,27]. Moreover, many patients undergoing colectomy persistently have work disability after the surgery, possibly due to long-term postoperative complications [27].…”

mentioning

confidence: 99%

“…Moreover, many patients undergoing colectomy persistently have work disability after the surgery, possibly due to long-term postoperative complications [27]. On the other hand, biologic agents have shown positive effects on improving absenteeism and presenteeism at work [26]. In a recent meta-analysis of randomised trials data, the TNF inhibitors infliximab and adalimumab were more effective than placebo in reducing the rate of UCrelated hospitalisation, whereas treatment with infliximab (but not adalimumab or golimumab) was associated with a reduced rate of colectomy at 54 weeks [28].…”

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confidence: 99%

Unmet Medical Needs in Ulcerative Colitis: An Expert Group Consensus

Danese

Allez

Bodegraven

et al. 2019

Dig Dis

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Background: The authors aimed to conduct an extensive literature review and consensus meeting to identify unmet needs in ulcerative colitis (UC) and ways to overcome them. UC is a relapsing and remitting inflammatory bowel disease with varied, and changing, incidence rates worldwide. UC has an unpredictable disease course and is associated with a high health economic burden. During 2016 and 2017, a panel of experts was convened to identify, discuss and address areas of unmet need in UC. Methods: PubMed and Cochrane Library databases were searched for relevant articles describing studies performed in patients with UC. These findings were used to generate a set of statements relating to unmet needs in UC. Consensus on these statements was then sought from a panel of 9 expert gastroenterologists using a modified Delphi review process that consisted of anonymous surveys followed by live meetings. Results: In 2 literature reviews, over 5,000 unique records were identified and a total of 138 articles were fully reviewed. These were used to consider 26 areas of unmet need, which were explored in 2 face-to-face meetings, in which the statements were debated and amended, resulting in consensus on 30 final statements. The unmet needs identified were categorised into 7 areas: impact of UC on patients’ daily life; importance of early diagnosis and treatment; drawbacks of existing treatments; urgent need for new treatments; and disease-, practice- or patient-focused unmet needs. Conclusions: These expert group meetings found a number of areas of unmet needs in UC, which is an important first step in tackling them in the future. Future research and development should be focused in these areas for the management of patients with UC.

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“…Almost the same number of people said that IBD had hindered them in their personal life and relationships (51). One consequence of IBD is a reduced ability to work or study (54,55). A tenyear follow-up study showed that an increased risk for disability pension was associated with being diagnosed at a young age (under 30 years of age at the time of diagnosis), steroid treatment one year after diagnosis, colectomy during the first year and more than two relapses during the first year (56).…”

Section: Impact On Life Situationmentioning

confidence: 99%

Life situation among persons living with inflammatory bowel disease.

Lesnovska¹

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to describe the knowledge need, life situation and perception of HC among persons living with IBD, in order to develop a questionnaire to evaluate the quality of HC. This thesis is based on three studies that are presented in four papers. Qualitative methods were used to describe aspects of life situation in relation to the disease, whereas quantitative method was used to develop a questionnaire measuring quality of care. Study I and II have an inductive qualitative design. In study I, qualitative interviews with 30 people were performed to describe the knowledge need and experience of critical incidents in daily life while living with IBD. The interviews in study I were analyzed using content analysis (results presented in Paper I) and critical incident technique (results presented in Paper II). In study II, the perceptions of HC among persons living with IBD was explored in five focus group interviews and two individual interviews, in total n=26. Study III aimed to develop and evaluate a questionnaire, measuring quality of care among persons with IBD, including 318 persons with IBD and 8 professionals. The knowledge need among persons with IBD focused on managing symptoms and course of the disease and learning to assimilate the information in order to manage everyday life. Losing bowel control was of great concern for most of the informants in the study. Many of the informants said that “the bowel ruled their life” and that it influenced them to a great extent in their daily lives. The perception of HC among persons with IBD meant being met with respect and mutual trust, receiving information at the right time, shared decision-making, competence and communication, access to care, accommodation, continuity of care and the pros and cons of specialized care. The quality of care questionnaire QoC-IBD was constructed in five dimensions, building on the results from Study I and II. The dimensions were trust and respect, decision-making, information, continuity of care and access to care consisting of 21 questions in total. QoC-IBD is a short, self-administrated questionnaire that measures experiences of healthcare among persons with IBD with promising validity and reliability. To improve quality of care, HC is recommended to consider individual care needs and take the person’s daily life and social context into account. The QoC-IBD questionnaire measures the subjective experience of quality of care. Further testing in clinical practice...

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Sick leave and disability pension in inflammatory bowel disease: A systematic review

Cited by 54 publications

References 62 publications

Accommodations and Adaptations to Overcome Workplace Disability in Inflammatory Bowel Disease Patients: A Systematic Review

Accommodations and Adaptations to Overcome Workplace Disability in Inflammatory Bowel Disease Patients: A Systematic Review

Unmet Medical Needs in Ulcerative Colitis: An Expert Group Consensus

Life situation among persons living with inflammatory bowel disease.

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