A multicentre postal survey investigating the contribution of illness perceptions, coping and optimism to quality of life and mood in adults with muscle disease

Graham, Christopher D.; Weinman, John; Sadjadi, Reza; Chalder, Trudie; Petty, Richard; Hanna, Michael G.; Turner, Chris; Parton, Matt; Maddison, Paul; Radunović, Aleksandar; Longman, Cheryl; Robb, Yvonne; Bushby, Kate; Hilton‐Jones, David; Rose, Michael R.

doi:10.1177/0269215513511340

Cited by 37 publications

(40 citation statements)

References 33 publications

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“…As in previous studies (Graham et al, 2014;Rose et al, 2012;Sadjadi et al, 2010), in cross-sectional analyses illness perceptions explained large proportions of variance.…”

Section: Discussionsupporting

confidence: 78%

“…Thus, illness perceptions were included in the analysis; these are beliefs about the time-course of the health threat, its consequences and if it can be cured or controlled, amongst a range of other beliefs (Petrie & Weinman, 2012). Crosssectional studies demonstrate that they explain between 5% and 37% of the variance in quality of life, and 25% of the variance in mood in this context (Graham et al, 2014;Sadjadi, Rose, & Group, 2010). Therefore, we investigated the cross-sectional and prospective influence of PF (experiential avoidance, cognitive fusion and valued living) on life satisfaction and mood over the effects of disability level, and illness perceptions.…”

Section: The Present Studymentioning

confidence: 99%

“…The demographic composition was very similar (age, years with MD, proportion of different MDs) to an earlier sample drawn from UK National Health Service clinics (Graham et al, 2014). Nonetheless, the exclusion criteria, which were used to help minimize the risk of someone without capacity to consent participating (e.g.…”

Section: Limitations and Suggestions For Future Researchmentioning

confidence: 99%

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The influence of psychological flexibility on life satisfaction and mood in muscle disorders.

Graham¹,

Gouick²,

Ferreira³

et al. 2016

Rehabilitation Psychology

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Impact and Implications-Psychological interventions offer a potential way to improve outcomes in MDs, which are progressive and mostly without disease modifying treatment. Yet, a dearth of a research using longitudinal designs means that we are unsure which psychological variables represent viable treatment targets in this context.-In line with the theoretical assumptions implicit in Acceptance and Commitment Therapy (ACT), this study suggests that psychological flexibility is a distinct process, which influences life satisfaction and anxiety in muscle disorders. Results: A sample of 137 people with a range of muscle disorders participated. In crosssectional analyses, psychological flexibility explained significant unique variance in addition to illness perceptions ( R 2 = 0.17-0.34, p = <.001). In prospective analyses, psychological flexibility alone was predictive of change in life satisfaction ( R 2 = 0.04, p = .01) and anxiety ( R 2 = 0.03 p = .04) over four months. No independent variables were predictive of change in depression over four months, and disability level had no significant influence on outcomes.Conclusions: Psychological flexibility influences important outcomes in muscle disorders.Experimental studies are required to establish if increased psychological flexibility leads to improved outcomes.

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“…As in previous studies (Graham et al, 2014;Rose et al, 2012;Sadjadi et al, 2010), in cross-sectional analyses illness perceptions explained large proportions of variance.…”

Section: Discussionsupporting

confidence: 78%

Section: The Present Studymentioning

confidence: 99%

Section: Limitations and Suggestions For Future Researchmentioning

confidence: 99%

See 1 more Smart Citation

The influence of psychological flexibility on life satisfaction and mood in muscle disorders.

Graham¹,

Gouick²,

Ferreira³

et al. 2016

Rehabilitation Psychology

View full text Add to dashboard Cite

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“…However, there was a significant difference between non-dyadic patient and surrogate sample means on the MOS-HIV question, “Is the patient somewhat ill?”. This finding reflects results from previous studies, which found patients responded more positively when appraising their QOL [4, 7, 9, 31, 32]. It is interesting that patients were significantly more likely to disagree to the MOS-HIV question about illness perception.…”

Section: Discussionsupporting

confidence: 87%

Quality of life of persons living with HIV and congruence with surrogate decision-makers

et al. 2018

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QOL discrepancies are said to arise from healthy surrogates overestimating the effects of chronic illness. In this novel assessment, many surrogates had a shared HIV diagnosis, without increased agreement. These findings highlight the challenge of accurately assessing patient QOL by surrogates, even when there is a shared HIV diagnosis. Improved communication is needed between patients and surrogates about the patients' representation of illness. National Clinical Trial Number: NCT01775436.

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“…Therefore, the researchers have limited knowledge on which psychological processes should be targeted by an intervention (Graham et al, 2014).…”

Section: Resultsmentioning

confidence: 99%

From Diagnosis to Treatment of Muscular Dystrophy: Psychology Meets Medicine

Ismail¹,

Othman

2015

IJPS

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This paper will briefly discuss the condition of muscular dystrophy disease in Malaysia and will explore the potential of psychological approach in managing the muscular dystrophy patients in Malaysia. Muscular dystrophy is a hereditary and progressive degenerative disorder affecting skeletal muscles, and also often other organ systems. This term includes many conditions associated to the muscle wasting and weakness where all are still genetic but having different types due to different genes and differ in severity. It is estimated there are around 43 newborns are affected by muscular dystrophy each year in Malaysia. The real burden of muscular dystrophy in Malaysia is difficult to estimate, since the epidemiological data for each of muscular dystrophies and even for muscular dystrophies in collective are not available. There are not many researches focusing on muscular dystrophy in Malaysia. The few available researches related to muscular dystrophy in Malaysia are mostly revolving around the medical and genetic science aspects of it, not in the psychology and social sides of the disease.

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A multicentre postal survey investigating the contribution of illness perceptions, coping and optimism to quality of life and mood in adults with muscle disease

Cited by 37 publications

References 33 publications

The influence of psychological flexibility on life satisfaction and mood in muscle disorders.

The influence of psychological flexibility on life satisfaction and mood in muscle disorders.

Quality of life of persons living with HIV and congruence with surrogate decision-makers

From Diagnosis to Treatment of Muscular Dystrophy: Psychology Meets Medicine

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