Mothers of experiences in diabetic child

Cruz, Déa Sílvia Moura da; Collet, Neusa; Andrade, Edineide Maria Costa de; Nóbrega, Vanessa Medeiros da; Nóbrega, Maria Míriam Lima da

doi:10.5935/1414-8145.20170002

Cited by 11 publications

(9 citation statements)

References 15 publications

(17 reference statements)

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“…The most second important sociodemographic factors affecting total knowledge scores among the mothers of the studied diabetic children was child age, may be due increase the mother's experience in the care of diabetic children with time and increase their awareness of care and the factors that are involved in it. [ 29 ]…”

Section: Discussionmentioning

confidence: 99%

Effects of Mothers' Knowledge and Coping Strategies on the Glycemic Control of Their Diabetic Children in Egypt

et al. 2018

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Background:This study aimed to examine the relationship between mothers’ knowledge related to treatment management of type 1 diabetes (T1D), with perceptions of coping with diabetes-related stress and to examine the relationship between children's metabolic control and maternal coping. A cross-sectional study was done among ninety-two mothers of T1D children.Methods:Data were collected using a structured questionnaire, Ways of coping questionnaire (WCQ), and Diabetes Knowledge questionnaire-24 (DKQ-24).Results:The most important predictors of the total knowledge scores among mothers were father education (P < 0.0001), followed by child age and sex (P < 0.0001), while the most important coping scales affected by total knowledge scores was accepting responsibility (P = 0.01). There were positive correlation between HBA1C and escape-avoidance and positive reappraisal coping scales (r = 0.24, P = 0.02 and r = 0.23, P = 0.02, respectively). Blood glucose level was the most important clinical characteristics affecting the use of seeking social support coping scale among mothers.Conclusions:Parents with more knowledge of diabetes and with better education were able to cope more effective and maintain a better glycemic control of their diabetic children.

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Section: Discussionmentioning

confidence: 99%

Effects of Mothers' Knowledge and Coping Strategies on the Glycemic Control of Their Diabetic Children in Egypt

et al. 2018

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“…Most studies describing family or parental experiences of caring for a child with T1DM were conducted in Western settings, including the United Kingdom ( Marshall et al., 2009 ; Rankin et al., 2014 ), United States ( Rearick, Sullivan-Bolyai, Bova, & Knafl, 2011 ; Rechenberg, Grey, & Sadler, 2017 ; Smaldone & Ritholz, 2011 ; Whittemore, Jaser, Chao, Jang, & Grey, 2012 ), and Australia ( Thorsteinsson, Loi, & Rayner, 2017 ). In some countries, a young child’s mother becomes the primary person responsible for disease management until the child develops the maturity and capacity to self-manage ( da Cruz, Collet, de Anrade, da Nobrega, & da Nobreg, 2017 ; Kobos & Imelia, 2015 ). However, studies focused specifically on mothers’ perceptions, experiences, and the impact of having a child diagnosed with T1DM are limited ( Abolhassani, Babaee, & Eghbali, 2018 ; Khandan, Abazari, Tirgari, & Cheraghi, 2018 ; Rechenberg et al., 2017 ; Thorsteinsson et al., 2017 ).…”

Section: Review Of Literaturementioning

confidence: 99%

Case-Based Insights: Arab Muslim Mothers’ Experiences of Managing a Child Newly Diagnosed With Type 1 Diabetes Mellitus

et al. 2019

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Mothers frequently fulfill the role of primary caregiver for children diagnosed with type 1 diabetes mellitus (T1DM). A T1DM diagnosis has a significant impact on the child and the wider family unit. The objective is to develop understanding of mothers’ experiences caring for children diagnosed with T1DM in the cultural context of the Middle East to facilitate enhanced health service provision and support. This study used a qualitative design. Data were collected in individual semistructured interviews. Participants were mothers of Arabic descent and Muslim belief who had a child diagnosed with T1DM within the last 12 months. All mothers were registered at the health service where this research was conducted and resident in the United Arab Emirates at the time of this study. COREQ guidelines informed reporting of the research and findings. Participating mothers described initial reactions of shock and disbelief, followed by transition to near ordinary and near normal ( 85% normal) family functioning. Family, culture, and faith emerged as critical supports in the whirlwind daily challenge of balancing the multiple demands and competing needs of the newly diagnosed child and the broader family. This study is the first of its kind from countries comprising the Gulf Cooperation Council. The findings provide insight into the challenges and support needs of mothers caring for children newly diagnosed with T1DM in an Arab Muslim context. The findings also provide a basis for enhancing health service support and suggest themes to inform further research.

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“…O surgimento de alguns sintomas e alterações comportamentais constituiu o principal sinal de alerta e motivo para a busca de assistência. Os sentimentos experienciados e evidenciados nos depoimentos corroboram o que tem sido apontado na literatura 6,7,10 . A tristeza referida pelas mães é decorrente da perda do sonho de ter um filho saudável, o qual é substituído por uma vida permeada por preocupações, peregrinações, medos e incertezas.…”

Section: Dos Primeiros Sintomas à Aceitação Do Diagnóstico: Um Procesunclassified

“…A preocupação e a incerteza quanto ao futuro do filho são uma constante, o que se justifica pela possibilidade de complicações físicas, psicológicas e sociais 6 . Esses sentimentos muitas vezes são sobrepostos pela aceitação e conformação com a condição da morbidade do filho: O relato dos cuidadores evidencia a importância de uma educação em saúde que auxilie a reconhecer as gravidades dessa morbidade 12 , e a conscientização da relevância do tratamento e seu controle.…”

Section: A Gente Pensa No Futuro Não Sei Como Vai Ser a Expectativaunclassified

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Cuidado domiciliar à criança e ao adolescente com diabetes mellitus tipo 1 na perspectiva do cuidador [Home care for child and adolescent home care with type 1 diabetes mellitus from the care giver’s perspective] [Atención domiciliaria para niños y adolescentes con diabetes mellitus tipo 1 desde la perspectiva del cuidador]

et al. 2020

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Objetivo: apreender perspectivas e vivências do cuidador familiar sobre os cuidados prestados às crianças e adolescentes com Diabetes Mellitus tipo 1 (DM1) no domicílio. Método: estudo descritivo de abordagem qualitativa, realizada com 11 cuidadores residentes em um município no Noroeste do Paraná. Os dados foram coletados de fevereiro a maio de 2018, mediante entrevistas semiestruturadas, gravadas em áudio, e, então, submetidos à análise de conteúdo, modalidade temática, após aprovação do Comitê Permanente de Ética em Pesquisa com Seres Humanos. Resultados: foram identificadas duas categorias temáticas: “Dos primeiros sintomas à aceitação do diagnóstico: um processo sempre em curso”; e “As dificuldades que permeiam o cuidado no cotidiano”. Conclusão: as vivências relacionadas ao cuidado são permeadas por algumas dificuldades, especialmente em relação à aplicação correta da insulina, às restrições alimentares e à ausência de apoio por parte da escola, no controle alimentar e tratamento medicamentoso.ABSTRACTObjective: to learn family caregivers’ perspectives and experiences regarding home care given to children and adolescents with Type 1 Diabetes Mellitus (DM1). Method: in this qualitative, descriptive study conducted – after approval by the Standing Committee for Ethics in Research with Human Participants – with 11 caregivers residing in a municipality in northwestern Paraná, data were collected between February and May 2018 by recorded, semi-structured interview, and then subjected to thematic content analysis. Results: two thematic categories were identified: “From first symptoms to acceptance of the diagnosis – an ongoing process” and “Difficulties permeating everyday care”. Conclusion: certain difficulties permeated the care-related experiences, especially as regards correct application of insulin, dietary restrictions, and lack of support from schools in dietary control and drug treatment.RESUMENObjetivo: conocer las perspectivas y experiencias de los cuidadores familiares con respecto al cuidado domiciliario de niños y adolescentes con Diabetes Mellitus Tipo 1 (DM1). Método: en este estudio cualitativo y descriptivo realizado - previa aprobación del Comité Permanente de Ética en la Investigación con Participantes Humanos - con 11 cuidadores residentes en un municipio del noroeste de Paraná, los datos fueron recolectados entre febrero y mayo de 2018 mediante entrevista grabada semiestructurada , y luego sometido a análisis de contenido temático. Resultados: se identificaron dos categorías temáticas: “Desde los primeros síntomas hasta la aceptación del diagnóstico - un proceso continuo” y “Dificultades que permean la atención diaria”. Conclusión: ciertas dificultades impregnaron las experiencias asistenciales, especialmente en cuanto a la correcta aplicación de la insulina, las restricciones dietéticas y la falta de apoyo de las escuelas en el control dietético y el tratamiento farmacológico.

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Mothers of experiences in diabetic child

Cited by 11 publications

References 15 publications

Effects of Mothers' Knowledge and Coping Strategies on the Glycemic Control of Their Diabetic Children in Egypt

Effects of Mothers' Knowledge and Coping Strategies on the Glycemic Control of Their Diabetic Children in Egypt

Case-Based Insights: Arab Muslim Mothers’ Experiences of Managing a Child Newly Diagnosed With Type 1 Diabetes Mellitus

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