Care needs of youth living in chronic situation resulting from concomitant disorders

Gift and care during the time lived with the family A dádiva e o cuidado no tempo do vivido em família

“…Such care seems to encompass a universe of attention, zeal, and care towards the one with whom one is affectively involved, culminating in attitudes of concern and accountability to him. 9 The illness experienced by Sara presupposes the need for a myriad of personalized care, 15 because they need to accept their ways of being and reacting; are also integral and uninterrupted care shrouded in a multitude of small actions for the maintenance of your life.…”

“…Approaching this theorization to understand care within families, authors understand that, taken as a gift, it is at the service of their own family ties and, in essence, encompasses the continuity and diversity of shared supports throughout a lifetime. [12][13] In this study we show how the family of elderly people who experience a chronic situation due to Alzheimer's, at an already advanced stage, provides, in the present time, a myriad of care [14][15] which are very effective. Such provision between the spouses and other family entities was and is mediated by bonds of affection built and perpetuated in time.…”

<b> Experiência do adoecer crônico por Alzheimer e a arborescência do cuidado familiar/ The experience of being chronically sick by Alzheimer and the arborescence of family care <b>

“…Este estudo aborda a experiência familiar de cuidado de Sara, idosa em situação crônica por Alzheimer já há sete anos. Nesta experiência, chamou-nos atenção a relação de companheirismo e cuidado com o esposo com quem é casada há 42 anos e também com a família, o que nos incitou a refletir sobre o cuidar que transcende o tempo e sobre a miríade de atos e atitudes cuidativas (6) que arboresce e frutifica o cotidiano em família.…”