Psychometric properties of CVFQ7-BR-toxo to evaluate vision-related quality of life in children with congenital toxoplasmosis in Brazil

Tibúrcio, Jacqueline Domingues; Vasconcelos-Santos, Daniel Vítor; Vasconcelos, Galton Carvalho; Carellos, Ericka Viana Machado; Romanelli, Roberta Maia de Castro; Januário, José Nélio; Andrade, Gláucia Manzan Queiroz de

doi:10.5935/0004-2749.20220007

Cited by 2 publications

(1 citation statement)

References 9 publications

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“…This must not be generalized to other parts of the world. In South America, in contrast, quality of life seems to be much more compromised in less early diagnosed, less well-treated and more severely manifested instances, as is the rule in South America [ 55 , 103 , 104 ].…”

Section: Discussionmentioning

confidence: 99%

Long-Term Outcomes in Children with Congenital Toxoplasmosis—A Systematic Review

et al. 2022

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Even in the absence of manifestations at birth, children with congenital toxoplasmosis (CT) may develop serious long-term sequelae later in life. This systematic review aims to present the current state of knowledge to base an informed decision on how to optimally manage these pregnancies and children. For this, a systematic literature search was performed on 28th July 2022 in PubMed, CENTRAL, ClinicalTrials.gov, Google Scholar and Scopus to identify all prospective and retrospective studies on congenital toxoplasmosis and its long-term outcomes that were evaluated by the authors. We included 31 research papers from several countries. Virulent parasite strains, low socioeconomic status and any delay of treatment seem to contribute to a worse outcome, whereas an early diagnosis of CT as a consequence of prenatal screening may be beneficial. The rate of ocular lesions in treated children increases over time to 30% in European and over 70% in South American children and can be considerably reduced by early treatment in the first year of life. After treatment, new neurological manifestations are not reported, while ocular recurrences are observed in more than 50% of patients, with a mild to moderate impact on quality of life in European cohorts when compared to a significantly reduced quality of life in the more severely affected South American children. Though CT is rare and less severe in Europe when compared with South America, antenatal screening is the only effective way to diagnose and treat affected individuals at the earliest possible time in order to reduce the burden of disease and achieve satisfying outcomes.

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Section: Discussionmentioning

confidence: 99%

Long-Term Outcomes in Children with Congenital Toxoplasmosis—A Systematic Review

et al. 2022

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Instrumentos Psicométricos para Mensuração de Qualidade de Vida em portadores de Doenças Parasitárias: Uma Revisão Integrativa

Fonseca

Júnior²,

Bessa³

et al. 2023

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O estudo visa discutir quais instrumentos existem e estão sendo utilizados para mensurar a qualidade de vida de sujeitos com diagnóstico de doenças parasitárias. Trata-se de uma revisão integrativa realizada por meio das bases de dados PubMed, Embase e BVS, utilizando-se dos descritores “Parasitic Diseases; Quality of Life; Psychometrics; Validation Studies as Topic; Validation Studies; Research; Questionnaire; Surveys and Questionnaires. Foram identificados 1.226 artigos, contudo, após seleção, resultaram em 24 artigos incluídos. 11 instrumentos foram utilizados para avaliar a QV e, entre estes, os instrumentos WHOQOL-bref e SF-36 foram os mais utilizados. Os artigos foram publicados entre os anos de 2011 e 2022 em língua inglesa. O número amostral variou entre 21 até 835 indivíduos de ambos os sexos. Evidenciou-se a intenção dos pesquisadores em desenvolver novos instrumentos específicos e/ou avaliá-los, mesmo compreendendo a importância e capacidade das ferramentas que estão predominando na atualidade.

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Psychometric properties of CVFQ7-BR-toxo to evaluate vision-related quality of life in children with congenital toxoplasmosis in Brazil

Cited by 2 publications

References 9 publications

Long-Term Outcomes in Children with Congenital Toxoplasmosis—A Systematic Review

Long-Term Outcomes in Children with Congenital Toxoplasmosis—A Systematic Review

Instrumentos Psicométricos para Mensuração de Qualidade de Vida em portadores de Doenças Parasitárias: Uma Revisão Integrativa

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