Rosacea-specific quality of life questionnaire: translation, cultural adaptation and validation for Brazilian Portuguese

Abstract

BackgroundBrazil does not have a rosacea-specific quality of life questionnaire.Objectivestranslation into Brazilian Portuguese, development of cultural adaptation, and validation of the RosaQoL disease-specific questionnaire for rosacea of any subtype.Methodsthe recommended procedures for translation, cultural adaptation, and validation of an instrument were followed, and three interviews were conducted: baseline; seven to fourteen days after baseline; and at four to six months. The questionnaire was analyzed (with 95% confidence interval) for reliability by internal consistency (Cronbach's alpha); testretest reproducibility (intraclass correlation coefficient); responsiveness and validity.Resultsterms of the original questionnaire were replaced to guarantee cultural and semantic equivalence. Validity was demonstrated by expressive correlations between the RosaQoL domains and by significance in the Jonckheere-Terpstra test (p≤0.05) between the scores of the RosaQoL domains and the participants' self-perception in relation to the disease. Reliability was acceptable; alpha coefficient ranged from 0.923 to 0.916 in the first and second applications of the RosaQoL, respectively, and the Intraclass Correlation Coefficient (ICC) ranged from 0.671 to 0.863 in the seven- to fourteen-day period. Responsiveness, measured by grouping participants into three categories based on self-perception of rosacea (better, worse or unchanged), was found for the “better” response group (p≤0.05).Study limitationssmall sample; limited variety of screening sources.ConclusionsRosaQoL-BR (Brazil) was demonstrated as a reliable, valid and responsive questionnaire, with limitations, for individuals with any subtype of rosacea.

Rosacea-Specific Quality of Life Scale (RosaQoL): The Study of Adaptation and Validation for Turkish Rosacea Patients

“…In the present study, the purpose was to adapt the RosaQoL Scale, which is a quality of life scale acknowledged globally for Rosacea, into Turkish; and to test its validity and reliability in the follow-up and treatment of Rosacea patients in our country, and also to present it for use in studies related to Rosacea. The RosaQoL Scale is used in studies in many countries all around the world, and its validity and reliability were proven for different languages (9,10).…”

“…The scale consists of 21 questions and 3 sub-dimensions (8). The validity and reliability of the scale were shown for many languages, and was used in studies conducted in many countries worldwide (9,10).…”

Consensus on the therapeutic management of rosacea – Brazilian Society of Dermatology

“… 52 , 222 RosalQol has already been translated and validated for Brazilian Portuguese, and should be considered as a measure of effectiveness in future clinical studies. 223 …”

Quality of life measurement in rosacea. Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa

“…The generic HRQoL instrument the Short Form (SF)-36 was used five times. 40,59,75,84,85 Another generic HRQoL instrument EuroQoL (EQ)-5D 55,67 and its modifications EQ-5D-3L 76 and EQ-5D-visual analogue scale 77 were also used to assess quimp in rosacea. The dermatologyspecific Dermatology Life Quality Index (DLQI) was used for quimp assessment in 45 studies on r osa cea .…”