Poverty, bioethics and research

Ribeiro, Cléa Regina de Oliveira; Zóboli, Elma Lourdes Campos Pavone

doi:10.1590/s0104-11692007000700020

Cited by 4 publications

(4 citation statements)

References 3 publications

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“…Poverty poses an ethical concern for both patients and healthcare providers. For patients, it increases vulnerability and weakens their power to enjoy equal health rights and exercise autonomy (Newdick 2017;Ribeiro and Zoboli 2007). The main ethical question in this context is how healthcare systems should distribute healthcare resources fairly in a way that empowers poor patients and promotes patient autonomy.…”

Section: Poverty As Determinant Of Vulnerabilitymentioning

confidence: 99%

Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward

et al. 2022

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Vulnerability and politics are among the relevant and key topics of discussion in the Ethiopian healthcare context. Attempts by the formal bioethics structure in Ethiopia to deliberate on ethical issues relating to vulnerability and politics in healthcare have been limited, even though the informal analysis of bioethical issues has been present in traditional Ethiopian communities. This is reflected in religion, social values, and local moral underpinnings. Thus, the aim of this paper is to discuss the bioethical implications of vulnerability and politics for healthcare in Ethiopia and to suggest possible ways forward. First, we will briefly introduce what has been done to develop bioethics as a field in Ethiopia and what gaps remain concerning its implementation in healthcare practice. This will give a context for our second and main task – analyzing the healthcare challenges in relation to vulnerability and politics and discussing their bioethical implications. In doing so, and since these two concepts are intrinsically broad, we demarcate their scope by focusing on specific issues such as poverty, gender, health governance, and armed conflicts. Lastly, we provide suggestions for the ways forward.

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Section: Poverty As Determinant Of Vulnerabilitymentioning

confidence: 99%

Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward

et al. 2022

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“…20 For example, Brazilian physicians are deeply concerned with subjects who enroll in clinical trials as a sole means to obtain access to medical care. 21 Cléa Regina de Oliveira Ribeiro and Elma Lourdes Campos Pavone Zoboli address the problems of labeling persons as "vulnerable" and "non-vulnerable" and rightly call for a broader comprehension that examines a research subject's level of susceptibility to risks and ability to cope with the risks that extend beyond traditional factors of age, mental and legal status, and capacities to provide informed consent. The authors explain that vulnerability should be examined "amidst the socio-structural context people live in order to analyze and understand the set of factors and circumstances that determine and condition the vulnerable situation of people, groups, and nations."…”

Section: Defining Vulnerabilitymentioning

confidence: 99%

“…The authors explain that vulnerability should be examined "amidst the socio-structural context people live in order to analyze and understand the set of factors and circumstances that determine and condition the vulnerable situation of people, groups, and nations." 22 However, such an examination may not reveal the various layers of vulnerability as proposed by Luna, and may be too narrowly focused on the concepts of informed consent and harm. In explaining her understanding of vulnerability, Luna writes, Moreover, I think it is possible to speak of different "layers" of vulnerability.…”

Section: Defining Vulnerabilitymentioning

confidence: 99%

Abuses and Apologies: Irresponsible Conduct of Human Subjects Research in Latin America

Aultman¹

2013

J. Law. Med. Ethics

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“…In developing countries, constant shortage of resources and failures in the healthcare system complicated by high rates of poverty and illiteracy often creates a more challenging situation [7-9]. In such settings, it may be argued that integrating patient-care with clinical research may be the most rational method of providing quality patient-care while consenting and recruiting patients.…”

Section: Introductionmentioning

confidence: 99%

Ethical challenges in integrating patient-care with clinical research in a resource-limited setting: perspectives from Papua New Guinea

et al. 2013

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BackgroundIn resource-limited settings where healthcare services are limited and poverty is common, it is difficult to ethically conduct clinical research without providing patient-care. Therefore, integration of patient-care with clinical research appears as an attractive way of conducting research while providing patient-care. In this article, we discuss the ethical implications of such approach with perspectives from Papua New Guinea.DiscussionConsidering the difficulties of providing basic healthcare services in developing countries, it may be argued that integration of clinical research with patient-care is an effective, rational and ethical way of conducting research. However, blending patient-care with clinical research may increase the risk of subordinating patient-care in favour of scientific gains; therapeutic misconception and inappropriate inducement; and the risk of causing health system failures due to limited capacity in developing countries to sustain the level of healthcare services sponsored by the research. Nevertheless, these ethical and administrative implications can be minimised if patient-care takes precedence over research; the input of local ethics committees and institutions are considered; and funding agencies acknowledge their ethical obligation when sponsoring research in resource-limited settings.SummaryAlthough integration of patient-care with clinical research in developing countries appears as an attractive way of conducting research when resources are limited, careful planning and consideration on the ethical implications of such approach must be considered.

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Poverty, bioethics and research

Cited by 4 publications

References 3 publications

Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward

Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward

Abuses and Apologies: Irresponsible Conduct of Human Subjects Research in Latin America

Ethical challenges in integrating patient-care with clinical research in a resource-limited setting: perspectives from Papua New Guinea

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