Interaction experience for families who lives with their child's disease and hospitalization

Abstract

Starting from the research question about the meanings the family attributes to interactions experienced during their child's hospitalization, this study tried to understand the interaction experience of families in pediatric hospitals, as well to identify the interventions considered effective the family's perspective. Symbolic Interactionism was the theoretical framework that supported the data analysis process, and Grounded Theory was the methodological framework. Six families with hospitalized children participated. The results allowed us to identify the phenomena "feeling secure to assume risks" and "feeling insecure to assume risks", representing the symbolic meanings attributed to relational contexts that emerge from interaction between families and health professionals. The identified concepts significantly contribute to achieve a better understanding of the family-centered care approach and provide a way to reflect on interaction and intervention with families in pediatric clinical care practice.

Conforto na perspectiva de familiares de pessoas internadas em Unidade de Terapia Intensiva

“…This is an important action in nursing. 15 Comfort for the family meant being informed regarding the evolution of their relative's clinical condition. The information that was offered clearly and sincerely, allowing the family to understand the true condition of the relative, was considered to be a comfort, helping to minimize questions and, sometimes, the fear of uncertainty regarding the relative's destiny or the lack of control over the situation.…”

Presença da família nas unidades de terapia intensiva pediátrica e neonatal: visão da equipe multidisciplinar

“…6 A idéia de ter que dividir espaço com a família gera medo e ansiedade na equipe, pois esta sabe que é preciso reorganizar a dinâmica do trabalho e ampliar o foco de cuidado, visto que também a família, a exemplo de seus filhos, apresenta a necessidade de ser atendida e cuidada. 10 A abordagem centrada na criança e na família é o modelo mais recente e o menos encontrado nas instituições hospitalares.…”

“…5 Não obstante, os profissionais atuantes nas UTIs necessitam, além do conhecimento científico e da habilidade técnica, buscar conhecimentos para realizar intervenções também junto às famílias das crianças hospitalizadas. A adoção de alguns modelos teóricos para abordagem à família, como o Modelo Calgary de Intervenção, o Modelo de Crenças e o Modelo de Resiliência Familiar, podem subsidiar a atuação dos profissionais junto às famílias, 6 de modo a auxiliá-las no enfrentamento da doença do filho, permitindo-lhes uma melhor compreensão da doença e da hospitalização da criança.…”

Estomas em neonatologia: um resgate da memória materna

“…Although parents indicate the relationship developed with the nurse as being the most significant factor with regard to their experience in the NICU (16) , they are tied to institutional and professional standards that end up inhibiting their experience as parents during the hospitalization of the child (17)(18) . Such rules make them feel excluded from the child's care.…”