Percepção de familiares sobre estressores decorrentes das demandas de cuidado de criança e adolescente dependentes de tecnologias

Abstract

This qualitative study, guided by the System Model Theory was performed with the objective to identify the perceptions that relatives taking care of technology-dependent children and adolescents have regarding the stressors that affect their relationships, as a result from the care they provide to their children. Data were collected through semi-structured interviews, and then subjected to thematic categorical analysis. Nine women of different families participated. Three categories emerged: "I live for him/her now"; "Stressful situations happen all the time"; The man x woman relationship changed. Women identified the occurrence of multidimensional, everyday changes in their family life and, particularly, in their personal life, as they practically took over the whole care alone, abandoned their job, leisure, and "being a woman". It is concluded that in order to guarantee the accomplishments made possible by technological advancement, families warrant support, particularly for the women, through policies that permit them to take care of their child and also achieve personal fulfillment in other dimensions. DESCRIPTORS:Family relations. Stress, psychological. Hospice care. PERCEPÇÃO DE FAMILIARES SOBRE ESTRESSORES DECORRENTES DAS DEMANDAS DE CUIDADO DE CRIANÇA E ADOLESCENTE DEPENDENTES DE TECNOLOGIASRESUMO: Estudo qualitativo, orientado pela Teoria do Modelo de Sistemas de Cuidado que objetivou identificar percepções de familiares sobre estressores nas suas relações, consequentes ao cuidado de crianças/adolescentes dependentes de tecnologia. Os dados foram coletados através de entrevistas semiestruturadas, e submetidos à análise categorial temática. Participaram nove mulheres de diferentes famílias. Três categorias foram evidenciadas: "Minha vida ficou em função dele(a)"; "Sempre estão acontecendo situações que estressam"; A relação homem x mulher mudou. As mulheres identificaram a instalação de mudanças multidimensionais, cotidianas, na vida de suas famílias e principalmente nas suas vidas, uma vez que assumiram quase que integralmente o cuidado, abdicaram do trabalho profissional, do lazer e de "ser mulher". Conclui-se que para garantir as conquistas possibilitadas pelo avanço tecnológico é necessário apoiar a família, especialmente a mulher, com políticas que permitam a ela cuidar da criança/adolescente e realizar-se em outras dimensões. DESCRITORES:Relações familiares. Estresse psicológico. Cuidados paliativos. LA PERCEPCIÓN DE LOS FAMILIARES SOBRE LOS FACTORES DE ESTRÉS COMO CONSECUENCIA DEL CUIDADO A NIÑOS Y ADOLESCENTES DEPENDIENTES DE TECNOLOGÍA RESUMEN:Es un estudio cualitativo, exploratorio y descriptivo, basado en la teoría del modelo de sistemas de cuidado, con el objetivo de identificar la percepción de los familiares sobre los factores de estrés en sus relaciones, como consecuencia del cuidado a niños y adolescentes dependientes de tecnología. Los datos se recolectaron a través de entrevistas semiestructuradas, sometidas al análisis de categorías temáticas. Nueve mujeres de diferentes fami...

The Reality of Children and Adolescents with Meningomyelocele and Their Families, in the City of Belo Horizonte and Its Metropolitan Area, Brazil

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Family organization for the care of children with chronic conditions, discharged from the neonatal intensive care unit

“…The findings of some studies strengthen assertions regarding the insecurity of parents in the household, reaffirming the existence of a sense of fear and insecurity with the child coming the home, which may require support to address this reality. 14 Thus, it can be inferred that the change of environment can also imply relearning the care. This signals the importance, in the period before hospital discharge, of preparing the family for home care, considering its context, which may require, in addition to honest dialogue with the family in order to help them understand the reality, a home visit from a professional.…”

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“…14,[20][21] The fathers usually collaborate less in the child's care, especially as related to technological devices. 14 Although in most cases the mothers assume the care, 22 the constant presence of other family members and, at times, friends and neighbors, for assistance in caring for children with chronic conditions is remarkable, findings also identified in other studies. 16,21 Family members and those people who are closest to the family weave networks of care, in the search for conditions that will meet the children's needs, which increase the potential of family care.…”

Desigualdades de género en trabajos de cuidados familiar y no remunerado: una revisión Iberoamericana

“…Lo anterior puede asociarse a las dificultades técnicas y de conocimiento que presentan las personas que cuidan, que suelen concebirse como ineptitud y cuestionamiento a las propias capacidades, traduciéndose en sentimientos negativos por parte de ésta/e frente a la situación del cuidado (e.g. De Souza et al, 2010;Guerini et al, 2012;Weisbrot et al, 2012, entre otros).…”