Tecnologia cuidativa de ajuda mútua grupal para pessoas com Parkinson e suas famílias

Abstract

RESUMO:Estudo do tipo convergente-assistencial, interinstitucional, que teve o objetivo de adaptar, testar e avaliar a tecnologia assistiva de ajuda mútua grupal para portadores de doença de Parkinson e suas famílias, nos contextos de Jequié-BA e Florianópolis-SC, com foco na inclusão social e formação de rede de relações. Participaram 14 portadores em cada contexto os quais se submeteram ao estudo da efetividade dessa tecnologia e cujo desenvolvimento se deu em dois semestres de 2007. Aplicou-se o Mapa Mínimo de Relações de Sluzki Modificado, que identifica a rede de relações como indicativo de potencial suporte social, no pré e pós-implementação da tecnologia para a aferição das possíveis mudanças como efeito da tecnologia testada. Os resultados apontaram que a tecnologia de ajuda mútua grupal, associada ou não, a outras tecnologias cuidativas, contribui para a manutenção ou alargamento da rede de relações, potencial suporte social favorecedor da inclusão social dos parkinsonianos. DESCRITORES:Tecnologia assistencial. Doença de Parkinson. Grupos de apoio. Idoso. CARING TECHNOLOGY OF THE MUTUAL HELP GROUP FOR PARKINSON'S DISEASE PATIENTS AND THEIR FAMILIES TECNOLOGÍA CUIDADORA DE AYUDA MUTUA GRUPAL PARA LOS PORTADORES DE ENFERMEDAD DE PARKINSON Y SUS FAMILIASRESUMEN: Estudio interinstitucional convergente de atención tuvo el objetivo de adaptar, testar y evaluar la tecnología cuidativa de ayuda mutua grupal para los portadores de Parkinson y sus respectivas familias, en los contextos de Jequié-BA y Florianópolis-SC con un enfoque en la inclusión social y en la formación de una red de relaciones. Participaron 14 portadores en cada contexto, que se submetieron al estudio de la efectividad de dicha tecnología. Esta fué desarrollada em 2 semestres em 2007. Se aplicó el Mapa Mínimo de Relaciones de Sluzki Modificado que identifica las relaciones como indicativo de potencial soporte social, en pre y post-implementación para comparación de los datos para la evaluación de los cambios. Los resultados mostraron que la tecnología de ayuda mutua grupal, asociada o no a otras tecnologías cuidativas, contribuyó para el mantenimiento o ampliación de la red de potencial soporte social y favorecendo la inclusión social de los parkinsonianos. DESCRIPTORES:Tecnología de cuidado. Enfermidad de Parkinson. Grupos de autoayuda. Anciano.

Mutual Help Group for Family Members of Older Adults With Dementia: Unveiling Perspectives

“…17 Similar data were found in a study performed with participants of an MHG for relatives of people with Parkinson's disease, in which the participation in the group was highlighted as a beneficial experience due to the participants helping each other, creating a social support network. 18 This positive experience meets the findings reported by participants from other Mutual Help Groups who reported having become more confident and informed in dealing with their problems and in understanding the treatment from their experiences in the MHG. 17 In relation to the learning experience reported by relatives and professional volunteers, one can perceive a horizontal construction of knowledge, breaking from the hierarchy of biomedical power.…”

“…In addition to these, they emphasized support, self-revelation and learning as therapeutic group factors. 18 These findings are articulated with the results of a study that points to MHG as being a space for its members to reflect on different ideas, develop confidence, and feel able to share their situations. Participants in these MHGs report that there is a relationship of confidence in the group and that they believe that no one will leave and tell/spread what has been shared in the group to others.…”

“…19 Other researchers have also found value in being together due to the care received and the possibility of conversing with people in similar situations. [16][17][18] In analyzing the reports of the members of this research in comparison to other MHGs described in the literature, we highlight many similarities and some differences. Discovering these relations of similarities and differences which are characteristics of a particular cultural context is essential for practicing culturally meaningful, therapeutic, congruent, and safe care.…”

Pesquisa convergente-assistencial: revisão integrativa de produções científicas da enfermagem

“…The points made referent to the relevant contributions and aspects of the utilization of the convergent-assistential methodology include that of being "relevant and appropriate for a work which sought, based on professional practice, to collectively develop the scientificity of 'doing' in nursing". 7:669 Further, the convergent-assistential methodology was considered appropriate, because it made "research associated with care practice" 8:170 possible, and made it possible to mobilize the health professionals for the collective construc-tion of improvements and innovations in the professional field, 9 to accompany the resolution of problems identified and addressed in the research, [10][11] and to improve the dialogic interaction and exchange of information and guidance between the researchers/health professionals and the participants/patients. [12][13][14][15] In all the publications analyzed, the authors did not make comments referent to negative aspects of the methodology, neither did they indicate weaknesses of the option, regarding the suitability for the research problem or the methodological development.…”

Grupo de apoio às pessoas com Doença de Parkinson e seus familiares

“…Tal tecnologia contribui na formulação de instrumentos que facilitam a reinserção social do idoso com a doença. Soma-se ainda a contribuição do aspecto de promoção da cidadania, à medida que no grupo as pessoas são atendidas com respeito, privacidade e sem discriminação por sua condição de cronicidade e de envelhecimento, e têm a garantia de tomar decisões quanto à própria vida, além de sentirem-se mais fortalecidas para reivindicar seus direitos em setores públicos e privados e na sociedade em geral (SENA et. al., 2010).…”