Crianças e jovens autistas: impacto na dinâmica familiar e pessoal de seus pais

Marques, Mário Henriques; Dixe, Maria dos Anjos

doi:10.1590/s0101-60832011000200005

Cited by 25 publications

(20 citation statements)

References 19 publications

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“…This fact may cause negative impacts on the mental health of parents and relatives and decrease the quality of life of the ones who are in charge of taking care of autistic children [14].…”

Section: Don't Want To Face It Againmentioning

confidence: 99%

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Parents’ Perception About Autistic Children: A Descriptive Study

et al. 2016

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Introduction: The infantile autism is a developmental disorder that affects social interaction, language, cognition and quality of life.Objective: Describing the parents' perception about daily care for autistic children. Methods:It was a descriptive and qualitative study performed with parents of autistic children attending a reference health center in a Brazilian city. A semi-structured interview was used to collect data. The participants gave information about their socioeconomic status, daily care activities, hope and social interaction.Results: Based on the speeches of the participants, the following categories were described: negative feelings about the disorder; the (in)dependent autistic children and future perspectives for them; family acceptance of autism, which required appropriated changes in the family environment.

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“…This fact may cause negative impacts on the mental health of parents and relatives and decrease the quality of life of the ones who are in charge of taking care of autistic children [14].…”

Section: Don't Want To Face It Againmentioning

confidence: 99%

“…The implementation of these specific interventions positively impacts the autistic children's development and improves their environmental adaptation and the development of a better quality of life and wellbeing [14].…”

Section: Want Him To Be Independent In the Future I Mean Getting Mmentioning

confidence: 99%

Parents’ Perception About Autistic Children: A Descriptive Study

et al. 2016

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“…As disfunções e sintomas gastrointestinais são queixa frequente destes pacientes, porém o melhor tratamento ainda é um desafio para a equipe médica 14,15 . Estes sintomas além de gerar um impacto na vida social do indivíduo, também gera uma situação de grande estresse para a família, que precisa gerar uma grande mobilização para se adaptar as necessidades do indivíduo 16,17 . 22 .…”

Section: Introductionunclassified

Dieta isenta de glúten e caseína no transtorno do espectro autista: uma revisão sistemática

et al. 2018

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Dieta isenta de glúten e caseína no transtorno do espectro autista: uma revisão sistemáticaGluten-free and casein-free diet in autism spectrum disorder: a systematic review Dieta exenta de gluten y caseína en el trastorno del espectro autista: una revisión sistemática Check for updatesResumo Introdução: A dieta sem glúten e sem caseína é uma prática comum no Transtorno do Espectro Autista, mas sem consenso quanto ao seu benefício clínico ou cognitivo. Objetivo: Revisar sistematicamente a literatura que avalia a isenção de glúten e/ou caseína da dieta para indivíduos com Transtorno do Espectro Autista. Materiais e Métodos: Revisão sistemática de literatura analisando estudos originais disponíveis até dezembro/2016 nas bases de dados: PubMed, SciELO, LILACS e BDENF. Os termos usados para a pesquisa foram: autismo, espectro autista, autismo e sem glúten, autismo e dieta livre de caseína. Para melhor direcionamento da busca de dados foi utilizado o método PICO (população, intervenção, comparação e desfecho). Resultados: No total, foram incluídos 22 artigos, sendo 13 ensaios clínicos randomizados, 4 estudos de caso, 4 transversais e 1 coorte. Do total, 15 encontraram uma associação positiva de intervenção para os resultados avaliados e 7 não encontraram associação significativa. Discussão: Foi encontrada grande variabilidade do tamanho amostral, idade, tempo de intervenção, cegamento, controle ou análise dietética mais apurada. Conclusões: não há evidências científicas para apoiar o uso de uma dieta livre de glúten e caseína em pacientes com Transtorno do Espectro Autista. Há necessidade de novos estudos bem delineados, principalmente ensaios clínicos randomizados bem controlados, cegos, com cálculos amostrais que permitam um poder de observação apropriado, para maior segurança nessa prática. Palavras chave: Transtorno do Espectro Autista; Glútens; Caseínas; Revisão, Nutrição. Abstract Introduction:The gluten-free and casein-free diet is a common practice in Autism Spectrum Disorder, but without consensus regarding their clinical or cognitive benefit. Objective: To review systematically the literature assessing gluten-and/or casein-free diet for individuals with Autism Spectrum Disorder. Materials and Methods: Systematic review of the literature analyzing original studies available until December 2016 in the databases: PubMed, SciELO, LILACS, and BDENF. The terms used for the search were autism, autism spectrum, autism and gluten-free, autism and casein-free diet. To better target the data search, the study used the PICO method (population, intervention, comparison, and outcome). Results: In total, 22 articles were included, of which 13 were randomized clinical trials, four case studies, four cross-sectional studies, and one cohort. Of the total, 15 found a positive intervention association for the results evaluated and seven found no significant association. Discussion: This work found much variability in sample size, age, intervention time, blinding, control, or more precise dietary analysis. Conclusions: No scien...

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“…Research studies have shed light on the reality of families with autistic children by showing how the parents regard work and family, and by bringing to the forefront the important fact that some mothers use their time at work and/or during their children's therapy sessions as a moment to "escape" from their stressful routines (13) . Another study indicates that the greater the number of necessities manifested by the parents to care for their children with autism (for instance, lack of information about medical services and social security that can benefit the child, and need for help to pay for expenses and a caregiver while the parents are absent), the more acute the anxiety, stress, and depression manifested by the parents (14) .…”

Section: Introductionmentioning

confidence: 99%

Performance of preschool children with normal language development in past tense task

Monteiro-Luperi

Befi-Lopes

2014

CoDAS

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The acquisition of tense inflection is a gradual process, and the children appear unaware of the significance of inflectional endings, without recognizing that there is a general rule for deriving one form from another. Purpose: To investigate the ability of past tense in children with normal language development (NLD). Methods: The subjects were 30 children with NLD, aged between 4 and 6 years. To evaluate the use of past tense, we developed a test composed of 30 regular and irregular verbs. The analysis of the answers considered the correct ones, the replacement, overregularization and errors. Results: The 4 years old children with NLD had worse performance than the children of 5 and 6 years in correct answers and total score. There was no difference between the numbers of replacement based on age. By the age of 4, we observed more tense inflection errors. The overregularization errors did not differ between age groups. By the age of 4, children had more regular than irregular verbs correct answers. Conclusion: The 4 years old children with NLD had worse performance than 5 and 6 years old children, because they are still improving the use of verbs in their productions. At this age, we observed tense inflection errors. The 5 and 6 years old children already master the skill of past tense and do not differenciate.

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Crianças e jovens autistas: impacto na dinâmica familiar e pessoal de seus pais

Cited by 25 publications

References 19 publications

Parents’ Perception About Autistic Children: A Descriptive Study

Parents’ Perception About Autistic Children: A Descriptive Study

Dieta isenta de glúten e caseína no transtorno do espectro autista: uma revisão sistemática

Performance of preschool children with normal language development in past tense task

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