Os pacientes invisíveis: transtorno de estresse pós-traumático em pais de pacientes com fibrose cística

Cabizuca, Mariana; Mendlowicz, Mauro V.; Marques‐Portella, Carla; Ragoni, Celina; Coutinho, Evandro Silva Freire; Souza, Wanderson Fernandes de; Mari, Jair de Jesus; Figueira, Ivan

doi:10.1590/s0101-60832010000100002

Cited by 11 publications

(6 citation statements)

References 30 publications

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“…7 The diagnosis of cystic fibrosis significantly affects the routine of the entire family, principally that of the mother-child binomial, as the ill person is usually obliged to live in a routine of hospitalization, painful treatment, and sequelae which impose limitations and require long periods of supervision and care, 8 interruption of routine activities, financial hardship, pain and living with the real possibility of death. 9 Various studies have been undertaken in Paraná addressing cystic fibrosis, either in isolation or in the context of Neonatal Screening. The majority of these address epidemiological [10][11] or nutritional 12 aspects, associated health problems, 13 diagnostic tests 14 and evaluation of the Neonatal Screening Program.…”

Section: Introductionmentioning

confidence: 99%

Difficulties experienced by the mothers of people with cystic fibrosis

Tavares

Carvalho

Pelloso³

2014

Texto contexto - enferm.

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This study aimed to understand difficulties experienced by mothers in life with, and caring for, their children with cystic fibrosis. A descriptive-exploratory study with a qualitative character, its population consisted of 14 women. Data collection involved a semi-structured interview. The statements' analysis allowed the identification of two units of meaning: 'The treatment of cystic fibrosis: facing difficulties'; and 'The child's future: the difficult coexistence with the hope for a cure and a normal development'. Difficulties experienced by the mothers relate to disbelief regarding the diagnosis, the mourning for the loss of the dreamt-of child, acceptance of the inevitable and the struggle for the child's life and comfort. It is important for the health team to present another perspective on the health-illness process regarding chronic illnesses in order to support individuals affected and their families in the most efficacious and complete way.

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Section: Introductionmentioning

confidence: 99%

Difficulties experienced by the mothers of people with cystic fibrosis

Tavares

Carvalho

Pelloso³

2014

Texto contexto - enferm.

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“…É o que demonstra trabalho recente que descreve esse transtorno em pais de crianças diagnosticadas com fibrose cística 36 .…”

Section: Discussionunclassified

Transtorno de estresse pós-traumático e uso de drogas ilícitas em mulheres encarceradas no Rio de Janeiro

Quitete¹,

Paulino²,

Hauck³

et al. 2012

Rev. psiquiatr. clín.

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“…A existência de uma criança com um diagnóstico de deficiência ou AC na família requer um conjunto de cuidados e exigências que, para os pais, habitualmente os seus principais cuidadores, pode repercutir na deterioração do seu bem-estar 3 e qualidade de vida (QdV) 4 , em níveis mais elevados de sobrecarga e vulnerabilidade ao estresse 5 , sentimentos de depressão e tristeza 6 , desvalorização e culpa 7 , bem como sintomas de perturbação de estresse pós-traumático 8 . São também apontadas consequências no domínio do funcionamento físico (e.g., fadiga, exaustão) 9 , das relações sociais (e.g., diminuição das atividades de lazer, alterações nas relações com os familiares) e econômicas (e.g., problemas financeiros) 10 .…”

Section: Introductionunclassified