Qualidade de vida e autismo

Elias, Alexsandra Vieira; Assumpção, Francisco Baptista

doi:10.1590/s0004-282x2006000200022

Cited by 18 publications

(6 citation statements)

References 12 publications

(7 reference statements)

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“…33,34 Although AUQEI is more accessible and easy to understand, making it easier to use and understand in situations of lower educational level, few studies have used AUQEI to evaluate QoL in children with comorbidities. These researches 16,22,[34][35][36][37][38][39][40][41][42][43][44][45] had a similar score range to our study, but most were small studies (n<30), without more detailed statistical analysis and some, compared children with chronic comorbidities to a control group without comorbidities and revealed similar scores. 39,41,43,45 One study had a significant statistical difference (p=0.001, Mann-Whitney's test), showing that children with cerebral palsy had worse QoL than the control group.…”

Section: Dovepresssupporting

confidence: 72%

<p>Self-Report for Assessment of Pain and Quality of Life in Children with Sickle Cell Anemia in a Developing Country</p>

Cunha

Rodrigues

et al. 2020

JPR

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Purpose: The specific assessment of pain and quality of life in children with sickle cell anemia (SCA) is still the subject of few studies and is traditionally evaluated through perception of their parents or guardians. Thus, this study aimed to evaluate pain, its characteristics, and impact on the quality of life (QoL) in children diagnosed with SCA, valuing their self-report. Patients and Methods: This study was conducted on hematology and hemotherapy outpatient clinic in São Luís, Brazil, with children between 7 years and 12 years with SCA, of both genders. The instruments used were Numeric Pain Rating Scale, Faces Pain Scale and Autoquestionnaire Qualité de Vie Enfante Imagé (AUQEI) for the assessment of pain and QoL from the children's self-report. The association between pain intensity and QoL was verified through the Chi-square test and the relationship between pain and the domains of AUQEI was verified through Pearson's correlation, using Stata 10.0 ®. Results: The sample consisted of 104 children with a mean age of 8.97 years, 51.9% were male and 94.2% non-white. Pain was characterized predominately moderate to strong, stabbing (37.5%) and burning (31.7%), with greater frequency in the limbs, and reported simultaneously in two or more locations. The average pain score was 9.26 at the worst time and in the general context was 6.02. As a result of pain, 93.3% reported school absence, averaging 8.57 days of absence; 63.5% had sleep disturbance and 86.5% failed to perform your daily activities. QoL results were negative in 48.08% and 56.25% of these had severe pain. About 74% of children with positive QoL had mild pain. Conclusion: Pain in children with SCA has a negative impact on their QoL based on their point of view, affecting their daily life. These findings highlight the importance of valuing children's self-report of the disease, especially in a restricted resource scenario.

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Section: Dovepresssupporting

confidence: 72%

<p>Self-Report for Assessment of Pain and Quality of Life in Children with Sickle Cell Anemia in a Developing Country</p>

Cunha

Rodrigues

et al. 2020

JPR

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“…Together with an assessment of intellectual level, the social quotient more accurately describes the social abilities and disabilities of individuals. (19)(20)(21)(22) We also noticed that the extension and velocity of the evolutional process were generally more evident in the first six months, especially in the TG. It is during the first semester that the orientations and the direct intervention with the children had the largest impact, thereby allowing the identification of a more expressive therapeutic gain on the part of the mothers.…”

Section: Discussionmentioning

confidence: 54%

Evolução da criança autista a partir da resposta materna ao Autism Behavior Checklist

Tamanaha

Perissinoto

Chiari

2008

Pró-Fono R. Atual. Cient.

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Background: language and speech-language intervention. Aim: to evaluate the development process of autistic children, in a direct and indirect intervention context based on the responses of mothers to the Autism Behavior Checklist. Method: the research sample consisted of 11 mothers of children diagnosed, according to the criteria established by the DSM IVtr (APA, 2002), with autism (six) and with Asperger Syndrome (five) and who were seen at the Investigation Laboratory of Global Developmental Disorders of the Federal University of São Paulo. These children were randomly divided into two groups: Six were receiving both direct and indirect intervention (TG), and five were receiving indirect intervention exclusively (OG). The Autism Behavior Checklist (Krug et al., 1993) was used, adapted to the Portuguese language by Marteleto (2003). This behavior checklist (57 items) allows the detailed description of nonadaptable characteristics regarding the following areas: sensory, use of the body and object, Language, Psycho-social and Relational. The questionnaire was filled in during an interview on three occasions: at the beginning of intervention, after six months and at the end of 12 months. Results: after statistical analysis it was observed that there was a greater development in the total scores and in the areas of language, psycho-social and relational for the TG. This suggests a greater development pattern during the studied period for this group. Conclusion: the mothers of both groups observed behavioral changes. The better scores observed for the TG is probably related to the effectiveness of direct intervention, and not to the lack of attention of parents in the OG in recognizing behavioral changes in their children.

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“…Existem diversos fatores que interferem no desenvolvimento infantil, geralmente as crianças com o desenvolvimento normal aprendem com naturalidade as atividades diárias, entre elas as atividades rotineiras como: lavar as mãos; escovar os dentes; usar o banheiro; alimentar-se; tomar banho; vestir-se; utilização de eletrodomésticos; etc. Já crianças diagnosticadas com TEA, apresentam déficits nas AVD, este fato pode colaborar para as dificuldades no cotidiano, (ELIAS;ASSUMPCAO JR, 2006). Também é fundamental considerar que "às atividades diárias que as pessoas executam enquanto indivíduos, nas famílias e em comunidades para ocupar o tempo e trazer significado e propósito à vida" (AOTA, 2015, p.7).…”

Section: Resultsunclassified

Perfil de crianças com transtorno do espectro autista em relação à independência nas atividades de vida diária

Silva

Rocha

Freitas

2018

RDPEE

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Essa pesquisa aborda a temática de independência em relação às atividades de vida diária em crianças com Transtorno do Espectro do Autismo (TEA). O estudo teve como objetivo elaborar e apresentar o perfil de um grupo de crianças com TEA em relação ao nível de independência nas atividades de vida diária (AVD). Cinco crianças passaram por uma avaliação com o uso de um instrumento específico. A coleta foi realizada numa instituição sem fins lucrativos, localizada numa cidade da região centro-oeste do estado de São Paulo. As atividades foram realizadas de maneira mais espontâneas possíveis para fidedignidade dos dados e foram entrevistados pais e responsáveis de criança com TEA, bem como seus professores, visando àqueles que tenham maior contato com ela em suas AVD. Os resultados indicaram duas crianças independentes, duas semi-independentes e uma dependente e identificaram também diferentes perfis caracterizados pela influência dos sintomas do espectro e do meio em seu desenvolvimento. O aspecto mais afetado foi o vestuário, entendendo que a influência da família é de extrema importância no desenvolvimento deste. Por fim, a intenção além de traçar o perfil das crianças é trazer essa devolutiva para os profissionais, pais e responsáveis, afim, de contribuir para o trabalho colaborativo e futuras intervenções promovendo melhora em ambas as partes.

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Qualidade de vida e autismo

Cited by 18 publications

References 12 publications

<p>Self-Report for Assessment of Pain and Quality of Life in Children with Sickle Cell Anemia in a Developing Country</p>

<p>Self-Report for Assessment of Pain and Quality of Life in Children with Sickle Cell Anemia in a Developing Country</p>

Evolução da criança autista a partir da resposta materna ao Autism Behavior Checklist

Perfil de crianças com transtorno do espectro autista em relação à independência nas atividades de vida diária

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