Family burden in schizophrenia: the influence of age of onset and negative symptoms

Mantovani, Lucas M.; Ferretjans, Rodrigo; Marçal, Iara M.; Oliveira, Amanda Margarida de; Guimarães, Fernanda Carneiro; Salgado, João Vinícius

doi:10.1590/2237-6089-2015-0082

Cited by 24 publications

(14 citation statements)

References 14 publications

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“…Bazı çalışmalar, bakım verenlerin çoğunluğunun hastaların annesi olduğunu ve bu kişilerin bakım yüklerinin daha fazla olduğunu ortaya koymuştur. [6,13,26,39] Diğer bir çalışma, bakım verenlerin hasta ile ilişkisinin bakım yükü düzeyi üzerinde önemli bir etkisi olduğunu göstermiştir. [31] Bakım verenlerin eğitim düzeylerinin bakım yükü puanları üzerinde hiçbir etkisi olmadığı tespit edilmiştir.…”

Section: Hasta Ve Bakım Veren Sosyodemografik öZellikler Formuunclassified

Global Social Functioning ofPatients with Schizophrenia and Care Burden of Caregiving Relatives

Kaya¹

2018

Psi Hem Derg

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Bu çalışma, şizofreni hastalarının genel sosyal işlevsellik düzeylerini ve hastalara bakım veren kişilerin bakım yükünü belirlemeyi amaçlamaktadır. Gereç ve Yöntem: Bu çalışma, Ankara ilindeki hastanelerin psikiyatri polikliniklerinde tedavi gören şizofreni hastalarının primer bakım verenleri ile yürütülmüştür. Çalışmanın evreni, psikiyatri polikliniklerinde ayakta tedavi gören şizofreni hastalarına primer bakım veren 130 kişiden oluşmuştur. Çalışma, Ocak-Temmuz 2013 tarihleri arasında yürütülmüştür. Veriler hasta ve bakım veren sosyodemografik özellikler formu, Zarit Bakıcı Yük Ölçeği ve Şizofreni Hastalarında İşlevsel İyileşme Ölçeği kullanılarak toplanmıştır. Bulgular: Bu çalışma, hem bakım veren yükü (55.80±15.90) hem de hastaların genel sosyal işlevsellik düzeylerinin (49.96±16.34) orta seviyede olduğunu ve bu iki sonuç arasında orta seviyede negatif bir korelasyon olduğunu göstermiştir (r=-0.67, p<0.001). Sonuç: Bu sonuçlar ışığında, psikiyatri hemşirelerinin bakım verenlerin yükünü azaltmak için psikososyal girişimler planlaması ve hastaların genel sosyal işlevsellik düzeylerini geliştirmek üzere psikososyal beceri eğitimlerinin uygulanması önerilmektedir. Anahtar Sözcükler: Bakım verme; bakım veren yükü; genel sosyal işlevsellik; şizofreni.

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Section: Hasta Ve Bakım Veren Sosyodemografik öZellikler Formuunclassified

Global Social Functioning ofPatients with Schizophrenia and Care Burden of Caregiving Relatives

Kaya¹

2018

Psi Hem Derg

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“…Schizophrenia is related to a decrease in the function of fulfilling daily needs and social functions and is even considered harmful to oneself, family, or even the environment. Families, as primary caregivers, are often overwhelmed by the uncontrolled behavior of schizophrenia patients (Mantovani et al, 2016). Research conducted by Sharma et al (2017) stated that 72% of families had high-stress levels, 25% had depression, and 29% had anxiety related to the treatment of schizophrenia patients.…”

Section: Discussionmentioning

confidence: 99%

“…In many cases, families are often overwhelmed in treating schizophrenia patients, such as meeting the daily basic needs of the whole family, medical treatment regimens (including drugs and controls), and monitoring the activities of schizophrenia patients every day. Family burdens are becoming recognized as a relevant concept in schizophrenia because they can have adverse long-term effects (Mantovani et al, 2016). The limitations of family knowledge about schizophrenia, the emergence of a COVID-19 pandemic, low economic factors, and environmental factors will cause families to choose to do 'pasung', either with physical restraint or confinement.…”

Section: Schizophreniamentioning

confidence: 99%

Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review

Ilmy

Noorhamdani

Windarwati

2020

INJEC

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Introduction: The long-term care in schizophrenia patients can cause care burdens, which will relate to the family's decision to do pasung. The perceived burden will be even heavier because of the COVID-19 pandemic. This review aims to identify the family care burden affecting pasung in schizophrenic patients during the COVID-19 pandemic. Methods: This scoping review was conducted by searching four databases, namely ProQuest, Science Direct, and EBSCO, and Google Scholar in the past ten years. This study uses the PRISMA 2009 protocol in filtering articles from the database. Researchers summarize based on the significance value for quantitative research, based on themes’ qualitative research, and discussed factors mentioned which may influence the family. Thus, we obtained 15 articles for final review. Results: The results obtained that the subjective burden felt by the family is a feeling of worry and sadness due to the patient's aggressive behavior and the safety of the patient, family, and environment. The objective burdens most felt by families are financial burdens, both medical costs, transportation to reach mental health services, and the cost of daily living. The COVID-19 pandemic will affect both types of care burdens, thereby affecting the quality of care for families with schizophrenia patients in pasung. Conclusion: Schizophrenia patients are one of the populations that are vulnerable to COVID-19. Nurse plays a role in the ability to overcome the burden of schizophrenia care and improve adaptation to the current pandemic to create optimal mental health in the community.

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“…Studies in India and Chile conducted on caregivers of schizophrenic outpatients at the hospital said that the duration of illness, the degree of psychopathology, level of disability, the frequency of recurrence, positive symptoms and lack of social support were predictors of the onset of the burden of family care 10,11 . In this study duration of pain and frequency of recurrence did not affect the burden of family care but long caring was associated with family care burden.…”

Section: Discussionmentioning

confidence: 99%

Impact of Brief Interactive Psycho-Education Intervention on Caregiver toward Family Care Burden for Schizophrenic Patients at Puskesmas Kasihan II, Bantul

Wahyuning¹,

Sutomo

Marchira

2018

rpcpe

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Background: Schizophrenia is a chronic severe mental disorder which causes a substantial burden of care for family caregivers.Objective: This study aimed to identify the effect of a brief interactive psycho-education intervention on caregivers towards family care burden for schizophrenic patients.Method: This study was a quasi-experimental design with one control group. Data were obtained from a random sample of patients who came to Puskesmas Kasihan II (Community and Primary Health Care Center). The participants in this research were 68 caregivers, who were divided into treatment and control groups. Both groups were administered a pre and post-test with the Burden Assessment Schedule questionnaire early in the first week and in the end or fourth week. The treatment group received a brief interactive psycho-education of schizophrenic patient care over one week for 4 sessions, while the control group received the prescribed essential medicines as usual.Results: This study showed that the average scores of the pre-test for the two groups were not significantly different (p value 0.77), while the averages of the post-tests were significantly different (p value 0.001).Conclusion: It was concluded that a brief interactive psycho-education for caregivers of schizophrenic patients was effective to decrease family care burden.

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Family burden in schizophrenia: the influence of age of onset and negative symptoms

Cited by 24 publications

References 14 publications

Global Social Functioning ofPatients with Schizophrenia and Care Burden of Caregiving Relatives

Global Social Functioning ofPatients with Schizophrenia and Care Burden of Caregiving Relatives

Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review

Impact of Brief Interactive Psycho-Education Intervention on Caregiver toward Family Care Burden for Schizophrenic Patients at Puskesmas Kasihan II, Bantul

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