Melhora na qualidade e completitude da base de dados do Registro de Câncer de Base Populacional do município de São Paulo: uso das técnicas de linkage

Abstract

ABSTRACT:The availability of large computerized databases on health turned the record linkage technique into an alternative for different study designs. This technique provides the creation of more complete databases, at low operational costs. Objective: The aim of this study was to improve the quality of information and data completeness through probabilistic and deterministic record linkage between Population-based Cancer Registry of São Paulo (PBCR-SP) for incident cancer cases, death database and drugs/medical procedures database. Methods: We used the database of the PBCRP-SP composed of 343,306 incident cancer cases in the municipality of São Paulo in the period between 1997 and 2005 with ages raging from under 1 to 106 years old, from both sexes. Three databases were used for linkage, namely Improvement Program for Mortality Information in São Paulo city (PRO-AIM), Authorization of Procedures of High Complexity/Cost of Outpatient Information System from the Unified Health System (APAC-SIA/SUS), and Foundation State System of Data Analysis (Foundation SEADE). Crude incidence (CIR) and mortality rates (CMR) were calculated and overall survival analysis was performed using the Kaplan-Meier method. Results: After record linkage, it was possible to observe gain of 4.3% for the CIR and 25.8% for CMR. The overall survival analysis showed that before record linkage there was an underestimation of the probability of being alive for all variables (p < 0.001). Conclusion: The linkage techniques contributed with the improvement of the quality of RCBP-SP information both on completeness of data, as in defining the vital status of the patient. In addition, the results found in this study reflect the ability of databases when worked jointly, providing subsidies for various types of studies and information for planning policies and strategic actions.

Administrative Data Linkage in Brazil: Potentials for Health Technology Assessment

“…The System of High Complexity Procedures Authorization (APAC-SIA) is a SIA sub-system, established in 1996, constituted by individual registers of high-cost ambulatory procedures and high-cost medicines for specific diseases such as biologics (Brito et al, 2005; Peres et al, 2016; Machado et al, 2016b). Access to high-cost medicines is via SUS’s Specialized Component of Pharmaceutical Service through a form that comprises useful clinical information of the patient (Machado et al, 2016b).…”

“…It also records information on previous treatment and current treatment (surgery, chemotherapy, or radiotherapy), including description and start date, scheme, planned duration, and irradiated areas. APAC-ONCO has been used in cancer studies after linkage with other databases, such as SIM (Machado et al, 2016b; Peres et al, 2016), SIH, the breast cancer screening information system (SISMAMA) (Peres et al, 2016), and the hospital-based cancer registry (RCBP) (Peres et al, 2016).…”

Recovering missing mesothelioma deaths in death certificates using hospital records

“…The SIH‐SUS database is limited to publicly‐funded hospital care, which comprises 58.8% to 76.5% of hospitalizations across the country . The remaining hospital care is mostly under private health insurance schemes, while out‐of‐pocket contribution is negligible . Private health insurance is regulated by the National Agency of Supplementary Care, which keeps its own hospital records not yet available to research.…”

Data Reliability and Coding Completeness of Cancer Registry Information Using Reabstracting Method in the National Cancer Institute: Thailand, 2012 to 2014

“…One group of studies used the existing database, such as cohort study, mortality data, and population census. 13 , 15 , 17 , 18 Another used medical records as the data source and deployed a well-trained audit to reabstract the data. 19 - 21 In this study, we compared registry data with reabstracted data from medical records in a hospital.…”