The treatment of childhood cancer: unveiling the experience of parents

Benedetti, Gabriella Michel dos Santos; Garanhani, Mara Lúcia; Sales, Catarina Aparecida

doi:10.1590/0104-1169.3264.2433

Cited by 19 publications

(14 citation statements)

References 13 publications

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“…They indicate that parents have similar experiences and that both mothers and fathers are close to their child. In this study, the findings reveal that parents are closely connected with their children, and that they suffer both from their own experiences and from seeing their child suffer, as has also been reported in other studies [ 7 , 27 ].…”

Section: Discussionsupporting

confidence: 84%

Children Undergoing Radiotherapy: Swedish Parents’ Experiences and Suggestions for Improvement

et al. 2015

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Approximately 300 children, from 0 to 18 years old, are diagnosed with cancer in Sweden every year. Of these children, 80–90 of them undergo radiotherapy treatment for their cancer. Although radiotherapy is an encounter with advanced technology, few studies have investigated the child’s and the parent’s view of the procedure. As part of an ongoing multicenter study aimed to improve patient preparation and the care environment in pediatric radiotherapy, this article reports the findings from interviews with parents at baseline. The aim of the present study was twofold: to describe parents’ experience when their child undergoes radiotherapy treatment, and to report parents’ suggestions for improvements during radiotherapy for their children. Sixteen mothers and sixteen fathers of children between 2–16 years old with various cancer diagnoses were interviewed. Data were analyzed using content analysis. The findings showed that cancer and treatment turns people’s lives upside down, affecting the entire family. Further, the parents experience the child’s suffering and must cope with intense feelings. Radiotherapy treatment includes preparation by skilled and empathetic staff. The parents gradually find that they can deal with the process; and lastly, parents have suggestions for improvements during the radiotherapy treatment. An overarching theme emerged: that despair gradually turns to a sense of security, with a sustained focus on and close interaction with the child. In conclusion, an extreme burden was experienced around the start of radiotherapy, though parents gradually coped with the process.

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Section: Discussionsupporting

confidence: 84%

Children Undergoing Radiotherapy: Swedish Parents’ Experiences and Suggestions for Improvement

et al. 2015

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“…Parents, experiencing their son's disease, revealed agony before the uncertainty of the future, as if an unwanted presence suddenly knocked on their door (32) . In addition to this distress, relatives of children undergoing cancer treatment reported bad news about their child's situation as "feeling lost" (33) , determining changes in their daily lives overnight.…”

Section: Discussionmentioning

confidence: 99%

From despair to hope: copying of relatives of hospitalized children before bad news report

Cabeça

Melo

2020

Rev. Bras. Enferm.

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Objective: to understand the experiences of relatives of critically ill children before bad news report. Method: a phenomenological study based on Heidegger’s philosophical framework. Data collection was carried out from October 2018 to March 2019, through phenomenological interviews with 15 relatives of children hospitalized in a Pediatric Intensive Care Unit. Results: relatives, in their existentiality, experience the facticity thrown into unpredictable situations, regardless of their choices and are faced with feelings of shock, despair and fear before bad news. After emotional impact, especially regarding the possibility of death, relatives reveal hope as a mechanism for coping with the situation. Final considerations: solidarity and sensitivity by health professionals, especially nurses, are essential in understanding the existential dimension of relatives who experience such an experience, understanding the several facets of their existence and offering them opportunities to project themselves.

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“…Parents attempting to manage the increasing treatment burden of the child and the side effects caused by cancer treatments completely focus on the needs of the sick child generally by deferring their own needs. [3,4] Parents undertake the tasks of learning complicated treatment protocols, following up on chemotherapy and its side effects, maintaining efficient contact with healthcare personnel, and providing support to other members of the family, in addition to the sick child. Parents might also experience problems in their relationships with their sick children, affecting family experiences with other children and spouses.…”

Section: Family Inventory Of Needs-pediatric IImentioning

confidence: 99%

“…Parents might also experience problems in their relationships with their sick children, affecting family experiences with other children and spouses. [4,5] During this process, parents require information, guidance, and support to facilitate decision making. [6] It is important and essential for healthcare professionals to determine, meet, and follow up with the needs of parents in the early period for the purpose of preventing these psychological and psycho-social problems.…”

Section: Family Inventory Of Needs-pediatric IImentioning

confidence: 99%

Validity and Reliability of Turkish Version the Family Inventory of Needs-Pediatric II: An Inventory to Identify Care Needs of Parents of Children with Cancer

Boztepe¹,

Ay²,

Monterosso³

2019

TJ Oncol

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This study was conducted to translate and adapt the Family Inventory of Needs-Pediatric II (FIN-PED II) into the Turkish language and investigate its validity and reliability for parents of children with cancer. METHODS A self-administered questionnaire and Family Inventory of Needs-Pediatric II was completed by 180 parents whose children (0-18 years old) were diagnosed with leukemia, solid tumors, and central nervous system tumors. FIN-PED II was translated into Turkish and then back-translated and then evaluated by three experts for face validity. For construct validity, exploratory factor analysis was applied and for reliability, internal consistency analysis was employed. RESULTS As a result of exploratory factor analysis, it was observed that percentages of explaining total variance were 74.787%, 68.649%, and 72.746% for sections of the importance of care needs, the need fulfilment, and the need for further information, respectively. As a result of Cronbach's Alpha reliability analysis, the reliabilities of the sections on the importance of care needs, need fulfilment, and the need for further information for FIN-PED II was 0.814, 0.906, and 0.915. CONCLUSION Although the Turkish version of FIN-PED II needs further psychometric testing, it is an effective, valid and reliable tool to find out the care needs of parents of children with cancer.

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The treatment of childhood cancer: unveiling the experience of parents

Cited by 19 publications

References 13 publications

Children Undergoing Radiotherapy: Swedish Parents’ Experiences and Suggestions for Improvement

Children Undergoing Radiotherapy: Swedish Parents’ Experiences and Suggestions for Improvement

From despair to hope: copying of relatives of hospitalized children before bad news report

Validity and Reliability of Turkish Version the Family Inventory of Needs-Pediatric II: An Inventory to Identify Care Needs of Parents of Children with Cancer

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