Being cared by a family member: the existential feelings of cancer patients

Wakiuchi, Julia; Salimena, Anna Maria de Oliveira; Sales, Catarina Aparecida

doi:10.1590/0104-07072015003760013

Cited by 8 publications

(14 citation statements)

References 16 publications

(20 reference statements)

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“…In the research, a total of 154 studies were found, publications (9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20)(21)(22)(23)(24)(25)(26) were relevant for this review, since they met the study question and pre-established criteria, as explained in the analysis flowchart ( Figure 1).…”

Section: Resultsmentioning

confidence: 99%

Palliative care in primary health care: scoping review

Justino

Kasper

Santos

et al. 2020

Rev. Latino-Am. Enfermagem

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Objective: to map the available evidence on the main topics investigated in palliative care in primary health care. Method: scoping review type study carried out in five databases, including original articles, based on the descriptors palliative care, palliative care at the end of life, terminal care, terminal state, primary health care and their respective acronyms and synonyms, totaling 18 publications. The extraction of data from primary studies was performed using an instrument produced by the authors and which allowed the construction of the categories presented. Results: 18 publications were included in this review. Among the most studied themes are the difficulties of the teams regarding the continuity of care in the health network; the importance of in-service education by the multidisciplinary team; professional unpreparedness; bioethics; the validation and application of scales for prognosis and care for some pathologies such as cancer and diabetes; among others. Conclusion: it became evident that palliative care in primary health care has been gradually developed, but it is necessary to consider the organization of primary health care and the social policies that support or weaken it, being considered a complex challenge.

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Section: Resultsmentioning

confidence: 99%

Palliative care in primary health care: scoping review

Justino

Kasper

Santos

et al. 2020

Rev. Latino-Am. Enfermagem

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“…People consider that their family is close to them at that moment, but at the same time distant. This causes difficulties in the process as their desire is to get greater support from the family, 14 which facilitates adaptation strategies and reduces uncertainty. In this same sense, social support prevents the uncer-tainty.…”

Section: Discussionmentioning

confidence: 99%

Incertidumbre Frente Al Diagnóstico De Cáncer

Ramírez-Perdomo

Rodríguez-Vélez

et al. 2018

Texto contexto - enferm.

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RESUMEN Objetivo: describir el significado de la experiencia frente al diagnóstico de cáncer en la construcción de la realidad individual y subjetiva desarrollada. Método: estudio cualitativo con enfoque fenomenológico hermenéutico, desarrollado en una unidad de cáncer, en cuatro mujeres y dos hombres, con diferentes diagnósticos de cáncer. Las entrevistas, recogidas entre enero y marzo de 2016, fueron grabadas y para el análisis se empleó el Análisis de la Fenomenología Interpretativa y la Teoría de la Incertidumbre de Mishel. Resultados: la incertidumbre es una vivencia que invade a la persona con enfermedad crónica. Emergen temas acerca del Desconocimiento/conocimiento; El personal de salud y familiar, un soporte para enfrentar el diagnóstico y no desfallecer; Actitud positiva; Sufrimiento ante la adversidad; Aferrándose a Dios y La adversidad del sistema de salud. Conclusión. todos los pacientes vivieron el período de incertidumbre en un principio como peligro, pero, emprendieron esfuerzos de afrontamiento manifestadas por sentimientos de optimismo y actitud positiva, dirigida a reducir la incertidumbre y a controlar la excitación emocional generada por su diagnóstico.

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“…The spouse, the children and grandchildren are among the main caregivers. [20][21] According to authors, 17 in all societies, women take on the main responsibilities of caring for children, the sick and the elderly, in addition to most of the domestic care. It is characteristic the care provided by the woman-centered family nucleus.…”

Section: Methods Introductionmentioning

confidence: 99%

“…It should be emphasized that the identity of this patient is in this environment, in his personal objects, still allowing, within the capacities of each one, to maintain his relationship with friends and neighbors in order not to lose the bond that already existed. [21][22] In the second category, which encompasses family strategies with a greater emphasis on palliative care, in which one perceives an instrumental scenario with more technical elements of this specificity. There is a multiprofessional team that specializes in this type English/Portuguese J Nurs UFPE online., Recife, 12(7):2039-49, July., 2018 2047 of care, which provides assistance, taking into account all aspects of the human being, and prepares the family to play its role both in the hospital and in the home.…”

Section: Methods Introductionmentioning

confidence: 99%

Estratégias de cuidado familiar frente à terminalidade da vida

Deon¹,

Medeiros

Salgado

et al. 2018

Rev enferm UFPE on line.

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RESUMOObjetivo: identificar as principais estratégias de cuidado por familiares que vivenciaram o processo de terminalidade da vida de entes queridos, bem como se os cuidados exercidos nesse processo contemplaram ou não os cuidados paliativos e se abarcaram os aspectos físico, social, emocional e espiritual. Método: revisão integrativa, realizada na SCIELO, BDENF e LILACS, no intervalo de 2011 a 2015, com os descritores “cuidados paliativos” e “família”, fazendo uma análise em categorização dos 17 artigos utilizados para a revisão. Resultados: foram identificadas duas modalidades de enfrentamento familiar. A primeira é representada pelo apoio familiar, crenças espirituais e cuidado no domicílio. A segunda, pelo apoio dos profissionais e prestação de informações pertinentes ao cuidado. Conclusão: as estratégias identificadas não requerem tecnologias avançadas para ser implementadas. Entretanto, é necessária uma imbricação nas esferas intrafamiliares, profissionais e de gestão em saúde. Descritores: Assistência Domiciliar; Cuidados paliativos; Enfermagem de Cuidados Paliativos na Terminalidade da Vida; Família; Tecnologias em Saúde; Estratégias de Enfrentamento.ABSTRACT Objective: to identify the main strategies of caring for family members who experienced the process of terminality the life of loved ones, as well as whether the care exercised in this process contemplated or not palliative care and covered the physical, social, emotional and spiritual aspects. Method: integrative review, performed in SCIELO, BDENF and LILACS, between 2011 and 2015, with the descriptors "palliative care" and "family", making a categorization analysis of the 17 articles used for the review. Results: two types of family coping were identified. The first is represented by family support, spiritual beliefs and care at home. The second, for the support of professionals, and provision of pertinent information to care. Conclusion: the strategies identified do not require advanced technologies to be implemented. However, an imbrication in the intra-familial, professional and health management spheres is necessary. Descriptors: Home care; Palliative Care; Palliative Care Nursing in the Termination of Life; Family; Health Technologies; Coping Strategies.RESUMEN Objetivo: identificar las principales estrategias de cuidado por familiares que vivenciaron el proceso de terminalidad de la vida de seres queridos, así como si los cuidados ejercidos en ese proceso contemplaron o no los cuidados paliativos y se abarcar los aspectos físico, social, emocional y espiritual. Método: revisión integrativa, que se realizó en SCIELO, BDENF y LILACS, en el intervalo de 2011 a 2015, con los descriptores "cuidados paliativos" y "familia", haciendo un análisis en categorización de los 17 artículos utilizados para la revisión. Resultados: se identificaron dos modalidades de enfrentamiento familiar. La primera es representada por el apoyo familiar, creencias espirituales y cuidado en el domicilio. La segunda, por el apoyo de los profesionales y la información pertinente al cuidado. Conclusión: las estrategias identificadas no requieren tecnologías avanzadas para ser implementadas. Sin embargo, es necesaria una imbricación en las esferas intrafamiliares, profesionales y de gestión en salud. Descriptores: Asistencia Domiciliaria; Cuidados Paliativos; Enfermería de Cuidados Paliativos en la Terminal de la Vida; Familia; Tecnologías de la Salud Estrategias de Enfrentamento.

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Being cared by a family member: the existential feelings of cancer patients

Cited by 8 publications

References 16 publications

Palliative care in primary health care: scoping review

Palliative care in primary health care: scoping review

Incertidumbre Frente Al Diagnóstico De Cáncer

Estratégias de cuidado familiar frente à terminalidade da vida

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