Menores com necessidades especiais de saúde e familiares: implicações para a Enfermagem

Sousa, Ana Carla Carvalho de; Gomes, Ilvana Lima Verde

doi:10.1590/0034-7167.2016690112i

Cited by 20 publications

(31 citation statements)

References 7 publications

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“…In our study, 81% of the mothers did not have paid work, and were dedicated exclusively to child care and other activities of home and family. These data are similar to other studies (Figueiredo et al, 2016;Macedo et al, 2015;Rofail et al, 2013;Valença et al, 2012). The lack of a support system for caregivers who need to give up paid work in order to care for the child is one of the health system's weaknesses (Neves, Pietrovski, & Claudino, 2015) and is still a neglected topic.…”

Section: Discussionsupporting

confidence: 88%

“…Children with myelomeningocele were cared for by their mothers, corroborating the literature documenting that mothers continue to be the primary caregivers (Figueiredo et al, 2016;Macedo et al, 2015;Rofail et al, 2013;Valença et al, 2012). In a recent review, mothers were the primary caregivers (up to 100% in samples varying from 15 to 787 caregivers) (Macedo et al, 2015).…”

Section: Discussionsupporting

confidence: 62%

“…However, the family faces the greatest challenges. The psychosocial problems occasioned by a dependent family member may distort the entire family functioning (Figueiredo, Sousa, & Gomes, 2016;Rodríguez-Sánchez et Journal of Pediatric Nursing 36 (2017) al., 2011). Moreover, one family member, usually the mother, takes on most of the responsibility for the child's care.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?

Cavalari

Filho

Caldeira

et al. 2017

Journal of Pediatric Nursing

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Section: Discussionsupporting

confidence: 88%

Section: Discussionsupporting

confidence: 62%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?

Cavalari

Filho

Caldeira

et al. 2017

Journal of Pediatric Nursing

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“…Porém, Figueiredo et al apresentam que a equipe de saúde se mostra despreparada para lidar com a família de crianças com necessidades especiais (24). O estudo de Tavares (25) revelou que devido a deficiência na oferta e gestão dos serviços de saúde acontece a interrupção ou o atraso do acompanhamento das crianças.…”

Section: Discussão E Conclusãounclassified

A Vivência Da Familia No Cuidado Domiciliar À Criança Com Necessidades Especiais De Saúde

et al. 2017

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RESUMOObjetivo: Analisar a vivência da família no cuidado domiciliar às crianças com necessidades especiais de saúde (CRIANES). Material e método: Trata-se de um estudo qualitativo, onde foram analisados 134 prontuários em uma instituição filantrópica em um município de Minas Gerais e realizadas dez entrevistas semi-estruturadas com famílias de CRIANES. A análise dos dados foi realizada por meio da análise de conteúdo proposta por Bardin. Resultados: Os resultados sinalizam a complexidade presente nos cuidados realizados com a CRIANES e foi possível identificar uma sobrecarga do cuidador principal. Conclusão: Evidencia-se a importância da efetivação de políticas públicas para esse grupo infantil e a necessidade de uma consolidação da rede social e de apoio para favorecer o acesso e utilização oportuna aos serviços e para melhorias na qualidade de vida das CRIANES e suas famílias Palavras chave: Doença crônica, saúde da criança, cuidadores, enfermagem familiar. ABSTRACTObjective: The objective of the research is to analyze the family's experience with home care for children with special health needs (CRIANES). Method: This is a qualitative study, which analyzed 134 records at a philanthropic institution in a district of Minas Gerais and ten semi-structured interviews were performed to families of children with special health needs. Data analysis was performed using the content analysis proposed by Bardin. Results: The results indicate the complexity underlying the care provided to children with special

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“…This same understanding was expressed by the authors of a study with 15 family members responsible for children/adolescents with special health care needs, attended in specialties outpatient clinic. Corroborating the results of this research, it was evidenced the need for training of the nursing team, in the perspective of more active participation in health teams, and empowerment of caregivers, guiding them about the home activities, in addition to providing guidance, emotional support and care to users' families (18) .…”

Section: Discussionmentioning

confidence: 54%

Sociodrama: strategy for nurses’ self-reflection on blindness

França¹,

Sousa²,

Ramos³

et al. 2016

Rev Rene

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Objective: to investigate the master students' expressions about feelings, difficulties and challenges arising from participation in sociodrama "as if" they were blind. Methods: qualitative study. Participants were eight Master students in nursing. They used sociodrama, a video recorder and the Content Analysis technique. In implementing the sociodrama, the steps were followed were warm-up, drama, comments and theoretical processing. Results: the following thematic categories emerged: the role as blind person triggering limitation, blocking and fear; the role as blind person triggering a confused notion of one's own body; spontaneity and creativity expressed by Master students. Conclusion: the Master students expressed the feeling of fear to walking in an environment with which they were already familiar, had difficulty in eating because of the confused notion of their own body, and could reflect on the challenge of caring for the blind person, because they realized that they were professionally unprepared to take care of these individuals.Objetivo: investigar as autoexpressões de mestrandas acerca dos sentimentos, dificuldades e desafios decorrentes da participação em sociodrama "como se" fossem cegas. Métodos: estudo qualitativo. Participaram oito mestrandas em enfermagem. Utilizaram-se sociodrama, uma filmadora e Análise de Conteúdo. Na execução do sociodrama, foram seguidas as etapas de aquecimento, dramatização, comentários e processamento teórico. Resultados: emergiram as categorias temáticas: O papel de cega desencadeando limitação, bloqueio e medo; O papel de cega desencadeando uma noção confusa do próprio corpo; A espontaneidade-criatividade manifestada pelas mestrandas. Conclusão: as mestrandas expressaram o sentimento de medo ao se mobilizarem em ambiente com o qual já estavam familiarizadas, tiveram dificuldade para se alimentar devido à noção confusa do próprio corpo, e puderam refletir acerca do desafio que é cuidar da pessoa cega, pois perceberam que, profissionalmente, estavam despreparadas para cuidar destes indivíduos.

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Menores com necessidades especiais de saúde e familiares: implicações para a Enfermagem

Abstract: nursing plays an important role in the lives of families, children and adolescents, through emotional support, guidelines and care inserted in the health care network.

Cited by 20 publications

References 7 publications

Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?

Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?

A Vivência Da Familia No Cuidado Domiciliar À Criança Com Necessidades Especiais De Saúde

Sociodrama: strategy for nurses’ self-reflection on blindness

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