Being caregiver of people with Parkinson's Disease: experienced situations

Abstract

Objective: To understand the experience of caring for a person with Parkinson's Disease. Method: We used the qualitative study and thematic analysis with family caregivers of people with Parkinson's Disease. Results: Three thematic categories were identified, being: Feelings related to Parkinson's Disease; Changes in family daily routines; Caregiver strategies for self-care. Final considerations: Family care has shown the need for health services to provide caregivers support, as they experience situations of overload in care that can contribute to their illness. The findings also allow nurses to see the need for differentiated care for caregivers that, by assisting them with their needs, favor the quality of life of the caregiver, reduce the possibility of illness, allowing a more efficient care to the entity with chronic illness.

Repercussões psíquicas em mães de crianças com Síndrome Congênita do Zika Vírus

“…This feeling can lead to disorders both in the personal and in the family, leading to a wear and unbalance of relationships, as well as damage to the attention given to the sick subject. 17,18 Thus, it is observed that the care routine for a dependent individual is permeated by multiple and ambiguous feelings, love, dedication, anger, sadness, fear and worry. It is worrying that negative feelings, when present for a long period, can cause intense wear on the caregiver's ability to play their role with quality, and it is essential the performance of professionals who value and welcome the wishes presented.…”

Being A Caregiver In Home Care: Choosing Between The Duty And The Moral Desire Of Taking Care

“…An investigation points out that 68% of informal caregivers present the Burnout Syndrome -professional fatigue due to the stress that is experienced. This condition causes severe consequences for the individual's health, emanating from the loss of quality of life and the physical, psychological and social well-being (13) . Besides the work overload of activities performed by the caregiver, there is also the emotional grieve, because the caregivers tend to neglect their own needs on behalf of the patient (14) .…”

As Contribuições Da Fisioterapia Para a Qualidade De Vida Dos Cuidadores De Pacientes Com Doença De Parkinson: Uma Revisão Integrativa

“…Existe um consenso na literatura sobre a importância do papel do cuidador como apoio oferecido pelos serviços de saúde e sociais 9,10,11,12,1,14,15,16,17 . Ainda é possível afirmar que em todos os estudos foi possível perceber na maioria dos cuidadores a presença do estresse e que ainda uma grande maioria privou-se de momentos de lazer sacrificando sua rotina pessoal fragilizando sua saúde física, emocional e social 9,10,11,12,13,14,15,16,17…”