Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Polita, Naiara Barros; Alvarenga, Willyane de Andrade; Leite, Ana Carolina Andrade Biaggi; Araújo, Jeferson Santos; Santos, Louise Bittencourt Paes Abreu dos; Zago, Márcia María Fontão; Montigny, Francine de; Nascimento, Lucila Castanheira

doi:10.1590/0034-7167-2016-0671

Cited by 18 publications

(25 citation statements)

References 29 publications

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“…The family reconfigures to adapt to the needs of their sick children or adolescents, experiencing a range of feelings such as impotence, fear, sadness, revolt, stress, anxiety, and guilt at the same time (Polita et al, ; Silva‐Rodrigues, Pan, Pacciulio Sposito, de Andrade Alvarenga, & Nascimento, ; Smith, Cheater, & Bekker, ). Questioning the purpose of life, valuing family relationships and experiencing feelings such as faith and hope also integrate this experience (Juvakka & Kylmä, ; Polita et al, ; Silva‐Rodrigues et al, ; Smith et al, ). Hope is one of the psychological resources used by these families to deal with chronic illness and the experience of caring for the ill, which brings stress to those involved (Herth, ).…”

Section: Introductionmentioning

confidence: 99%

The experience of hope in families of children and adolescents living with chronic illness: A thematic synthesis of qualitative studies

Leite

García-Vivar

Neris

et al. 2019

Journal of Advanced Nursing

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Aim To synthesize qualitative studies on the experience of hope in families of children and adolescents living with chronic illness. Background Hope is multidimensional, dynamic, and varies according to experienced events, cultural environments and stage of life. The qualitative synthesis of the experience of hope in the paediatric population with chronic conditions is scarce. Design Thematic synthesis of qualitative studies. Data sources A systematic literature search in PubMed, CINAHL, LILACS, PsycINFO, Scopus, and Web of Science was performed supplemented by manual search strategies. Thirty‐one studies from fifteen countries, published between 1981‐2018, were included. Findings Findings were integrated into an analytical theme “FAMILY HOPE: KEEPING THE DAY‐TO‐DAY BALANCE”, encompassing the following five descriptive themes: Uncertainty; Support; Information; Between “dark thoughts” and positive thoughts; and Hoping to go back to normality. Conclusion This thematic synthesis brings a new dimension of hope among families of children and adolescents living with chronic illness. “Family Hope” highlights the influence of the relationships between relatives and the chronically ill child in the balance of hope. It is recommended that health professionals use a family‐focused approach to support these families. Impact Shifting the focus to a family dimension of hope is a promising pursuit that has the potential to inform future nursing practices to support the experiences of families living with chronic illness in the paediatric context. A better understanding of the role and characteristics of family hope will promote the development of more effective interventions for families to adapt to long‐term paediatric conditions.

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Section: Introductionmentioning

confidence: 99%

The experience of hope in families of children and adolescents living with chronic illness: A thematic synthesis of qualitative studies

Leite

García-Vivar

Neris

et al. 2019

Journal of Advanced Nursing

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“…This condition is easily perceived, especially in Latin countries where the mother plays several roles and is expected to develop competence in caring for the sick child (4)(5)(6) . Given these circumstances, it is necessary to value and foster the father's participation in caring for the sick child as a measure towards sharing this care with the mother; a desire expressed by some mothers in this study (26) . Research has revealed the illness of the caregiver on account of the burden of stress, lower satisfaction with life, job loss, break up of relationships, isolation and a decrease in participation, and the loss of purchasing power of the family over time as situations reported by the mothers.…”

Section: Discussionmentioning

confidence: 99%

“…Research has revealed the illness of the caregiver on account of the burden of stress, lower satisfaction with life, job loss, break up of relationships, isolation and a decrease in participation, and the loss of purchasing power of the family over time as situations reported by the mothers. Literature also shows evidence of strategies adopted by the father to reinstate normality in caring for the child with cancer in order to cope with the situation (26)(27)(28) .…”

Section: Discussionmentioning

confidence: 99%

“…This result differs from another study that assessed the consequences of child cancer in family life and which indicated that the social problem for the families was resolved by being together with their child during hospitalization (12) . Nevertheless, it is worth emphasizing that it is normal for the parents of severely ill children to focus on their children's quality of life, defend them and put their child`s needs above their own (26) . Another study also revealed the adverse consequences of the social and personal routine of parents, suggesting the need to support specific psychosocial interventions for each phase of the treatment with the purpose of mitigating damage (28) .…”

Section: Discussionmentioning

confidence: 99%

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My role and responsibility: mothers’ perspectives on overload in caring for children with cancer*

Vieira

Cunha

2020

Rev. esc. enferm. USP

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Objective: To understand the experience of maternal overload in caring for children with cancer from the mother’s perspective. Method: Symbolic Interactionism was adopted as a theoretical framework and the Grounded Theory as methodological framework. The study was conducted in a public hospital, which is reference in pediatric oncology. Data was collected from six mothers through semi-structured interviews in the second semester of 2017. Results: Mothers of children with cancer attributed meaning to the care experience when trying to cope with the emotional, social, physical, financial, family-related, information and moral overload. Maternal overload arises as a dynamic inter-relation process between the many types of overload. Conclusion: The maternal figure is the main person involved in care and experiences overload in caring for their sick child, facing limitations and responsibilities. The research acted as a key element to broaden the analysis and intervention of the family nurse, not only contributing to the theoretical construct related to maternal overload, but also and mainly to the scope of practice in patient care.

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“…However, fathers are under-represented in the wider literature. This circumstance together with the fact that masculinity and care is under-researched [28] and recent findings [29] suggesting an impact of gender roles on fathers' experiences of parenting a child with cancer point to the importance of examining experiences of fathers. In this smaller-scale study, only one statistically significant difference was found between mothers' and fathers' perceived needs of support.…”

Section: Psychologistsmentioning

confidence: 99%

Parents’ needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study

et al. 2019

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Introduction: Parents' needs of support following the loss of a child to cancer and whether these needs are met are not fully known. This study aimed to describe parents' needs, opportunity, and benefit of support from healthcare professionals and significant others from shortly after, up to five years after bereavement. Material and methods: Data were collected at nine months (T5, n ¼ 20), eighteen months (T6, n ¼ 37), and five years after the child's death (T7, n ¼ 38). Parents answered questions via telephone about need, opportunity, and benefit of talking to psychologists, social workers, partners, and friends. Needs were examined in relation to parent and child characteristics, including sex, age, and parent posttraumatic stress symptoms (PTSS). Results: The proportion reporting a need of support from psychologists varied from 56% and 46% at T5 to 20% and 6% at T7 (mothers and fathers, respectively). All mothers and 90% of fathers reported a need of support from social workers at T5. At T7, the corresponding percentages were 30% and 6%. More mothers than fathers reported a need of support from friends at T7 (p ¼ .001). The proportion reporting a need of support from psychologists, social workers, and friends decreased over time (all p .050). Parents reporting a higher level of PTSS were more likely to report a need of support from social workers at T6 (p ¼ .040) and from psychologists (p ¼ .011) and social workers (p ¼ .012) at T7. Opportunities for support from healthcare professionals varied, most reported need of and opportunity for support from significant others. Almost all reported benefit from received support. Conclusion: Bereaved parents need and benefit of support from healthcare professionals and significant others. Results show a need for improved access to psychosocial services, even at five years post bereavement. Large-scale studies are needed to better understand the associations between parent and child characteristics and support needs.

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Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Cited by 18 publications

References 29 publications

The experience of hope in families of children and adolescents living with chronic illness: A thematic synthesis of qualitative studies

The experience of hope in families of children and adolescents living with chronic illness: A thematic synthesis of qualitative studies

My role and responsibility: mothers’ perspectives on overload in caring for children with cancer*

Parents’ needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study

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