Discursos sobre cuidados na alta de crianças com necessidades especiais de saúde

Abstract

How to cite this article: Góes FGB, Cabral IE. Discourses on discharge care for children with special healthcare needs. Rev Bras Enferm [Internet] ABSTRACT Objectives: analyze the discourse of healthcare professionals and families on the continuous and complex care for children with special healthcare needs; understand hospital discharge as a process centered on children demands and family learning. Method: qualitative research conducted between 2013 and 2015 through semi-structured interviews, document analysis and the sensitive creative method; the participants were ten children with special healthcare needs, six professionals and eleven family members from a public pediatric teaching hospital in Rio de Janeiro. The data underwent critical discourse analysis. Results: at discharge, family caregivers should learn innovative care to guarantee the maintenance of their children's lives at home, but preparation is limited. Conclusion: the clinicians and the families pointed out Nurse as the most qualifi ed professional for this preparation, since caring for these children requires nursing care skills. Descriptors: Child Health; Pediatric Nursing; Patient Discharge; Health Services Needs and Demand; Family. RESUMO Objetivos: analisar o discurso de profi ssionais e familiares sobre os cuidados contínuos e complexos de crianças com necessidades especiais de saúde; compreender a alta hospitalar como processo centrado nas demandas das crianças e na aprendizagem da família. Método: pesquisa qualitativa realizada entre 2013 e 2015, por meio de entrevistas semiestruturadas, análise documental e método criativo sensível; participaram dez crianças com necessidades especiais de saúde, seis profi ssionais, onze familiares de hospital público de ensino pediátrico do Rio de Janeiro, cujos dados foram submetidos a análise crítica de discurso. Resultados: na alta, os familiares cuidadores querem aprender o cuidado inovador para assegurar a manutenção da vida de seus fi lhos no domicílio, mas o preparo é pontual. Conclusão: a equipe e a família distinguem o enfermeiro como o profi ssional qualifi cado para esse preparo, uma vez que os cuidados procedimentais são cuidados de enfermagem. Descritores: Saúde da Criança; Enfermagem Pediátrica; Alta do Paciente; Necessidades e Demandas de Serviços de Saúde; Família. RESUMEN Objetivos: analizar el discurso de profesionales y familiares sobre la atención continua y compleja de infantes con necesidades especiales de salud; comprender el alta hospitalaria como proceso enfocado en las demandas del infante y el aprendizaje de la familia. Método: investigación cualitativa realizada entre 2013 y 2015 mediante entrevistas semiestructuradas, análisis documental y método creativo sensible; participaron diez infantes con necesidades especiales de salud, seis profesionales y once familiares en hospital público de enseñanza pediátrica de Rio de Janeiro, cuyos datos fueron sometidos a análisis crítico del discurso. Resultados: en el alta, los familiares cuidadores quieren aprender cuidados innovadores ...

Mães de bebê mal formado: percepção sobre orientações de enfermeiro

“…Descriptores: Anomalías Congénitas; Recién-Nacido; Atención de Enfermería; Enfermería; Sentimiento; Percepción. 1,2,3,4,5,6 Federal University of Paraíba / UFPB. João Pessoa (PB), Brazil.…”

“…4 It is added, however, that these infants tend to have special health needs that entail the maintenance of complex care to be provided after they go home. 5 It is pointed out, due to the limitation presented by the son as a result of the congenital anomaly, to the parents, a social practice based on the need for learning to develop a care permeated by particularities, different from that usually performed, and this situation requires that the mother is committed in learning to perform skills and to manage devices that maintain the life of the child, so that their journey home does not imply a compromise in the quality of care. 5 In the world scenario, it has been observed the importance of preparing the family / caregiver of the child with a congenital malformation in order to ensure continuity of care with the child at home.…”

“…5 It is pointed out, due to the limitation presented by the son as a result of the congenital anomaly, to the parents, a social practice based on the need for learning to develop a care permeated by particularities, different from that usually performed, and this situation requires that the mother is committed in learning to perform skills and to manage devices that maintain the life of the child, so that their journey home does not imply a compromise in the quality of care. 5 In the world scenario, it has been observed the importance of preparing the family / caregiver of the child with a congenital malformation in order to ensure continuity of care with the child at home. To that end, hospital discharge must be planned and combined between the health team and the family, where the latter must be supported by the professionals and encouraged to overcome their limitations in the care of the malformed child.…”

“…It is emphasized that these babies present demands for modified care, requiring dedication by their caregivers to learn a way of caring different from the usual. 5 This relevant study is considered to awaken in the neonatal nurses the perception about the early inclusion of the mother in the care of the malformed child before the possibility of hospital discharge is mentioned.…”

Desafios de familiares no cuidado domiciliar da criança em uso de cânula de traqueostomia

“…No quinto, relativo aos cuidados mistos, as crianças possuem uma ou mais demandas anteriores, excluindo-se a tecnológica. E, o sexto resume as demandas de cuidados clinicamente complexos, possuem todas as anteriores inclusive o manejo de tecnologias para suporte de vida 3,4 . Entre os grupos de crianças com necessidades especiais de saúde, destacam-se neste estudo aquelas com demanda de cuidado tecnológico -em uso de cânula traqueal.…”