Health related quality of life in Turkish polio survivors: impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning

Garip, Yeşim; Eser, Filiz; Bodur, Hatice; Başkan, Bedriye Mermerci; Sivas, Filiz; Yılmaz, Özlem

doi:10.1016/j.rbre.2014.12.006

Cited by 12 publications

(15 citation statements)

References 21 publications

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“…A study reporting nine months of follow up of 21 post-polio syndrome patients was not able to prove significant difference of sleep quality between post-polio syndrome, non-post-polio syndrome and control groups 7 . Among sleep disorders related to PPS, periodic limb movements (PLM) hypopnea and, specially, obstructive sleep apnea (OSA) are the most frequent 5,6,8 .…”

Section: Sleep Disturbancesmentioning

confidence: 90%

Currents issues in cardiorespiratory care of patients with post-polio syndrome

Orsini

Lopes

Guimarães

et al. 2016

Arq. Neuro-Psiquiatr.

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Post-polio syndrome (PPS) is a condition that affects polio survivors years after recovery from an initial acute attack of the poliomyelitis virus. Most often, polio survivors experience a gradual new weakening in muscles that were previously affected by the polio infection. The actual incidence of cardiovascular diseases (CVDs) in individuals suffering from PPS is not known. However, there is a reason to suspect that individuals with PPS might be at increased risk. Method A search for papers was made in the databases Bireme, Scielo and Pubmed with the following keywords: post polio syndrome, cardiorespiratory and rehabilitation in English, French and Spanish languages. Although we targeted only seek current studies on the topic in question, only the relevant (double-blind, randomized-controlled and consensus articles) were considered. Results and Discussion Certain features of PPS such as generalized fatigue, generalized and specific muscle weakness, joint and/or muscle pain may result in physical inactivity deconditioning obesity and dyslipidemia. Respiratory difficulties are common and may result in hypoxemia. Conclusion Only when evaluated and treated promptly, somE patients can obtain the full benefits of the use of respiratory muscles aids as far as quality of life is concerned.

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Section: Sleep Disturbancesmentioning

confidence: 90%

Currents issues in cardiorespiratory care of patients with post-polio syndrome

Orsini

Lopes

Guimarães

et al. 2016

Arq. Neuro-Psiquiatr.

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“…In such cases, it was found that the difficulties experienced in physical functions were more severe, and the patients experienced significant difficulties even in activities such as reaching or sitting. [19][20][21] While 31.7 % of people with chronic low back pain had a limited ability to perform daily activities, 22 50 % of patients with non-oncological pain had a prominent physical influence. 23 Pain has a more detrimental effect on daily activities in patients with chronic pain compared to patients with acute pain.…”

Section: The Effects Of Pain On Physical Function and Daily Life Actimentioning

confidence: 99%

“…However, patients with frequently and severe pain have poor quality of life compared to patients with moderate to less painful conditions, and pain has a greater impact on the physical dimensions of quality of life than on psychological. [19][20][21]…”

Section: The Effects Of Pain On Physical Function and Daily Life Actimentioning

confidence: 99%

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2019

IJFCM

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Quality of Life is a term commonly used as well-being of individuals and societies including life satisfaction and happiness. World Health Organization Quality of Life (WHOQOL) group defines quality of life as "individuals' perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns". 1,2 So this term is not a quantitative measurement assessed by medical techniques or laboratory procedures, but an attribution experienced subjectively by individuals. The main objective is to determine the extent to which people are satisfied with their physical, psychological and social functions and to what extent they are uncomfortable with the presence or absence of features related to these aspects of their lives. The definition of the WHOQOL on the quality of life includes six domains: physical domain, psychological domain, level of independence, social relationships, environment and spirituality beliefs. 1-3 In general, the list of domains that make up the quality of life of WHOQOL is an indication that quality of life is a broad multidimensional concept, and confirms the nature of the quality of life affected by all these domains (Table 1).

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“…Studies have shown that in comparison with the general population, polio survivors frequently report poor health and quality of life (QoL) [ 1 , 21 , 27 , 51 , 64 ]. This finding is especially common for individuals who are living in countries with limited social and infrastructural resources such as Nigeria [ 25 ].…”

Section: Introductionmentioning

confidence: 99%

Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Sulaiman

Aldersey

DePaul

et al. 2020

Health Qual Life Outcomes

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Background To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether these instruments are appropriate for the measurement of quality of life among polio survivors in northwest Nigeria. The purpose of this review is to identify and select a pre-existing instrument that is best suited for the measurement of quality of life among polio survivors in northwest Nigeria. Methods Using the findings of a previous scoping review of the literature and qualitative descriptive study, we screened 11 quality of life instruments that are used in polio literature. We identified and selected the most appropriate instrument, which reflected the perspectives of polio survivors in northwest Nigeria and at the same time exhibited good measurement properties. Results The Quality of Life Index, World Health Organization Quality of Life Brief, and Comprehensive Quality of Life Scale are consistent with the perspectives of polio survivors in northwest Nigeria and have satisfactory measurement properties. Among these instruments, the Quality of Life Index satisfied most of the screening criteria we employed and is suitable for cross-cultural adaptation in northwest Nigeria. Conclusion Most instruments that are employed to evaluate the quality of life of polio survivors were not primarily designed as a measure of quality of life. To select the appropriate instrument, there is a need to consider and reflect the perspectives of the individuals, to improve the validity of the measurement.

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Health related quality of life in Turkish polio survivors: impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning

Abstract: Postpolio-syndrome has a negative impact on quality of life in terms of functional status, severity of pain and energy. The identification, early recognition and rehabilitation of postpolio-syndrome patients may result in an improvement in their quality of life.

Cited by 12 publications

References 21 publications

Currents issues in cardiorespiratory care of patients with post-polio syndrome

Currents issues in cardiorespiratory care of patients with post-polio syndrome

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Selection of a quality of life instrument for polio survivors in Northwest Nigeria

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