Translation and cultural adaptation of the Shame and Stigma Scale (SSS) into Portuguese (Brazil) to evaluate patients with head and neck cancer

Pirola, William Eduardo; Paiva, Bianca Sakamoto Ribeiro; Barroso, Eliane Marçon; Kissane, David W.; Serrano, Claudia Valéria Maseti Pimenta; Paiva, Carlos Eduardo

doi:10.1016/j.bjorl.2016.10.005

Cited by 19 publications

(16 citation statements)

References 17 publications

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“…The psychometric properties were tested to construct a four-factor model (shame of appearance, sense of stigma, regret, and speech/social concerns) with a satisfactory internal validity (Cronbach’s alpha of 0.94) 17. The SSS was also translated and culturally adapted into a Portuguese version in Brazil,18 but the scale has not yet been translated and applied in any Chinese-speaking areas.…”

Section: Introductionmentioning

confidence: 99%

<p>Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer</p>

Tseng

Hung

et al. 2019

CMAR

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PurposeHead and neck cancer (HNC) patients suffer from perceived shame and stigma due to the illness diagnosis, as well as disfigurement following surgery. To measure HNC patients’ perception of shame and stigma, the Shame and Stigma Scale (SSS) was developed and preliminarily validated. In this study, we aimed to translate, adapt, and validate the SSS in Chinese.MethodsThis study consisted of a cross-sectional design with consecutive sampling and consisted of two stages: (1) translation of the SSS into Chinese by two bilingual professionals and (2) examination of the Chinese version of the SSS (C-SSS) for internal consistency, inter-rater reliability, test-retest reliability, construct validity, and concurrent validity. In total, 159 inpatients with HNC (mean age: 56.8 years, 95% males) were enrolled at a medical center in Southern Taiwan.ResultsThe Principal Component Analysis of the C-SSS revealed a five-factor structure: 4 of the 5 factors were replicated in the original SSS, including Shame with Appearance, Regret, Social/Speech Concern, and Sense of Stigma; only factor 4, Self-discrimination, was newly identified in the current study. C-SSS showed acceptable internal validity (Cronbach’s α =0.85), test-retest reliability, inter-rater reliability, and fair concurrent validity with the Taiwanese Depression Questionnaire (TDQ), Hamilton Depression Rating Scale (HAM-D), Hamilton Anxiety Rating Scale (HAM-A), and Explanatory Model Interview Catalogue (EMIC).ConclusionThe findings of this study indicate that C-SSS is a reliable and valid instrument for evaluating HNC patients’ perception of shame and stigma in the Taiwanese population.

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Section: Introductionmentioning

confidence: 99%

<p>Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer</p>

Tseng

Hung

et al. 2019

CMAR

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“…So far only three studies have been conducted on shame and stigma for head and neck cancer. The first study was conducted by Kissane et al authors developed the scale (Kissane et al 2013), the second study was conducted by Pirola et al in which authors translated the scale in Brazil language (Pirola et al 2017), and the third study was conducted by Tseng et al in which authors translated the scale into the Chinese language (Tseng et al 2019).…”

Section: Discussionmentioning

confidence: 99%

“…A high value of scale indicates high shame and stigma in the patients (Kissane et al 2013). Pirola et al translated the shame and stigma scale into Portuguese (Brazil) and evaluated its reliability and validity (Pirola et al 2017). Recently, Tseng et al translated and validated the shame and stigma scale into the Chinese language (Tseng et al 2019).…”

Section: Introductionmentioning

confidence: 99%

A Hybrid Method for the Cross-Cultural Adaptation of Self-Report Measures

Goyal

Bakshi

Panda

et al. 2020

Int J Appl Posit Psychol

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Cross-cultural adaptation of self-reported measures to other languages endeavors to enhance the validity and reliability of the instrument for the local population. Traditionally, qualified academicians or language experts performed the translation task, but nowadays, various online translation tools are available for the same. The present study intends to compare the validity of traditional and online modes of translation of selfreported measures, and to develop a hybrid method by combining the traditional and online methods to achieve an accurate translation cost-effectively. For this purpose, the existing English version of shame and stigma scale was translated into the Hindi language traditionally by language experts, Google translator, and by a hybrid method. The validity of translated versions was tested using the content validity index (CVI). The CVI score was found to be 0.94 for the traditional method, which is significantly higher compared to the online translation method in which the CVI score was 0.42. CVI score in the hybrid method comes to be 0.84. The present study suggests that the online translation method alone is insufficient for the accurate translation of questionnaires and, therefore, it is recommended that hybrid method should be followed for the process of cross-cultural adaptation of self-report measures to impart high accuracy in a cost-effective manner.

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“…These changes can leave patients distressed, with relational difficulties and social isolation, so, all changes resulting from the tumor and treatment can directly impact their quality of life. 1,[8][9][10][11][12] The assessment of the quality of life of patients with head and neck cancer helps in optimizing the therapeutic choice, balancing the patient's needs and gains in the recovery, and, therefore, not based solely on tumor staging and clinical aspects. 11,13,14 Due to the physical and emotional impairment attributed to cancer, many patients need a caregiver, who is usually a family member.…”

Section: Introductionmentioning

confidence: 99%

Quality of Life of the Patient with Head and Neck Cancer Submitted to Radiotherapy and the Overload of Their Caregivers

Delalibera¹,

Carvalho²,

Thesolim³

et al. 2021

Int Arch Otorhinolaryngol

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Introduction Esthetic and functional changes are frequent in patients with head and neck cancer, and they can be caused by both tumor and treatment. Physical and functional impairment often requires the need of a caregiver, who may feel overwhelmed with the tasks of care. Objective This study aims to evaluate the quality of life of patients with head and neck cancer submitted to radiotherapy and the overload of their caregivers. Method This is a quantitative cross-sectional study with 42 patients with head and neck cancer and 17 caregivers evaluated during the radiotherapy treatment. Patients responded to the following questionnaires: Functional Assessment of Cancer Therapy for Head and Neck Cancer (FACT-H&N) and Shame and Stigma Scale (SSS), while the caregivers responded to the Zarit Burden Interview Scale (ZBI) and Palliative Performance Scale (PPS). Results Head and neck cancer patients showed a decline in the quality of life in all FACT-H&N domains, with the domain of additional concerns having the worst outcome. Among the feelings reported by patients, the most important was penitence. Less than half of the patients needed caregivers. It was observed that the greater the degree of commitment of the patient, the greater the degree of overload of the caregiver. Conclusion Therefore, the quality of life of the patient with head and neck cancer is an important aspect to be considered during the therapeutic choice and in the follow-up of the patient, since it has influenced both the patient and his caregiver.

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Translation and cultural adaptation of the Shame and Stigma Scale (SSS) into Portuguese (Brazil) to evaluate patients with head and neck cancer

Abstract: The Portuguese (Brazil) version of the SSP was shown to be adequate to be applied to the population with HNC and, therefore, the psychometric properties of the tool will be evaluated during following steps.

Cited by 19 publications

References 17 publications

<p>Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer</p>

<p>Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer</p>

A Hybrid Method for the Cross-Cultural Adaptation of Self-Report Measures

Quality of Life of the Patient with Head and Neck Cancer Submitted to Radiotherapy and the Overload of Their Caregivers

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