Quality of Life of the Patient with Head and Neck Cancer Submitted to Radiotherapy and the Overload of Their Caregivers

Delalibera, Daniela; Carvalho, Alessandra Cristine Ribeiro; Thesolim, Bruna Luiza; Rezende, Laura Ferreira de

doi:10.1055/s-0040-1718963

Cited by 5 publications

(12 citation statements)

References 21 publications

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“…Consistent with emerging literature, participants expressed engaging in the massive uptake of virtual platforms to access their faith communities (Ribeiro et al, 2020;Rosales, 2021). Access to virtual faith communities is associated with improved mental health by mitigating the impact of isolation (Delalibera et al, 2021)…”

Section: Implications For Public Health Nursesmentioning

confidence: 63%

“…Consistent with emerging literature, participants expressed engaging in the massive uptake of virtual platforms to access their faith communities (Ribeiro et al., 2020; Rosales, 2021). Access to virtual faith communities is associated with improved mental health by mitigating the impact of isolation (Delalibera et al., 2021), therefore strengthening resilience. Nurses should identify existing virtual faith‐based communities, and guide rural survivors toward them to strengthen resilience during COVID‐19.…”

Section: Discussionmentioning

confidence: 99%

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Barriers and facilitators to resilience for rural cancer survivors during COVID‐19

Bernacchi

LeBaron

Porter

et al. 2023

Public Health Nursing

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The purpose of this study was to identify the barriers and facilitators of resilience for rural cancer survivors during COVID‐19. A descriptive qualitative study design was used to achieve the study objected. We recruited six posttreatment cancer survivors, four caregivers of cancer survivors, and one survivor who also identified as a caregiver, all from rural Southwest Virginia. Participants completed 60–90 minute virtual interviews that were recorded, transcribed, and verified in Dedoose qualitative software. Data was analyzed using an inductive and deductive coding strategies, and thematic analysis was used to develop key themes. Four key themes emerged from the data: 1) Religious faith is a primary source of resilience, 2) Spiritual cancer care strengthens resilience, 3) Virtual platforms provide critical connections to faith communities, and 4) Fearful and fatalistic cancer beliefs reduce resilience. The findings provide critical descriptive evidence that faith facilitates resilience for rural cancer survivors, while rural cultural norms of fearful and fatalistic cancer beliefs reduce resilience. In the context of COVID‐19, rural survivors prioritize utilizing virtual support groups to strengthen their resilience. Nurses should incorporate a spiritual assessment into survivorship care, and guide survivors to existing virtual support groups.

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Section: Implications For Public Health Nursesmentioning

confidence: 63%

Section: Discussionmentioning

confidence: 99%

Barriers and facilitators to resilience for rural cancer survivors during COVID‐19

Bernacchi

LeBaron

Porter

et al. 2023

Public Health Nursing

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“…One study by Shaverdian et al considered DR of a deescalation treatment instead of regular treatment, and we excluded this study from the meta-analysis on grounds of clinical heterogeneity. Hence, meta-analyses were performed on 16 articles, using 3 different instruments (eAppendix 2 in Supplement 1): study-specific questionnaires, the Shame and Stigma Scale (SSS), and the Decision Regret Scale (DRS).…”

Section: Resultsmentioning

confidence: 99%

“…All 23 studies had representative populations (Table 3). Seventeen studies had a low ROB. Most uncertainties were due to inadequate reporting on missing data and response rates.…”

Section: Resultsmentioning

confidence: 99%

Decisional Conflict and Decision Regret in Head and Neck Oncology

Heirman,

Arends,

de Jel

et al. 2024

JAMA Otolaryngol Head Neck Surg

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ImportanceHead and neck cancer (HNC) often requires treatment with a major impact on quality of life. Treatment decision-making is often challenging, as it involves balancing survival against the preservation of quality of life and choosing among treatments with comparable outcomes but variation in morbidity and adverse events; consequently, the potential for decisional conflict (DC) and decision regret (DR) is high.ObjectivesTo summarize the literature on DC and DR in HNC, to give an overview of its prevalence and extent, and to advise on clinical practice and future research.Data SourcesEmbase, Web of Science, MEDLINE, and PsycINFO were searched up to February 24, 2023, including all years of publication.Study SelectionEligible studies addressed DC and/or DR as primary or secondary outcomes with any instrument in HNC, except cutaneous tumors. Two mutually blinded researchers conducted screening and inclusion with support of an artificial intelligence assistant and conducted risk of bias (ROB) assessment.Data Extraction and SynthesisThe Preferred Reporting Items for Systematic Review and Meta-Analyses guidelines were followed for data extraction. ROB assessments were done using Critical Appraisal Skills Programme (qualitative) and CLARITY (quantitative). Meta-analysis with a random-effects model was used to obtain pooled prevalence estimates for DC and DR when at least 4 sufficiently clinically homogeneous studies were available.Main Outcomes and MeasuresPrevalence of DC (qualitative, Decisional Conflict Scale, SURE questionnaire) and DR (qualitative, study-specific questionnaires, Decision Regret Scale, Shame and Stigma Scale).ResultsOverall, 28 studies were included, with 16 included in meta-analyses for DR prevalence. The pooled prevalence of clinically relevant DR above the cutoff score for validated questionnaires (11 studies; 2053 participants) was 71% (95% CI, 58%-82%; I2 = 94%), while for study-specific questionnaires (5 studies; 674 participants) it was 11% (95% CI, 5%-22%; I2 = 92%). Only 4 studies investigated DC, showing a prevalence of 22.6% to 47.5% above cutoff values. Derived overarching themes found in qualitative studies were preparation, shared decision-making roles, information, time pressure, stress of diagnosis, and consequences.Conclusions and RelevanceAlthough limited data on DC and DR were available, the studies performed indicated that DC and DR are highly prevalent issues in HNC. Results suggest that study-specific questionnaires underestimated DR. The findings underscore the rationale to improve counseling and shared decision-making for this patient population.

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“…This study translated the original English version of the SSS into Malay and validated and adapted the SSS-M for assessing shame and stigma among cancer patients in Malaysia by evaluating the reliability and validity of the SSS-M among Malaysian patients with various types of cancer. The cancer patients in this study registered a degree of stigma (mean total SSS-M baseline = 17.34, SD = 11.03; mean total SSS-M follow up = 18.19, SD = 12.68) comparable with that of other cancer patients (mean total SSS = 16.5, SD = 16.1 in Brazilian cancer patients; mean total SSS = 18.08, SD = 14.67 in American cancer patients) [ 16 , 23 ].…”

Section: Discussionmentioning

confidence: 99%

Validation of the Malay Version of the Shame and Stigma Scale among Cancer Patients in Malaysia

Zhang

Azman

Eyu

et al. 2022

IJERPH

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The assessment of stigma among cancer patients is of the utmost importance as stigma may lead to various psychological sequelae and a lower quality of life. This study aimed to translate the English version of the Shame and Stigma Scale (SSS) into Malay and validate the Malay version of the SSS (SSS-M) to assess the degree of stigma among cancer patients in Malaysia. Initially, the concurrent translation and back translation of the SSS-M were performed, and the face and content validity were assessed. Subsequently, the SSS-M was administered to a total of 234 patients with mixed types of cancer to assess its reliability (internal consistency and test–retest reliability), construct validity (convergent and discriminant validity), and conduct an exploratory factor analysis (EFA) and a confirmatory factor analysis (CFA). The SSS-M total score registered a good internal consistency (a Cronbach’s α of 0.881) and test–retest reliability (an intraclass correlation coefficient of 0.876, p < 0.001). The EFA and CFA confirmed that the SSS-M consisted of 16 items in 3 domains. Its convergent and discriminant validity were achieved. Hence, the SSS-M demonstrated good psychometric properties and is available for use to assess stigma among cancer patients in Malaysia.

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Quality of Life of the Patient with Head and Neck Cancer Submitted to Radiotherapy and the Overload of Their Caregivers

Cited by 5 publications

References 21 publications

Barriers and facilitators to resilience for rural cancer survivors during COVID‐19

Barriers and facilitators to resilience for rural cancer survivors during COVID‐19

Decisional Conflict and Decision Regret in Head and Neck Oncology

Validation of the Malay Version of the Shame and Stigma Scale among Cancer Patients in Malaysia

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