Parental Perception of Quality of Life for Children with Autism Spectrum Disorder

Cholewicki, Judith; Drasgow, Erik; Chezan, Laura C.

doi:10.1007/s10882-019-09660-w

Cited by 9 publications

(7 citation statements)

References 37 publications

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“…A U.S. survey showed that the average age at diagnosis of ASD was 4.2 years [ 34 ]. The early identification and diagnosis of ASD lag behind in China [ 35 ], and the average age at diagnosis was 4.5 years [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Application of symbolic play test in identification of autism spectrum disorder without global developmental delay and developmental language disorder

Chang

Sun

2023

BMC Psychiatry

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Background Children with autism spectrum disorders (ASD) usually experience difficulty regarding symbolic play. However, studies on whether symbolic play test (SPT) can differentiate between ASD and other developmental disorders are inconsistent, and evaluating the application value of the SPT in the identification of ASD without global developmental delay (GDD) and developmental language disorder (DLD) is necessary. Methods A total of 200 children were selected as the research participants. There were 100 cases of ASD without GDD and 100 cases of DLD. All children were tested by SPT and Children Neuropsychological and Behavioral Scale-Revision (CNBS-R2016). Binomial logistic regression was used for multivariate analysis. The receiver operating characteristic (ROC) curve was used to evaluate the value of SPT in identifying ASD without GDD and DLD. Results SPT equivalent age was lower than chronological age in the two groups, the difference between the ASD without GDD group was greater than that in the DLD group, and the proportion of SPT equivalent age retardation was higher than that in the DLD group; the differences were statistically significant. Logistic regression analysis showed that there was a difference in SPT equivalent age between DLD and ASD without GDD. When the cut-off value of the SPT was 8.5, the largest area under the ROC curve was 0.723, and the sensitivity and specificity for the diagnosis of ASD without GDD were 0.720 and 0.620 respectively. Conclusions Symbolic play ability in ASD children is worse than that of DLD children at comparable development levels. SPT may be helpful to distinguish ASD without GDD from children with DLD.

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Section: Discussionmentioning

confidence: 99%

Application of symbolic play test in identification of autism spectrum disorder without global developmental delay and developmental language disorder

Chang

Sun

2023

BMC Psychiatry

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“…To ensure a valid QoL assessment in individuals on the spectrum, some scholars have argued for the development and use of autism-specific QoL instruments. 43,44,48,52 We agree that a greater understanding of what QoL entails for autistic individuals should be encouraged. However, both generic and autism-specific QoL instruments have their rightful place in the assessment of autistic individuals, albeit they both serve different goals.…”

Section: Towa R Ds a N Au Tism-specific I Nstru M E N T Of Qol?mentioning

confidence: 93%

“…To ensure a valid QoL assessment in individuals on the spectrum, some scholars have argued for the development and use of autism‐specific QoL instruments 43,44,48,52 . We agree that a greater understanding of what QoL entails for autistic individuals should be encouraged.…”

Section: Towards An Autism‐specific Instrument Of Qol?mentioning

confidence: 99%

“…The relevance and importance of some specific QoL domains (such as, for example, interpersonal relationships) is questioned by some scholars in the case of autism, 23,29,48,52 and focus groups and in-depth interviews have suggested that some areas that are important for those with autism are lacking in generic QoL instruments. 23,48 Therefore, some are pleading for a reconceptualization of QoL in autism.…”

Section: Towa R Ds a N Au Tism-specific I Nstru M E N T Of Qol?mentioning

confidence: 99%

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Conceptualization of quality of life in autistic individuals

Evers

Maljaars

Schepens

et al. 2022

Develop Med Child Neuro

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The present study examines to what extent two core characteristics of the quality of life (QoL) construct were incorporated in the field of autism: (1) its subjective nature; and (2) its multidimensionality. Therefore, we reviewed 174 articles examining QoL in individuals with autism. The review showed parents reporting a lower QoL compared with autistic individuals themselves, especially on internal domains. This may suggest different expectations about what a good QoL may entail. Such an underestimation of QoL by others is commonly observed in individuals with disabilities (the so-called 'disability paradox'). For the multidimensionality of the QoL construct, our findings suggest that the narrower (and more unidimensional) construct of health-related QoL is often measured instead of QoL. Additionally, a substantial proportion of items did not measure QoL, but they evaluated characteristics that may or may not have an impact on QoL. Researchers and clinicians should be aware that QoL domains are selected and operationalized differently by different instruments. QoL may benefit from an exclusive focus on subjective aspects, which can be measured alongside more normative, objective characteristics of individuals or their environment.This invited review is commented on by Higashida on page 934 of this issue.

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“…Children with ASD face many social problems, and in many cases, their families suffer a great deal of pain and burden. The key problem that these children encounter is a barrier to communication (Pickles et al, 2009;Koegel and Koegel, 2018;Hampton et al, 2020), including decreased academic performance, increased problematic behavior, and difficulties forming relationships with others and integrating into a typical society (Koegel et al, 1992;Cholewicki et al, 2019). by exogenous stimuli, while the former mainly by endogenous motivation.…”

Section: Introductionmentioning

confidence: 99%

Ultra-Light Clay Intervention Improves Responsiveness and Initiates the Communication of Children With ASD

Zhang

Sun

et al. 2022

Front. Psychol.

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The barriers to responsiveness and the initiation of communication are the two key problems encountered by children with autism spectrum disorders (ASD). Prior interventions based on behavioral reinforcement have had an obvious effect on responsive communication but a weak effect on the initiation of communication. Based on psychological development theory, we designed ultra-light clay interventions involving hands-on production or multi-interaction around key concepts and themes, teaching children about basic concepts, relationships, and logic, making abstract knowledge concrete and experience. Two studies (Study 1: N = 3, one-to-one intervention; Study 2: N = 8, one-to-two intervention) showed that ultra-light clay intervention improved both the initiation of and response to communication among children with ASD, but that such improvements show a peer-generalization effect in initiation communication, not in responsive communication. These findings provide a set of ultra-light clay interventions for communication in children with ASD and suggest a relationship between endogenous interventions and the initiation of communication.

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Parental Perception of Quality of Life for Children with Autism Spectrum Disorder

Cited by 9 publications

References 37 publications

Application of symbolic play test in identification of autism spectrum disorder without global developmental delay and developmental language disorder

Application of symbolic play test in identification of autism spectrum disorder without global developmental delay and developmental language disorder

Conceptualization of quality of life in autistic individuals

Ultra-Light Clay Intervention Improves Responsiveness and Initiates the Communication of Children With ASD

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