The Lifespan and Disability Project, a 2-year qualitative study, was designed to enhance understanding of social integration by including the perspectives of individuals with intellectual disabilities. Procedures and strategies employed to involve these individuals in the project were documented. Specifically, we describe the use of individual interviews and focus groups (e.g., purpose, rationale, facilitation techniques) to collect data, and verification meetings in which a prompting hierarchy and cueing were employed to assist participants in confirming or disconfirming the researchers' interpretations of the emerging findings. Highlights of the results were presented to illustrate the efficacy of the strategies in enabling the participants with intellectual disabilities to share their perspectives on social integration.
This study resulted in individual and system change that may not have been possible without the use of PAR. The focus was engagement of participants and recognition of their lived experience, which facilitated PHNs' empowerment, leadership and consciousness-raising.
Purpose Documents articulating public health nurses' (PHNs') roles, including Canadian standards and competencies, depict a broad focus working at multiple levels to improve population outcomes through the promotion of health equity. Conversely, Canadian experts depict a looming crisis, based on the rising disconnect between daily activities and ideal practice. While perfectly positioned, PHNs' skills and abilities are under-utilized and largely invisible. The intention of this study was to develop a model to support the full scope of equity-focused PHN practice. Method A participatory action research approach was used. Qualitative data were gathered using semistructured interview guides during audio-recorded meetings. The data were coded into central themes using content analysis and constant comparison. A researcher reflexive journal and field notes were kept. A significant feature was full participant involvement. Results The outcome was a professional practice model to reframe the PHN role to focus on population health and equity. The model was imperative in promoting full scope of practice, dealing with workload pressures, and describing PHNs' value within the organization and broader health system. Conclusion Professional practice models hold promise as frameworks to depict autonomous practice activities, situated within organizations and healthcare systems, and underpinned by nursing knowledge.
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