BackgroundKawasaki Disease is an acute and self-limited systemic inflammatory and febrile illness, which is the most common cause of acquired heart disease in children in developed countries. The incidence of KD in Asian countries is high. But, data is not available from the Middle East. So, the aim of this study was to develop an MDS to set up a national registry for KD to estimate the burden of disease in Iran.Materials and MethodsThis cross-sectional and descriptive study was conducted in 2020. Literature review, data collection from patients medical records, and expert panel approach were used to design this MDS. Data elements with a Content Validity Ratio (CVR) of more than 0.56 were selected as the MDS of the registry.ResultsOverall, 99 data elements were recognized. Of which, 51 and 48 data elements were verified and rejected, respectively. Moreover, 17 data elements were added as required by experts. Eventually, 68 data elements were chosen as the MDS of the national KD registry of IRAN; of which, 17 and 51 data elements were classified as administrative and clinical data, respectively.ConclusionsThese precise, integrated, and comprehensive developed data elements and the national KD registry will lead to effective disease management and thus, improve the quality of care and, consequently, improve public health.
Context: Rheumatic Heart Disease (RHD) remains the prominent cause of morbidity and mortality among young individuals in developing countries. The present research aimed to estimate the prevalence of RHD in Iran. Data Sources: In this review, all population-based studies with a sample size of ≥500 participants related to the prevalence of RHD were included. The search was conducted in national and international databases. The combination of medical subject headings and free-term text items concerning the incidence, prevalence, rheumatic fever, RHD, and Iran were used in this study. Data Extraction: In this systematic review, 490 papers were identified. A total of 296 articles were screened; of which, 9 qualified articles were selected for the final data analysis. All studies were of cross-sectional, and descriptive natures. Two authors used the data extraction form to independently extract relevant data from the included studies. Disagreements between the authors were reconciled through discussion and consensus. Results: The overall prevalence of RHD was calculated as 0.02% (20/100000 population). This prevalence rate is estimated based on studies conducted in the northern, southern, eastern, western, and central regions of the country; therefore it could be an estimation of the relevant prevalence rate in Iran. However, there were no updated and high-quality data in this regard. Thus, the reported rate might be underestimated. Conclusions: There is a need for a nationwide survey to investigate the precise prevalence of RHD in Iran. This can be achieved by creating a national database of RHD.
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