Health equity is a key pillar in supporting a future in which CYSHCN enjoy a full life and thrive, as envisioned by experts and community partners who gathered in 2019 and 2020 to develop the Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families. However, a variety of contextual factors impact health outcomes across the life course and intergenerationally and must be addressed to achieve this goal. For example, poverty and discrimination, including by some health care professionals and systems, are important, modifiable root causes of poor health outcomes. There are numerous barriers to achieving health equity, including political will, lack of resources, insufficient training, and limited cross-sector collaborations. Political, cultural, societal, and environmental interventions are necessary to eliminate health disparities and achieve health equity. The entities that serve CYSHCN should be equitably designed and implemented to improve health outcomes and address health disparities. Many entities that serve CYSHCN are taking positive steps through workforce development, policy changes, community engagement, and other means. The purpose of this article is to frame health equity for CYSHCN, detail their health disparities, review barriers to health equity, provide examples of strategies to advance health equity for them, and describe a path toward the future in which all CYSHCN have a fair and just opportunity to be as healthy as possible.
Adolescent Health: Think, Act, Grow® (TAG) is a national call to action to promote adolescent health and healthy development. Led by the Department of Health and Human Services Office of Adolescent Health and developed with the input of national organizations, it builds on the collective wisdom of youth-serving professionals and seeks to raise the profile of adolescent health in the national discourse. Using TAG, the Office of Adolescent Health conducts outreach and delivers tools and information that support the integration of positive youth development precepts into the ongoing work of federal, state, and local public agencies; youth-serving health, public health, education, and social service professionals and organizations; faith- and community-based organizations; workforce development organizations and employers; and other stakeholders. TAG does not provide a formulaic blueprint for action, but instead encourages youth-serving organizations to use approaches that are consistent with their mission, objectives, priorities, and tactics. Preliminary evaluation findings indicate interest in the overall concept and resources of TAG, with partners citing the sharing of resources as a primary engagement strategy.
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