Background: Cerebral palsy (CP) is a non-progressive disorder of posture or movement caused by a lesion to the developing brain that results in functional limitations. The diagnosis of CP can vary from one child to another, causing family stress because of vague and unknown outcomes of the disorder. Although there are negative attitudes in Ghanaian societies towards primary caregivers and children with disabilities, fewer attempts have been made to understand their experiences.Objectives: The main aim of this study was to explore the experiences of primary caregivers across the trajectory of the diagnosis (before, during and after) of CP in the setting of a tertiary hospital.Method: Using Social Capital Theory as framework, 40 primary caregivers of children with CP, who were receiving treatment at a major referral hospital in Ghana, were interviewed about their experiences before, during and after diagnosis.Results: The results that emerged from the thematic analysis were discussed as follows: experiences before diagnosis, experiences during the diagnosis and experiences after the diagnosis. Particularly, participants discussed their inability to access essential services such as education for their children with CP.Conclusion: In light of systemic challenges faced by participants and their children with CP, the need for health policymakers to prioritise the public education about CP, promoting the well-being of caregivers and other implications of the study have been discussed.
Unemployment and the corollary of poverty among persons with disabilities have been well explored in the literature. As part of its global efforts to eradicate poverty, the United Nations, through its sustainable development goals, has urged countries to create economic opportunities for all persons to participate in income-generating activities. In Ghana, agriculture has been described as the backbone of the economy and the main source of employment and livelihood for many. However, it appears that policymakers are yet to explore how agriculture could create sustainable employment opportunities for persons with disabilities. This study makes a major contribution to research on the eradication of poverty among persons with disabilities by exploring their participation and experiences in agriculture-related activities. One-on-one interviews and focus group discussions were conducted with 19 persons with disabilities from three communities in a district in Ghana. A recurrent theme was that agriculture was a way through which the Ghanaian government could create employment for persons with disabilities. However, the participants recounted formidable barriers that affect their participation in agriculture: lack of land, funds and farming tools, and negative attitudes. These findings highlight the need for policymakers to engage with persons with disabilities to identify possible ways to assist their participation in agriculture.
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