Problem and background: Dysmelia is usually detected prenatally or postnatally in maternity services. The provision of family-centred care for parents at the time of initial diagnosis is crucial to facilitate decision making, access to appropriate services, and the provision of parental care-giving, but no research has investigated parent experiences or preferences in this population. Aims:The current research aimed to address this by investigating satisfaction with service, occurrence of signposting and preferences in this group.Methods: Two online surveys were conducted. In the first survey (n = 417), parents reported whether they were offered signposting information and their level of satisfaction with the service they received when initially diagnosed. In the second survey (n = 130), a subgroup of participants who completed the first survey reported their preferences for signposting and health service access after diagnosis. Findings:On average, participants were less than satisfied with the service they received and only 27% were offered signposting information. Satisfaction was higher amongst parents who had been offered signposting information. 91% of parents said they would have wanted signposting information and 67% would have wanted access to a support group. Conclusions:There is a need to improve the family-centeredness of care when dysmelia is identified. Offering signposting information to relevant third-sector organisations may increase parent satisfaction and address parent preferences. These findings could have implications for parents of children with other rare diseases identified in maternity services.

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6Despite the major advances in finite element (FE) modeling and system identification (SI) of 7 extended infrastructures, soil compliance and damping at the soil-foundation interface are not 8 often accurately accounted for due to the associated computational demand and the inherent 9 uncertainty in defining the dynamic stiffness. This paper aims to scrutinize the effect of soil 10 conditions in the SI process and to investigate the efficiency of advanced FE modeling in 11representing the superstructure-soil-foundation stiffness. For this purpose, use is made of the 12 measured, computed and experimentally identified natural frequencies of a real bridge. Field 13 measurements that were obtained during construction were reproduced both in the laboratory 14 and by refined FE modeling. In addition, to understand the physical problem more thoroughly, 15 three alternative soil conditions were examined, namely, rock, stabilized soil and Hostun sand. 16Discrepancies in the order of 3-13% were observed between the identified and the numerically 17 predicted natural frequencies. These discrepancies highlight the importance of reliable 18

Kurzfassung Eng verknüpft mit der Entwicklung zur Industrie 4.0 steht der Begriff Smart Factory. Die nächste industrielle Revolution bietet jedoch nicht nur Potenziale in Bezug auf den Einzelstandort, sondern auch für die effiziente Vernetzung von Standorten zu einem Smart Network. Entsprechend ist Industrie 4.0 in der Lage, einen wichtigen Beitrag zum Management globaler Produktionsnetzwerke zu leisten. Im vorliegenden Beitrag wird erläutert, welchen Einfluss Industrie 4.0 auf das strategische Management, die Gestaltung und die Steuerung von Produktionsnetzwerken haben kann. Dabei wird insbesondere aufgezeigt, welche Voraussetzungen auf dem Weg zu Smart Networks zu schaffen sind und inwieweit die Leistungsfähigkeit von Produktionsnetzwerken dadurch positiv beeinflusst wird.