Objective: to describe schistosomiasis cases and deaths among residents of the city of Recife, Pernambuco, Brazil, from 2005 to 2013. Methods: this was a descriptive epidemiological study using data from the Mortality Information System (SIM) (2005)(2006)(2007)(2008)(2009)(2010)(2011)(2012)(2013) and the Notifiable Diseases Information System (SINAN) (2007)(2008)(2009)(2010)(2011)(2012)(2013); active tracing of the relatives of the dead was undertaken and probabilistic linkage of the databases (2007)(2008)(2009)(2010)(2011)(2012)(2013) was performed using the Reclink program. Results: 297 schistosomiasis deaths were recorded on the SIM system; through active tracing, 130 relatives were contacted and 20.8% autochthony was identified; 388 cases resident in Recife were registered on the SINAN system; through probabilistic linkage, 23 matching records were identified on SIM and SINAN. Conclusion: investigation of deaths showed that some individuals had never traveled outside Recife and progressed to the chronic stage of the disease; 23.8% of the cases registered on SINAN had Recife as the municipality in which infection occurred.

The objective was to understand the care trajectories of individuals with a record of death from schistosomiasis in Recife in 2012. Analytical, retrospective study with a qualitative design. Seventeen key informants participated in the interviews. After data collection, we opted for content analysis in the thematic modality: the demand for health services from intercurrences; pilgrimage in search of treatment; causes in different ways. It is noticed that the needs of the population are not respected. The lack of knowledge about the disease and the underlying cause of death is evident. Patients did not perceive the initial signs and symptoms. Diagnosis and treatment were started late, at the hospital level, after the patient's general condition worsened. The indispensability of (1) strengthening primary care for the initial diagnosis and effective treatment of schistosomiasis is evident; (2) education for health among the population and (3) guaranteeing specialized care at referral centers for disease.