Recognizing the prominent role of parents in supporting their children with intellectual and developmental disabilities (IDD), improving quality of life for these families is an essential endeavor. While much attention has focused on the experiences of families with younger children with IDD, little is known about the family quality of life (FQOL) among families with transition-age youth and young adults. We examined the FQOL ratings of 425 parents with a child between 13-21 years of age with intellectual disability or autism to understand FQOL and the factors that may shape it. Overall satisfaction with FQOL was somewhat high for this sample, with some variability across domains. Higher FQOL ratings were predicted by lower frequency of challenging behaviors, lower support needs, and higher strength of parental religious faith. We present recommendations for research and practice focused on promoting quality of life during the transition period.
All families, including those impacted by disability, desire and deserve opportunities for high quality of life. This study focused on family quality of life (FQOL) among 529 parents with children or adults with intellectual disability (ID). Parents reported moderate to high levels of FQOL satisfaction, with some variability across domains. We conducted hierarchical linear regression analyses to examine associations among FQOL and: (1) individual and family demographic factors, (2) religiosity/spirituality factors, and (3) relationship factors. Findings highlighted the significance of both informal (i.e., family, friends) and formal (i.e., professional) social relationships, as well as the relevance of spirituality/religiosity, as factors contributing to FQOL. We offer recommendations for research and practice aimed at enhancing FQOL of parents with children and adults who have ID.
Although the prominence of spirituality and religious connections among the people of the United States is well documented, little is known about the place of faith in the lives of youth with developmental disabilities. In this qualitative interview study, we examined the perspectives of 20 young people with intellectual disability or autism on their faith, spiritual expressions, and disability. Participants identified key spiritual expressions and themes reflecting the importance of faith in their lives. They also shared perceptions of their disability in the context of their faith, highlighting affirmation and acceptance of their disability. We offer recommendations to families, faith communities, and service systems for supporting the spiritual formation, expression, and connections of young people with disabilities.
Can young people with intellectual and developmental disabilities be known for their strengths? This mixed-method study explored the strengths of 427 youth and young adults with intellectual disability and/or autism (ages 13-21) from the vantage point of their parents. Using the Assessment Scale for Positive Character Traits–Developmental Disabilities (ASPeCT-DD), parents identified numerous strengths across multiple domains and factors. Every young person in the sample was described as having at least one strength (Mdn = 20, range 1-26), and their strength-related profiles varied widely. Higher ratings of strengths were predicted by greater involvement in community activities and use of speech as the primary mode of communication. Challenging behaviors predicted lower ratings of strengths. These findings challenge prevailing deficit-based views of young people with intellectual and developmental disabilities and offer a promising alternative for describing transition-age youth in terms of the strengths they bring to activities and relationships. We offer recommendations for future research and practice.
Although the importance and influence of spirituality in the lives of youth and young adults have garnered much attention, few studies have focused on the religious and spiritual lives of young people with intellectual and developmental disabilities (IDD). We examined the congregational activities, spiritual practices, and strength of religious faith of 440 individuals with IDD (aged 13-21 years) as reported by their parents. Such activities and practices were described as having particular prominence, with most youth participating in multiple ways both in a local congregation and at home. However, participation patterns were individualized and strongly associated with the importance of faith in their lives. We offer recommendations for families, congregations, agencies, and researchers aimed at better understanding and supporting this often-overlooked dimension of the lives of youth with IDD.
Although faith has particular prominence in the contemporary American landscape, its intersection with disability and families has received little attention. We examined the spiritual and religious lives of 530 parents and caregivers of family members who have intellectual disability. For most participants, faith had clear relevance and was reflected in their congregational participation, beliefs, practices, and strength of faith. Yet considerable diversity was apparent in the ways in which each was evidenced, which included a modest number of families for whom this was not a salient aspect of their lives. Most participants identified ways in which their spirituality and religious participation contributed to their well-being. However, access to social supports through a local congregation was more muted. We address implications for professionals who support these families and congregations who welcome them. We also offer recommendations for expanding the opportunities and supports parents and caregivers need to flourish in their faith.
Purpose Corporates have recently invested in company-owned makerspaces with the goal to skim the potential of makerspaces as innovation driver. The purpose of this paper is to introduce the first framework describing elements and the innovation-related impact on users of corporate makerspaces (CMSs). Design/methodology/approach The CMS framework is based on a critical review of 116 scientific articles on makerspaces and the embedding of the review findings into the corporate context. Findings A prototyping infrastructure, a community infrastructure and facilitators are proposed to be key elements of CMSs. Further, CMSs are suggested to have an impact on ideation, concept iteration during the innovation process and collaboration of its users. Research limitations/implications The framework on CMSs is based on a critical review of makerspace literature and not on empirical research data. Practical implications This paper sheds light on key elements and the expected innovation-related impact of a CMS on the users and thus contains useful information for corporate innovation management on how to plan, build and implement a CMS. Originality/value To the best of the authors’ knowledge, this paper is the first review of makerspace literature with focus on their elements and innovation-related impact. Additionally, the review provides the first academic definition of the growing phenomenon of CMSs and describes elements and the innovation-related impact of CMSs on its users in companies, which paves the way for further research on CMSs.
Prevailing policy and practice in the field of transition emphasizes the importance of designing services and supports based on research-based practices. We reviewed every article published across the 35-year history of Career Development and Transition for Exceptional Individuals (CDTEI) to document methodological trends in research focused on equipping youth and young adults with disabilities for adulthood. Although experimental research articles have assumed increasing prominence within the journal since the late 1980s, the vast majority of published studies could be characterized as primarily descriptive in focus. While almost one quarter of research articles involved some type of intervention evaluation, only 25 studies reported using research designs that could allow causal claims to be made. The data collection approaches used in these studies were quite diverse, with self-report surveys and questionnaires representing the dominant approach. We summarize the current methodological legacy of CDTEI and offer some modest recommendations for where the field might go next in its efforts to conduct rigorous research that enables youth with disabilities to flourish.
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