Accessible summary It is important to ask people who use services and their families about their experience of care, and to make service changes in line with what they want/need. We asked four parents of adults with learning disabilities what they liked, disliked, and would like to be different about the ward (Assessment and Treatment Unit) where their relative was staying. We summarised what these parents said and shared it with families and the staff team. We want to use what they said to improve our service. Abstract BackgroundLearning disability services must include the people who use them (individuals and their families/carers) in service commissioning, planning and delivery (Department of Health 2012. Transforming care: A national response to Winterbourne View Hospital. Department of Health review: Final report). One group of important stakeholders in learning disability services are the family members and carers of people with a learning disability. The aim of this study was to explore how family members experienced their involvement with one Assessment and Treatment Unit, with a view to shaping future service developments. Materials and MethodsQualitative methods were employed to explore family members' lived experiences. Four participants, all parents of service users, took part in semi‐structured interviews. Interview transcripts were analysed using thematic analysis. ResultsAnalysis elicited four master themes under which subordinate themes clustered. The master themes were as follows: “Admission as traumatic, a relief, or both,” “Negotiating a new role,” “Valued features of the unit” and “Negative experiences.” ConclusionsThe findings have implications for learning disability services and future research. Findings are discussed with relevance to strengths, limitations, wider literature and policies driving learning disability services.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
hi@scite.ai
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.