Caregivers for dialysis patients have endured tremendous burden and responsibilities in their daily lives from caregiving. Interventions that cater to them are essential, considering that they play an essential role in the illness management of patients. The purpose of this review is to examine the interventions implemented among the caregivers caring for patients diagnosed CKD and its effectiveness in alleviating the caregiver burden. PRISMA-ScR checklist was utilized as the reporting standard. Past studies were searched in four major citation databases (MEDLINE, Cochrane Library, PubMed, and Web of Science) in the timeframe of February 2022. Nine studies were identified, comprised of randomized controlled trials (RCTs) and quasi-experimental studies. The types of intervention programs reviewed were educational programs, supportive programs, family-centered programs, and psychological interventions. The evidences have suggested that these programs are effective in reducing caregiver burden among the caregivers of CKD patients.
Background: Stress amidst the COVID-19 pandemic is becoming more prevalent. This paper aimed to describe the validation process of the Malay Perceived Stress Scale modified for COVID-19 (PSS-10-C) amongst Malaysian youths. Methods: The cross-sectional validation study design was employed in this study. In Phase I, the scale was translated into Malay by using the forward-backward method. In Phase 2, principal axis factoring and confirmatory factor analysis were conducted in Study 1 (n = 267) and Study 2 (n = 324), respectively. Results: A two-factor solution, comprising ‘distress’ and ‘coping’ domains was derived (cumulative variance = 65.2%) in Phase 2. Concurrent validity evaluated via the Beck Hopelessness Scale revealed a moderate positive correlation (0.528). In Study 2 (n = 324), the confirmatory factor analysis showed that the two-factor model achieved acceptable model fit indices, including 2/df ratio = 2.57; root mean square error of approximation (RMSEA) = 0.07; 95% CI = 0.05, 0.09; Tucker-Lewis Index (TLI) = 0.95 and Normed Fit Index (NFI) = 0.94. The Cronbach’s alpha scale score was 0.855 for the study samples. Conclusion: The Malay PSS-10-C is a valid and reliable scale to be used amongst Malaysian youths.
IntroductionThe number of patients in Malaysia requiring dialysis is expected to rise substantially in the future due to the ageing population and increasing prevalence of diabetes mellitus and hypertension. Hence, more individuals will be expected to adopt the role of caregivers in the future. The upward trend of end-stage renal disease (ESRD) and caregiving for dialysis patients has detrimental consequences for both patients and caregivers in terms of their psychological well-being and quality of life. Despite the current circumstances, there are very few studies in Malaysia that have explored the psychosocial factors, specifically on the economic impact of the management of ESRD.Methods and analysisThis two-phase sequential explanatory mixed-methods design, incorporating a quantitative design (phase I) and a qualitative study (phase II), is to be conducted in 4 government hospitals and 10 other non-governmental organisations or private dialysis centres within Klang Valley, Malaysia. A cross-sectional survey (phase I) will include 236 patient-caregiver dyads, while focus group discussions (phase II) will include 30 participants. The participants for both phases will be recruited purposively. Descriptive statistics, independent sample t-tests and multiple regression analysis will be used for analyses in phase I, and thematic analysis will be used in phase II.Ethics and disseminationApproval for the study has been obtained from the National Medical Research and Ethics Committee (MREC) (NMRR-21-1012-59714) and the Research Ethics Committee of Hospital Canselor Tuanku Muhriz UKM (UKM PPI/111/8/JEP-2021–078) and University of Malaya Medical Centre (MREC ID NO: 2 02 178–10346). Informed consent of the participants will be obtained beforehand, and no personal identifiers will be obtained from the participants to protect their anonymity. The findings will be published in peer-reviewed scientific journals and presented at national or international conferences with minimal anonymised data.
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