First the good news. People with genetic, congenital, pediatric-onset traumatic, and acquired disabilities are surviving in record numbers to adulthood (an estimated 86% of Children and Youth with Complex Health Care Needs and Technological Dependencies). 1 Many are the first generation to do so. These include patients typically seen by pediatric rehabilitation doctors including patients with cerebral palsy, spina bifida, and neuromuscular diseases, as well as brain injuries, malignancies, and spinal cord PM R 12 (2020) 602-609 www.pmrjournal.org
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