Direct support professionals (DSPs) and frontline supervisors (FLSs) play an integral role in the lives of people with intellectual and developmental disabilities (IDD) and are often the individuals directly responsible for assisting people with IDD to live and fully participate in their communities. These two groups of workers have typically been employed at lower wages with limited access to fringe benefits, contributing to high rates of turnover compared to a similarly skilled worker in the United States. This article summarizes findings and is the first investigation in several years to systematically examine the wages, fringe benefits, and stability of the DSP and FLS workforces supporting individuals with IDD. Findings suggest that a typical DSP may expect to earn about $11.25 per hour, while FLSs may expect wages of about $15.45 hourly. Of concern, however, is that fringe benefit provision was quite limited in this sample. Implications, including relation to past reports of DSP workforce development, are discussed.
Background Public stigma, or negative community‐held beliefs, about children with disabilities (CWDs) often leads to negative outcomes for CWD and their families. This study considers the effectiveness of four community‐level interventions to reduce public stigma in two Lusaka, Zambia communities. Methods This feasibility study describes four community‐based interventions to provide education to consider whether perceptions of attitudes and stigma towards CWD changed after implementing four educational interventions. Results Results revealed that these interventions were achievable. Preliminary multiple regression analyses indicated a significant impact of attending an event on the attitude scale, while no effect on the stigma scale. Presence at multiple anti‐stigma events exhibited no effect for the stigma scale, while the attitude scale showed significance. Discussion This study builds on the limited research available in low‐income countries to reduce public stigma towards CWD, with the hope of enhance quality of life for CWD and their families.
Importance: Families with a child or children with a disability (CWD) living in low- and middle-income countries (LMICs) are a marginalized population experiencing multiple contextual factors within a social model of disability that contribute to decreased occupational participation. Objective: To understand the advocacy messages that caregivers of CWD, living in an LMIC, wanted their community to learn about CWD. Design: Photovoice methodology was used with 10 parents of a CWD. Photographs, accompanying narratives, and focus group session transcripts were analyzed using Wang and Burris’s (1997) original Photovoice technique. Setting: Urban subdistrict of Lusaka, Zambia. A community venue was used for the focus group, and the community photograph exhibition occurred in the subdistrict. Participants: Ten parents of a CWD living in an urban subdistrict of Zambia who were currently participating in a community-based program, Kusamala+, which addressed stigma in the community and supported parents of children with disabilities through training. Results: Three themes were revealed: (1) “our children with disabilities should be shown love,” (2) “our children with disabilities should be well taken care of,” and (3) “our children with disabilities need help because they have different needs.” Conclusions and Relevance: The findings indicate that a social disability model lens and participatory action research can be used to reveal occupational injustices that hinder parents’ engagement in caregiving for their CWD in a marginalized community. Use of visual methodologies can be a powerful advocacy tool for marginalized populations. What This Article Adds: Our findings suggest that occupational therapists can better understand, and provide services to, families living in marginalized communities by using a social model of disability as a framework for evaluation and service provision. By highlighting issues of occupational injustice, occupational therapists can advocate for and empower communities of people with disabilities who face stigma and discrimination.
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