Palliative care should be integrated along the continuum for all children living with life-limiting illness. Many misconceptions about palliative care exist, including the misunderstanding that palliative and curative care are mutually exclusive. Many associate palliative care with hospice and do not recognize that palliative care is available and beneficial before end of life. Palliative care should be initiated at the time a family receives a life-limiting diagnosis and should continue throughout the child's life. Children may have a better quality of life and even longer life span when palliative care has an earlier initiation. In this article, we discuss these common misconceptions and describe how children and families benefit from palliative care when it is integrated along the illness continuum. In addition, we discuss how pediatricians can incorporate these principles into their practice to support their families.
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Pediatr Ann
. 2022;51(1):e40–e46.]
Specific roles that fathers adopted to varying degrees were identified: Protector, Provider for Family, Partner in Shared Decision-Making, and Emotional Supporter of Mother. The degree to which fathers engaged with the experience of the pregnancy, including the loss, impacted the development of a shared emotional experience for the couple, which influenced the outcome of the relationship.Conclusion. There are several unique features to the experience of fathers in pregnancies with a lethal fetal condition, and there are several distinct roles that fathers play in their relationships with the fetus, baby, and mother.
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