This anthropological study explores children's non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children's non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 months of ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children's response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment, configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.
This article explores how institutions and individuals in Denmark deal with the uncertainty of cancer in children. Based on a seven months ethnographic fieldwork conducted on a paediatric oncology ward during the period 2011-2013, the article examines how uncertainty manifests itself in the interface between cancer treatment and institutional childhood in the Danish welfare state. The argument is based on American pragmatist philosophy and its ideas about how people respond to a hazardous world in constant transformation. Through a focus on practices, the article explores how clinical and existential uncertainty arises for children and their families, and how they deal with this by navigating their way round the more tangible forms of insecurities. Important collective attempts to circumscribe clinical uncertainty are part of this navigation, but the article argues that epidemiologically based practices of dealing with the clinical uncertainty of cancer paradoxically gives rise to existential and social uncertainty for the affected children and their families, which they struggle with during treatment and even as long-term social effects into adolescence and young adulthood. The article suggests that more attention should be paid to assist children to manage the social and existential uncertainty that emerges in the interface between being a child in cancer treatment and being a child in the Danish welfare state.
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