this study aimed to know the strategies of families in the care of children with chronic diseases. A descriptive and exploratory research was carried out using a qualitative approach, in a Pediatric Unit of a university hospital in the south of Brazil, during the first and second halves of 2013. The study involved 15 participating families. Data were collected by means of interviews subjected to thematic analysis. It was identified as strategies: balance work, study and care, share tasks throughout the day, adapt the physical area of the house, engage the child in their own care, seek resources in the network of social support and faith, seek assistance in another city; and engage in physical activity to reduce stress. It was concluded that it is necessary that the nurses participate of the family support network, as a support source for the strengthening of the family to the care, acquiring skills and expertise to a positive coping of the child's chronic disease.
DESCRIPTORS:Nursing. Child. Chronic Disease. Family. Nursing care.
ESTRATÉGIAS DE FAMÍLIAS NO CUIDADO A CRIANÇAS PORTADORAS DE DOENÇAS CRÔNICASRESUMO: Objetivou-se conhecer as estratégias de famílias no cuidado a crianças portadoras de doenças crônicas. Realizou-se uma pesquisa descritiva e exploratória, com abordagem qualitativa, em uma Unidade de Pediatria de um hospital universitário do Sul do país, no primeiro e segundo semestres de 2013. Participaram 15 familiares. Os dados foram coletados por entrevistas submetidas à análise temática. Como estratégias foram identificadas: conciliar trabalho, estudo e cuidados; dividir as tarefas ao longo do dia; adaptar a área física da casa; envolver a criança no seu próprio cuidado; buscar recursos na rede de apoio social e na fé; procurar assistência em outra cidade; e realizar atividade física para fortalecer-se e reduzir o estresse. Concluiu-se como necessário que o enfermeiro torne-se parte da rede de apoio da família, sendo fonte de suporte para que a mesma consiga fortalecer-se para o cuidar, adquirindo habilidades e competências para o enfrentamento positivo da doença crônica da criança.DESCRITORES: Enfermagem. Criança. Doença crônica. Família. Cuidados de enfermagem.
ESTRATEGIAS DE LAS FAMILIAS EN EL CUIDADO DE NIÑOS CON ENFERMEDADES CRÓNICASRESUMEN: Este estudio tuvo como objetivo conocer las estrategias de cuidado de niños con enfermedades crónicas, realizadas por las familias. Se realizó un estudio cualitativo descriptivo, exploratorio en una unidad pediátrica de un hospital universitario en el sur del Brasil, en 2013. Participaron 15 familiares. Los datos fueron recolectados a través de entrevistas y sometidos a análisis temático. Fueran identificadas las siguientes categorías: conciliar trabajo, estudio y asistencia; dividir las tareas a lo largo del día, adaptar el espacio físico de la casa, incluir a los niños en su propio cuidado, buscar recursos en la red de apoyo social y la fe, buscar ayuda en otra ciudad y realizar actividad física para reducir el estrés. Se concluyó que las enferm...
This study aimed to reveal how family experiences the hospitalization of the child in hospital. The study was performed at the pediatrics ward at a university hospital, in the state of Rio Grande do Sul, Brazil. The methodological approach was based on Grounded Theory. Data were collected through semi-structured interviews, during the first semester of 2010 with 12 companion mothers. They were divided into two sample groups. Comparative analysis of the data generated two categories: negative family experiences during child hospitalization and positive family experiences during child hospitalization. It is known that the experiences of families in the hospital lead us to reflect on our actions when facing them, indicating strategies that professionals can adopt in order to provide a more effective care, they help to experience a healthier hospitalization of the child reflecting on this process.
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