This paper draws on the narratives of parents of disabled babies in order to conceptualise notions of enabling care. This analysis emerges from the Sheffield site of an ESRC research project Parents, Professionals and Disabled Babies: Identifying Enabling Care , which brings together the Universities of Sheffield and Newcastle-upon-Tyne. The linear heroic narrative is a dominant theme within Western culture. It is competitive and individualistic and tends to be futureorientated in that actions conducted in the present are evaluated according to later outcomes. This linear narrative places much store on modernist interventions such as medicine, and tends to uphold professional boundaries and hierarchies. In the lifeworlds of parents, usually mothers, of disabled babies, this narrative can reinforce disempowering interpretations of disability and impairment. On the basis of 25 in-depth interviews, accompanying stories and ethnographic data, this paper suggests that parents are developing counternarratives which, at times, resist linear life models and free parents to enjoy their children as they are. If life is perceived as an open book rather than as a concluding chapter, parents are able to develop stories that are neither linear nor heroic but present and becoming.
Health and wellbeing are now located within a policy framework that emphasises the empowerment of the individual 'consumer'. Within this paradigm, empowerment is writ large and wellbeing is seen as a 'civic duty'. The role of the health and social care services has been identified as one of enabling service users to promote their own wellbeing. In this paper, it is argued that dominant narratives relating to 'achievement' and 'normality' may result in forms of 'misrecognition' that act to undermine the positive sense of self that is crucial for self-empowerment. It is suggested that while the parents of disabled babies often act reflexively to create empowering life narratives within the private sphere, this is not always facilitated by their encounters with health and social care organisations where neo-liberal ideas and biomedical narratives, based on a modernist view of identity as individual and existing prior to society, mean that parents and children are attributed 'deficient' identities in ways that undermine empowerment. With reference to 'the politics of recognition', it is argued that services that seek to empower must value diversity and alterity whilst respecting human dependency on intersubjective recognition.
Co-production is gaining ground as a key dimension of public policy reform across the globe. This paper argues in favour of social welfare shaped by the principles of co-production and suggests that the promotion of democratic relationships is more likely to enable the agency and recovery of victim-survivors of childhood sexual abuse. The paper, based on an autoethnographical approach, is likely to be of relevance to social care practitioners who work with a range of marginalised people, particularly in liberal states that promote organisational cultures shaped disproportionately by risk. Cultures of risk, it is argued, promote power balances and othering, arguably an institutional perpetuation of the original abuse. Coproduction, on the other hand, has the potential to legitimise expertise by experience, enabling victim-survivors to be reinstated as citizens with associated rights of participation.The paper subsequently draws out some of the benefits of co-production for practitioners whose professional engagement may be stifled. We suggest that co-production potentially points towards practice based on the valuing of expertise by experience and social solidarity.
Narrative approaches have exercised an emancipatory influence within mental health. In this article, it is suggested that there is a risk that the emancipatory tradition associated with narrative may be co-opted through contemporary mental health strategy by a narrow agenda which promotes a particular Western and neoliberal form of citizenship. This may limit the way recovery can be imagined by equating it solely with the future-orientated individual who strives, above all, to be economically independent. To resist this, it is suggested that narrative in mental health should be approached with recourse to therapeutic thinking which promotes a relational ethos of ‘recovery together’. The ‘recovery together’ model is subsequently considered in relation to narrative research on temporal understandings which have been conducted in disability studies and in the area of chronic illness. These studies point towards the value of a relational orientation towards well-being in the present, rather than fixating on future goals. It is suggested that a relational philosophy of the present might be usefully incorporated into narrative approaches when working therapeutically with people suffering from mental distress. It is argued that this might enable users and practitioners to extend the available narrative templates and to imagine recovery in diverse ways which support personal transformation and, ultimately, contribute to social change.
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